Becoming a new mother is a beautiful and challenging time in a woman’s life. When you have a disease that causes your motor nerve cells to degenerate the challenges seem insurmountable.
Amanda Bernier was tested for Motor Neuron Disease in March 2014. She found out she was pregnant two weeks before getting her test results confirming that she has the disease.
“I went from running races, working in a lab and firefighting to not being able to move anything but my head and on a ventilator in 5 months,” Bernier wrote on Facebook.
She was monitored closely during her pregnancy. At 24 weeks she was admitted to hospital and stayed in the ICU for four months until she gave birth. Her daughter, Peanut was born at 39 weeks. She was a breech baby and delivered via c-section.
The new mum was taken back to her room and Peanut was put on her chest. She breastfed her baby for the first time.
"I was blessed that she immediately knew what to do. The nurses that I had gotten to befriend over the past quarter of a year knew how important it was to me to breastfeed. They were determined to help me give that gift to her," she wrote.
This story has been shared with a photo of Amanda breastfeeding. The photo has now been shared over 30, 000 times.
Soon after the birth, Bernier was taken back to her MICU room. Babies aren't usually allowed, but the hospital made an exception and let mum and bub spend time together in there.
"Peanut's nurse was incredible. She came up with ways to position the baby to nurse while I laid in bed. The lactation nurse visited me daily. Both nurses told me how lucky I was for how well she latched on. Peanut has an old soul; she knew what she had to do to make things work," Bernier wrote.