When Charlie Gard was born on August 4, 2016, his parents believed their baby was “perfectly healthy”.
When their little boy’s health began to decline eight weeks after his birth, Chris Gard and Connie Yates took him to hospital. Charlie hasn’t been home since.
Charlie was diagnosed with a rare genetic disorder called mitochondrial depletion syndrome, a condition that causes progressive muscle weakness and brain damage, and he was soon placed on a ventilator to help him breathe.
The family's only hope was to raise money to fly Charlie to America from the UK to try an experimental new medication that could give their son a chance at a "healthier, happier life".
"We strongly feel as his parents that Charlie should get a chance to try these medications. He literally has nothing to lose," mum Connie wrote on a GoFundMe page for Charlie.