BY LYN WONG
A mother never loses sight of her loving purpose: to walk beside her child through life’s difficult journey, every step of the way.
In 2003, my beautiful son Jayden was born and my whole life changed right before my eyes. Now as we near the end of 2014, my 11 year sacrifice has come to fruition. When you become a parent, you reorder your priorities and focus on what’s important – your child.
Jayden was diagnosed with the severe haemophilia A at two weeks of age. He suffered massive cerebral bleeding at birth and fought for his life in the Intensive Care Unit. It was a very stressful time in our lives, as we could not bring our baby home for three months.
The day of Jayden’s diagnosis, was the day my goals in life had changed. I gave up my career to be a full-time mum and care for him as best I could. When you have a child with medical needs, everything in life can wait, and that meant my career and social life was no longer more important than my son’s health & well-being. I made sure he would not have to go through life’s challenges alone.
What is haemophilia?
Haemophilia is a bleeding disorder where blood does not clot properly. It occurs when there is not enough clotting factor – a protein in the blood that controls bleeding. In Australia, there are approximately 5,800 people with haemophilia, von Willebrand disorder and other related bleeding disorders.
Bleeding usually occurs internal. often into the joints or muscles. These bleeding episodes, or “bleeds”, may occur spontaneously, or as a result of trauma or injury. Specialised treatment is needed to help blood clot normally and is often infused or can be injected into a vein. If internal bleeding is not quickly stopped with treatment, it will result in pain and swelling. Over a period of time bleeding into joints and muscles can cause permanent damage such as arthritis, chronic pain and joint damage, which may require surgery.