Anthony is 26 years old and he’s just been diagnosed with what we call Motor Neurone Disease.

Already, his fingers fumble when he’s trying to do up the buttons on his shirt. His hands shake and stiffen as he tries to brush his teeth. And he knows what’s coming because he’s seen it happen to his mother and his grandmother.

In time, Anthony won’t be able to move his lips to talk, and his legs won’t feel like his own. His muscles will weaken faster than they should and eventually, he won’t be able to breathe of his own accord. The disease will put this young man into an elderly man’s body well before it’s time.

Anthony is the reason Oprah Winfrey, Gwyneth Paltrow, J-Lo, Taylor Swift, Ben Affleck and Bill Gates have all dumped buckets of ice water over their heads this week.

Anthony is the reason every celebrity with a heart and a bucket has done the “ ice bucket challenge “.

As Anthony says, “I promise your news feed will go back to cat videos and covers of Frozen soon.”

But for now, all these ridiculous ice bucket challenge videos are serving a purpose – forcing us to talk about a painful, devastating illness. Oh, and it’s raised about $15 million for the cause so far.

Please, please, listen to what Anthony has to say.

The team at The Glow have answered a few questions you may have about how this ice bucket challenge is relevant in Australia.