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"I felt so guilty." Kylie's seven-year-old daughter's hearing problem went undetected for years.

 

Kylie and Dalio describe their seven-year-old daughter, Elyse as having a lovable, funny and cheeky persona that people warm to instantly. This bubbly nature and loud personality are qualities that they adore about their daughter. They were also the same qualities that meant Elyse’s hearing problems went undetected for years.

Although Kylie wasn’t 100 per cent sure, she had an inkling something wasn’t quite right with Elyse’s hearing; it was noticing that Elyse was mispronouncing words, especially those starting with an ‘h’ sound, (which is a low sound for the human ear to detect) that made her take notice. “She wasn’t developing as her older sibling, Abbey, had done previously,” Kylie told Mamamia. “I had a faint suspicion that perhaps Elyse had a hearing loss.”

“I remember speaking to Elyse and having to repeat everything three times,” she said.

“I would say, “Put your shoes on”, in a normal tone but with no response from Elyse I’d ask again louder. By the third time, I’d be raising me voice!”

But it wasn’t until they tried an App, Sound Scouts, specifically created to detect hearing problems in children that Kylie’s suspicions were confirmed.

Sound Scouts is a mobile game technology that tests children’s hearing but does it as part of a fun, interactive game that children enjoy, without kids even realising they are having their hearing tested.

Once Elyse has completed the test, she was shown to have hearing issues but despite Kylie’s inkling, this news still came as a shock. "I felt so guilty that I hadn't picked up on her having hearing issues sooner. We just thought she had a loud personality, we didn’t realise she couldn’t hear properly.”

Once a diagnosis was made, Elyse was then referred to Australian Hearing where audiologists performed further assessments and confirmed that Elyse had a mild conductive hearing loss, which is caused by a blockage or damage in the outer and/or middle ear. After a visit to an Ear Nose Throat specialist, Elyse was diagnosed with Glue Ear and a month following this diagnosis, her ears were fitted with grommets and her hearing improved. “Hearing is very important, so having my grommets meant the world to me,” Elyse said.

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Although Elyse has received a diagnosis and subsequent treatment to assist her hearing condition, there are many Australian children that are not so lucky. In fact, research has shown that one in five (18 per cent) parents have either never had their child’s hearing tested or are unsure if they have (Pure Profile. Survey of 1,000 Australian parents with children aged 4-14 years old. February 2019.)

According to Australian Hearing, hearing issues can develop at any age, so it’s important to be aware of the key signs displayed by a child if they have a hearing problem.

These include:

  • Losing focus in noisy places
  • Trouble pronouncing words
  • Speaking loudly
  • Learning difficulties at school

As a part of Hearing Awareness Week from March 3- 9, a new grant of $4 million through the Department of Health was announced, enabling Australian Hearing to deliver free online hearing tests through the Sound Scouts app. This is critical given many children’s hearing loss is not picked up until they are well into their schooling.

“I recommend all parents of children with pre-schoolers or K-3, to test their child's hearing with Sound Scouts, as it's so easy to use and administer and it could significantly help their child's development in the long run. Elyse still asks to play on it just for fun." Kylie said.

It was one simple test but for Elyse it has meant not falling behind at school or developmentally, allowing her to reach her full potential.

Sound Scouts is available now to download from the App Store and on Google Play. You can find out more information about Sound Scouts right here.

Shona Hendley is a freelance writer from Victoria. An ex secondary school teacher, Shona has a strong interest in education. She is an animal lover and advocate, with a morbid fascination for true crime and horror movies. Shona is usually busy writing and raising her children: two goats, two cats and two humans. You can follow her on Instagram.

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Top Comments

RenAgain 5 years ago

Oh I hear ya (pun intended). We knew my son had hearing issues in one ear since birth, when he failed his newborn hearing test. And we’ve been with Hearing Australia since he was around 6 months getting regular tests (they are honestly amazing! And I believe you can get free hearing tests with them?).

Each year the cold season does play havoc with my son’s hearing with all the snot. But last year, we had no idea how bad it had gotten. He was developing words/sentences so well - ahead of his peers (at the time he was only 3 yrs)! But a test revealed he had basically no hearing in his left (normal range is usually at conversational and above) while his perfectly good ear dropped to conversational. Basically his hearing had halved! And yet he was STILL developing language - albeit as a loud mouth!

So I get that guilty feeling. Poor little guy having to work SO hard to hear us properly. And was a trooper regardless. Grommets did fix the retained fluid issue, but his other hearing problems will always be there.

chrisandalex 5 years ago

My son was born with microtia of the right ear, the outer ear wasn’t properly formed. He was referred straight to ENT and audiology to monitor the hearing in his left ear when he a newborn. Multiple grommets have been inserted in his left ear over the years to keep that ear clear as he had a lot of fluid buildup. He was nearly 6 when he had an MRI for another issue, and the general paediatrician asked them to review his ears as well so we finally found out that his right inner ear is perfect, but the ear canal is tiny so not much sound, if any, gets through. A bone conduction hearing aid works well for him (when he wears it) and he is now waiting for a hearing implant at nearly 12. Because his left ear has generally remained clear with grommets, his speech and language development has been pretty good and the few issues he had early on were related to his feeding issues affecting his mouth formation rather than his hearing.

Lily 5 years ago

That was me .Apparently i was lip reading and my brain was filling in the other words so my worsening hearing wasnt picked up til i was about 5


Beebs 5 years ago

We had this with our youngest child. I knew his speech wasn't developing normally, but he had never had any symptoms of glue ear like frequent ear infections or pain etc. I started taking him to GPs around two years old, and they said because he was the youngest sibling, his brothers were speaking for him. None were concerned and said it was all fine. When it was finally picked up, at around 3, we were put on a waiting list to see an ENT and because we are regional and there aren't many specialists he was almost 4 by the time the gromments went in. He is now almost 8 and he still has to have weekly speech therapy and has quite a hard time with speech. It could have been so simple if it had been picked up earlier. The outcomes are far better with quick diagnosis.

chrisandalex 5 years ago

The waiting lists to see ENT specialists is huge here in Brisbane. I’ve been told by my son’s general paediatrician that if your child needs to be referred to ENT they will be seen quicker if the referral comes from another specialist, rather than your GP.

Beebs 5 years ago

We don't have any other children's specialists here anyway. We are regional NSW, so almost all our specialsts are down in Sydney, there is a new hospital with heaps of children's specialists 45 mins away, but we aren't "In area" so its a 7 hour round trip for us. Thanks though :)