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"I've never seen her so sad": AFLW star Moana Hope fights to save her sister's care program.

 

AFLW player Moana Hope knew her sister Lavinia would be devastated by the news that her school — “her favourite place in the world” — is being shut down.

Lavinia, 26, lives with Möbius syndrome, a rare neurological condition, and has attended the Melbourne City Mission’s Bridges Day Program for eight years.

The program, open since 1992, supports those with intellectual disabilities, and teaches basic life skills like cooking and how to call triple zero.

But as Moana explained on Instagram, this week she was informed the service was closing down because it was no longer financially viable under a new National Disability Insurance Scheme (NDIS) funding model.

The program, now set to shut in September, supports 90 students.

Moana, who is Lavinia’s primary carer, posted a heart-wrenching video of the moment she broke the news to her sister on Friday.

Talking to Mamamia, Moana said Lavinia “cried in bed all afternoon” over the news: “I’ve never seen her so sad before.”

The star forward explained that for Lavinia, and so many of her friends, going to school is “the thing that she loves doing the most”.

That’s why she is determined to fight the “heartless decision” and save the Bridges program.

“There’s no Plan B”.

For the families of the 90 students that attend the program, Moana explains they were advised to “apply for some one-on-one support with NDIS”.

“It’s like saying shut down all the schools in Victoria, all the other schools that kids attend every day, shut them down and just get the tutor. But the tutor might come once a week,” she said.

“If Lavinia doesn’t have school she can’t go get a job. These kids and adults can’t go out and get a job.”

Moana said she has been contacted by a number of the families of Lavinia’s friends who are just as angry as her. They have shared with Moana that if the program is shut down, they’ll have to quit their jobs to become full-time carers.

According to Moana, a number of other participants in the program don’t have families who can support them.

“There’s no Plan B for these kids and adults,” she said.

“You don’t take away basic human rights from people. And they’re doing that. And they’re getting away with it. I won’t let them.”

In a statement, Melbourne City Mission said the decision followed a two-year review.

“A range of factors have contributed to this decision, including concerns about the existing Pascoe Vale location, which we have outgrown and would require significant un-funded capital to address, and the group-based service model of Bridges, which we cannot appropriately remodel to operate effectively with individualised NDIS funding.

“MCM understands this is difficult news for participants, families, carers and staff who have been involved in the Bridges service for many years.

“Through a staged transition, we will continue to support our participants during term 3 and work alongside them and their families to explore new arrangements and service providers before the closure of the service on Friday 20 September. “

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Top Comments

LittleblAckdress 5 years ago

I hate that this world is all about profit and financial decisions. Sometimes it feels like there is no heart left in the world.

I feel for Viv and all her friends who have lost a huge part of their lives.


Flissyb 5 years ago

The NDIS was a fantastic idea. How it's been implemented isn't.