Imogen Bolton was just a few months old when her parents, Hayley and Jason, received devastating news. Their tiny daughter had the rare condition alveolar capillary dysplasia, meaning her lungs weren’t fully formed. She was only expected to live for a few weeks.
“When we first asked about a transplant they said she was too young and too small,” her mother told The Sun. “Then they told us the biggest issue would be finding a donor.”
Without much hope, Imogen was put on the transplant list. Miraculously, just one week later, a suitable donor was found. At the age of five months, Imogen became the youngest person in the UK to undergo a double lung transplant.
With her new lungs, Imogen thrived. After she was released from hospital, her parents went public with her story in October. Her mother said they were “hugely grateful” to the donor family.
“We don’t know who they are, but we are able to write to them,” she said. “I’ve started the letter several times, but I feel grief. They lost their baby and it could have been me.”
Imogen with her parents Jason and Hayley. Image via ITV News/screenshot.
Now, the donor's parents have come forward with their story. They want to remain anonymous, but they have revealed that their son, Theo, died when he was just 41 days old after suddenly falling ill.
"We search for our son’s presence everywhere and every day," they wrote in an open letter.