We don’t think very much about the joy of having the sun kiss our skin. Of walking outside and feeling the breeze. Of slipping into a pool and floating in between the floor and the water’s surface, suspended right in the middle.
We don’t think about those things because for most of us – probably all of you reading this article right now – they are givens; the simple pleasures that are enjoyable whether you’re five or 105.
But for five-year-old Monroe Mills, it’s never been that easy.
“If we have to go outside, say on our way to the supermarket or an appointment, I’d only take her briefly, we wouldn’t go to the park,” Monroe’s mum Sarah Mills tells me on the phone from their New South Wales home.
“We don’t go out during the day, we can’t when the UV level is above about two.
“It’s so frustrating for her, sometimes if I haven’t locked the back windows of the car, I’ll catch her opening the windows and trying to stick her head out.”