Ellie Madigan is three-years-old. She has a bright smile and a bubbly personality. Ellie and her family live in a small town in Western Australia. She has two older brothers, so she’s never short of someone to play with.
But Ellie is little. Really little.
Ellie is out to prove that despite her size, she is a strong fighter. Image supplied.
She is in the third percentile for weight and measures below 0.3 percentile for height. When she was just four months old, Ellie weighed 300 grams less than her birth weight.
This growth deficiency is a side effect of Noonan syndrome, something you probably haven't ever heard of before.
Noonan syndrome is a genetic condition which includes heart abnormalities and characteristic facial features. About one third of affected children have a mild intellectual disability, however symptoms vary from relatively mild to severe.
There is an estimated one in 1,000 - 5,000 children who are diagnosed with Noonan syndrome, however sadly, there is currently no known cure.
It took a year and a half to diagnose Ellie.