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Mairead 01 290x385 Stilnox killed my sister

Siobhan’s sister Mairead

by SIOBHAN COSTIGAN

On the evening of 13 September 2007, a gifted young Philosophy student who had just completed her PhD got up suddenly from the computer she was working on in the study of her parent’s home in the leafy Sydney suburb of Lavender Bay. Barefoot and wearing only her pyjamas (which she had changed into only minutes earlier in preparation for bed), she left the house and walked out into the cold, dark night. Ten minutes later, with a blank and vacant expression on her face, she climbed onto a ledge and plunged twenty metres to her death.

That girl was my youngest sister, Mairead, who died while in an apparent sleepwalking state, which investigating detectives attributed to her intake of the controversial sleep medications Stilnox (zolpidem) and Imovane (zopiclone). Mairead had no history of depression or mental illness, and no history of drug use or abuse.

She had been taking Stilnox and Imovane exactly as directed by her GP, though she had been prescribed the drugs over a longer period than is recommended. The postmortem toxicology report showed that she had taken only one tablet very shortly before her death, and there were no other drugs or alcohol found in her system.

This class of drugs (known as ‘z drugs’) have been the subject of intense media coverage in Australia in recent times, and both zolpidem and zopiclone have been associated with a range of neurological and psychiatric effects, including sleep walking, sleep driving, sleep cooking, sleep eating and sleep sex. Most recently, they’ve been back in the media after the Olympic swimming champion Grant Hackett revealed that he had developed a strong addiction to Stilnox, which he used regularly during his career, and which he now describes as “evil”.

Mamamia readers might recall the story of Sam Goddard – a young man who suffered an horrific brain injury during a soccer match, and who was given little chance of recovery. His devoted fiancée, Sally Nielsen, had discovered after much research that zolpidem had been used successfully in overseas trials to treat patients with severe brain injuries, and had even managed to successfully wake several patients from long-term comas.

While I was as heartened as every other reader to hear about Sally’s successful quest in ‘re-awakening’ Sam, the story set alarm bells ringing for me and no doubt for the thousands of other individuals and families who have been adversely affected by this class of drug, because it begged the very obvious question – what kind of sleeping tablet is capable of waking someone from a long-term coma?

The fact is that scientists themselves admit that they do not know exactly what it is that drugs like Stilnox do to the human brain. What we do know is that they cause a frightening array of bizarre adverse reactions in a significant number of people who take them, and at the moment, there is no way of knowing whether you will be one of those people who experiences no ill effects at all, or one of those who, like my 30 year old sister, pays the ultimate price.

In Friday’s Sydney Morning Herald, there was an article about a new review of Stilnox and similar drugs, which was conducted by sleep expert Professor Shane Darke, from the national drug and research centre at the University of NSW. The article says:

“Stilnox and similar drugs contributed to the deaths of more than a third of the people who were taking them when they died violently or unexpectedly in NSW between 2001 and 2010, according to drug experts who reviewed the deaths… His study identified 91 deaths in which drugs containing zolpidem were involved, including 31 poisonings and two falls from great heights involving abrupt or bizarre behaviour.”

I know, of course that insomnia itself can be crippling, and understand the desperation of people who would try anything to get a decent night’s sleep. But there are many alternatives out there – aside from the other sleep medications on the market that have been around longer and are better understood, such as benzodiazepines, as well as more natural alternatives like melatonin, there are many other treatment options available that do not involve drugs at all.

My family and I, along with the families of other victims, have been campaigning for the banning of this drug for use as a sleep medication for the past few years. We have had some success in getting a ‘black box’ warning added to the packet, but have yet to see it re-scheduled as a Schedule 8 medication (meaning that it would be much harder to obtain a prescription for) or banned outright as a sleep medication, which is our ultimate aim.

As such, we have set up a petition, calling for the Therapeutic Goods Administration (TGA), our national drug regulatory body, to ban z drugs, including Stilnox and Imovane, for the treatment of insomnia and other sleep- related disorders. We have over 4,000 signatures so far, but are aiming to reach 10,000 before we send it to Parliament and to the TGA.

You can also find our Facebook page here.

My sister Mairead was a beautiful, intelligent, vibrant and happy young woman who did not deserve to die in the prime of her life and in such a violent and tragic manner. My family and I will continue this fight in her name until z drugs are off the market for the treatment of sleep disorders, so that nobody else ever has to experience the devastation and heartache we’ve experienced over the past few years.

If you need immediate help, you can contact:

Lifeline – 13 11 14
Suicide Call Back Service – 1300 659 467
Kids Helpline – 1800 55 1800
MensLine Australia – 1300 78 99 78

SANE Australia has fact sheets on mental illness as well as advice on getting treatment. Visit www.sane.org or call 1800 18 SANE (7263).

You can also visit beyondblue: the national depression initiative (1300 22 4636) or the Black Dog Institute, or talk to your local GP or health professional.

Siobhán Costigan is a creative director, copywriter and aspiring documentary filmmaker. She lives in Sydney with her partner and their two beautiful boys.

Have you or your friends and family had experience with sleeping tablets? What has your experience been? Do you think drugs like Stilnoc and Imovane can do more harm than good?


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161 Comments so far

  1. Guest

    5 years ago I nearly died in a car accident resulting from a severe adverse reaction following Zolpidem consumption. Neither my GP, pharmacist nor the manufacturer gave me warnings about what constituted safe use of Zolpidem i.e. the now indicated dangers of “sleep-driving” and absolute contraindications with alcohol. Furthermore, I did not receive a consumer medicine information leaflet with my prescription so I had no opportunity to decide whether the benefits of its use outweighed the associated risks. The adverse side effects of consuming Zolpidem caused me to unknowingly drink excessive amounts of alcohol, consume all of my remaining Zolpidem tablets, behave strangely, make bizarre phone calls to friends, make a mess in my kitchen and worst of all drive my car a short way down my street and crash into a power poll, none of which I have any memory of. Medical experts have advised me it is likely I entered a sleep-walking state of consciousness known as amnesic automatism that is now recognised to be associated with Zolpidem. Resulting from my incident I successfully fought an expensive and lengthy court battle to defend criminal charges of driving under the influence and dangerous driving. Furthermore, I still to this day suffer mentally as a result of my accident as well as being nearly $40,000 in debt.

    Like many others, I reported my adverse reaction to ADRAC and the Adverse Medicines Events Line. I was shocked to learn that hundreds of similar incidents to mine had already been reported. It is my understanding that up to nine deaths are associated with Zolpidem use in Australia and that out of 51 reports of injury associated with Zolpidem use, 46 cases report the use of alcohol. I have closely monitored the actions of the TGA in relation to Zolpidem since my accident to date am disappointed with their lack of action.

    I am regularly saddened of reports of more Zolpidem related injuries and deaths. I am greatly concerned that others will continue to be injured or killed as a result of Zolpidem distribution with insufficient product warnings and misinformed medical professionals. The absolute most alarming issue I feel is that fact the medicine is sold with possible listed side effects of “sleep driving” or “causing self harm”. I am greatly concerned that a TGA approved drug is knowingly sold with warnings such as these.

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  2. Sarah

    I think the real problem is that people are misusing the drug. When my doctor first prescribed me stilnox over two years ago after benzo’s had stopped working for me, he stressed to me that this sleeping tablet was not to be used like my previous ones. You DO NOT take a stilnox then have a shower. You DO NOT take a stilnox then sit down to watch TV or read a book. You have a stilnox and go STRAIGHT TO BED! Used properly these tablets have been a godsend for me. I’m sure there are some doctors out there who are prescribing these without proper instruction and to people who probably should be given something milder but when you have been suffering insomnia for the best part of 20 years and all else fails (believe me there is nothing I haven’t tried) then maybe you might think differently. I’m sorry for your loss. It’s so sad that your sister wasn’t educated before taking this medication or perhaps this was too strong for her needs but in my two years of taking stilnox I have not had one problem with it.

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  3. Anon

    Tragically, it seems Stilnox may be a factor in a friend’s death in the past week. According to Police, he had stumbled into traffic straight outside his front door in the middle of the night for no apparent reason, and was struck and killed by a truck. His front door was wide open, and police found Stilnox on his bedroom’s side table. Autopsy results are pending and I don’t want to breach his family’s privacy, but the circumstances and behaviour are uncannily similar to the stories listed here.

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  4. michael

    There will always be some people who have an adverse reaction to a particular drug. Stilnox works for me and I have never experienced any side effects except for a little short term memory loss if I allow the drug to take effect while I am still up and about. For goodness sake do not take them with alcohol. If you are prone to sleep walking without stilnox then perhaps a benzo class sleeping drug maybe more appropriate for you. Melatonin is also available in Australia now on prescription.

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    • siobhanc

      Hi Michael,

      Not everyone who has experienced a strong adverse reaction to Stilnox has been consuming alcohol at the same time. My sister Mairead had no alcohol in her system at the time of her death. Additionally, there have been many reported cases of people only discovering that they’d had something to drink the morning after they’d taken a Stilnox and gone to bed – after waking to find the evidence, but with no recollection of having drunk anything.

      I sincerely hope that you don’t experience any of the more severe adverse reactions to Stilnox, and agree that melatonin appears to be a much safer alternative.

      Siobhán

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  5. Melissa

    I was prescribed Stilnox for long term insomnia a few years ago. I have taken it probably a dozen times since (I mean about a dozen tablets, not a dozen scripts). I’ve not found it as that much of a cure for my insomnia, to be honest.

    I’ve only had two adverse reactions – both hallucinations/sleep sex. I’ve still got several tablets left, but they’ve been sitting in my drawer probably long enough to be out of date.

    I’ve been keeping them, because my insomnia is truly terrible, crippling. They felt like a safety net (which is ironic considering they only worked on a few occasions).

    This article is a great reminder of why I should simply throw them away. I’m so sorry for your loss.

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  6. Whatahooha

    I wrote a story more than 10 years ago about a popular acne medication which can cause suicidal thoughts in people who have no history of depression. This drug is still on the market.
    Can you imagine if the drug you take ( say for a headache, or to unplug your sinuses) caused you to suddenly think of actually killing yourself? I find it unfathomable that drugs that have these mental-state- changing effects are sold

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  7. Another Victim

    I had a similar experience on Stilnox. It was prescribed to help me sleep, but instead sent me on psychotic and suicidal episodes very similar to your story and to the stories of other commenters. It might help one in ten people, but the dangers are too great: we need to ban it.

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  8. Carer

    I’m a carer for an Army veteran who is on the stilnox brand sleeping tablet. it has affected him to times when he has done some “sleep walking” activities such as driving a car or even riding a pushbike along the beach, he has also attempted suicide on previous occasions when the tablets are’nt working. As much as i do not like some of the side affects of these sleeping tablets, unfortunately they are necesary. they are the only tablets (after extensive trials with others) that place him into a dreamless sleep. this is very important as my charge suffers from PTSD (Post Traumatic Stress Disorder) which interferes with his sleep if he’s not taking them. for some reason as of late he has not been getting the required sleep the tablets are supposed to provide. he hasnt slept in several days. if anyone knows how to resolve this issue i woud be grateful of any information. As i iterated earlier no other sleeping tablets work and natural sleep falls short of the dreamless sleep that stilnox provides.

    For the people that have trouble with stilnox i have been dealing with my charge for 7 years now. i find the best thing to do is control the stilnox yourself. when the person who is taking the drug and under the influence of it they do not remember nor understand their actions its part of the drug that provides a dreamless sleep. when they have taken the drug make sure there is nothing that could wake them up as when they wake they find it difficult to get back to sleep so they take another tablet. when they dont get to sleep they take another tablet and the process that at the time seems logical to them repeats. if you control the stilnox you can avoid any occurance of this. if they have car keys and they wake up and ask for a second tablet be gentle with them they do not understand their actions. take them back to their room grab the keys and do what you can to distract them. if they cannot go back to sleep i recomend puting on the television for them or if they like to read get them a book. if you can distract them, they may not want to go for a walk or a drive making it easier to keep hem out of harms way until the effects wear off, which should take 6-8 hours after they first took it.

    In my opinion stilnox is only to be used when all other sleeping medications have failed. as it is with my charge. the side effects can include to put it simply; disorientation, loss of balance, unawareness of self harm, intention of self harm and sever damage to the liver and kidneys. there are many more but i find these side effects to be worst. particularly the last one. if you find you just need sleep and not dreamless sleep i recomend going to your GP and requesting a medication that is not so damaging to your body or mental wellbeing.

    PS: I am deeply sorry for your loss and hope that you and your family and friends made it through the hardship without any problems that may occur later. All the best and you make you take care of yourself just as much you care for everyone else.

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  9. Worried

    I feel for your loss its devastating i got goose bumps when i read your story. My partner who is 36 years old was given stillnox 2 days ago for his insomnia but he has been having severe behavioural problems. Last night he just randomly started crying and attempted to go for a drive. I took the car keys off him went into my room and locked the door. He slept in the spare room for the night. Then when i woke up this morning, I seen the packet of stillnox on the kitchen bench and there were 4 missing. I freaked. I asked him why? and he doesnt even remember. I went through his phone and he has written an eulogy last night which freaked me out even more he was thanking everyone for everything and written see you in the next life. So, as i was getting ready for work he grabbed the keys and said im going to drive you. I argued and said he’s not well, but he insisted he was fine and that he knows whats going on. so i thought maybe the drugs have now worn off. As he was driving me to the station we almost ended up smashing into a pole had i not screamed and seen it before hand. I am so scared and i have asked him to stop taking them and he’s saying that he likes the sleep he gets from the drugs. But also does not remember anything he did last night. I just spoke to him as i am at work and he’s still saying random things. I told him he is no longer to take the drugs and that we are going to flush them down the toilet when i get home. He argued that and said no i need them. These drugs really need to be banned and i am afraid for his life. What do i do? he has never drank alcohol or taken any illegal drugs. He is the most nicest and caring person and now turned into a stranger.

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    • Corey

      ‘Worried’, I’m worried about your partner too, I think you or someone else close to him needs to go to him, right now, and be with him until the drug effects wear off. If he is acting out of character he is obviously unwell and ideally should be reviewed ASAP in an emergency department. He should not be on his own.

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      • Worried

        I’ve just rang his sister and she is going over there to talk to him. We will take him to emergency if the drugs havent worn off.

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        • Corey

          I hope it all went well

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  10. Abby

    I do feel for you and your loss is terrible. Though any drug prescribed has risks from mild to server eg anti depressants cymbalta can ruin your liver and should not be taken with alcohol. Everyone is individual and will be affected in different ways. I have insomnia and anxiety. Stilnox has been amazing for me, I never touch a drink knowing I will be taking it and am well aware of the dangers, I also as
    directed go straight to bed after taking it. People who as misinformed and combo drugs are giving this a bad name. I lost my father to a drug but I’m not calling for it to be banned or restricted because the good it does out ways the bad. I believe in the greater good and understand that unfortunate things happen in life. Would there not be more risk to cigarettes and alcohol related deaths than stilnox?
    This is just my opinion, everyone is different. But it’s had the least side effects of anything of the sleep related nature I’ve taken.

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  11. Nicole Rigato

    I had a terrible experience many years ago with Stilnox. When I asked my Doctor for a short term ‘non-addictive’ sleeping tablet because I was suffering from insomnia whilst going through a divorce, I was prescribed Stilnox. I have never felt so out of my body during my waking hours. I was having periods where I would drive home from work and not remember ‘driving’ home! I would come to sitting in the garage in my car and not know how I got there. I was one of the lucky ones as it frightened me so much I stopped taking it immediately. When I shared my story with others in the hope to educate them, I came across so many similar stories . I totally agree, there are so many other alternatives out there and this drug is highly dangerous and needs to be banned.

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  12. wivi-marie czarnecki

    For me is stillnox the best medication it help me too see. And have a life.
    i have got blefarospasm and other dystonia. so i had pain and i could´t sleep so i find one old stillnoxti had at home. And i didn’t sleep but i could see and it relaxed my body.

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    • siobhanc

      Thanks for your comment, Wivi-Marie. I am genuinely happy that you have found Stilnox to be of benefit to you in treating your condition, but you mention that while Stilnox helped you to see and relaxed your body, it didn’t help you sleep, which is the purpose it’s marketed for. This is one thing that disturbs me greatly about zolpidem – it can do seemingly extraordinary things that seem strongly at odds with its use as a sleep medication – such as waking people from comas, for example. And this is why I strongly believe that more research needs to be done into what it is exactly that z drugs do to the human brain. Until this has been established, I don’t believe that drugs such as Stilnox and Imovane are safe to be sold for the treatment of insomnia.

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  13. Paul C

    I believe that Stilnox should be highly restricted, if not banned completely, based on my own experience with this drug, which occurred during and after a flight from Paris to Singapore a few years ago. I also know of cases of people walking off balconies, and of dying in other bizarre ways while on Stilnox.

    Prior to flying to Paris in September 2005, I visited my Doctor, and explained that while I had never taken any form of sleep medication (she had been my Doctor for over 10 years, so was aware of this), I needed something to get me through the 8 hour flight from Singapore to Paris and return. She prescribed Stilnox.

    Flying from Singapore to Paris, I took one Stilnox tablet. I slept for less than half the journey. On my return trip, as I boarded the plane, I again took a Stilnox tablet. The next thing I remember is standing in the middle of Singapore airport. I thought I felt fine, and sent a text to my partner, asking her to tape the Grand Final. The text was so garbled that my partner became alarmed and rang me, and also told me that I had sent several bizarre texts to her prior to this, including a couple where I appeared to be saying goodbye to her. She ascertained that I was sober, and I laughed about the effects of Stilnox. Later on, while waiting for my flight to Australia, I lost control of my bladder, and then I nearly missed the plane.

    Upon arriving home and unpacking, I discovered that the Stilnox packet had 5 tablets, not 2, missing from the packet. I could only conclude that I had taken 3 additional tablets while on the plane. I had absolutely no recollection of having done this. I might add that I have been taking tablets for many years for high blood-pressure, and am absolutely meticulous in handling them.

    This is my story, and I believe I am very lucky to be here to tell it. I believe that Stilnox should be banned, or at least strongly restricted.

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    • siobhanc

      Thank you for sharing your story, Paul. I have heard many similar stories of people taking one Stilnox or Imovane with the intention of going straight to sleep, only to discover on waking that several tablets were missing from the packet. I have also heard many stories of people calling or texting friends and sending suicidal messages, again waking after the fact with absolutely no recollection of what they’d done and no intention of harming themselves. These are truly frightening drugs.

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  14. Gayu Mudaliar

    Such a shame to see a beautiful promising life come to an end due to sheer ignorance and negligence… Please share if you care

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  15. Unnamed but not shamed

    When I read again of the terrible unnessary death of a wonderful person of lost opportunities – my predominant emotion is one of great sadness but there is a huge amount of anger and frustration because this should NOT have happened –

    This is my own story – I am sure that mine was a random outcome as any person’s experience with Stilnox and other drugs of this class – a fact that makes me even more angry and sad.

    My story no doubt reads as no more than the actions of a woman ‘scorned’. At the beginning of 2006 my long term partner and I split up -can’t deny it was painful. Although depressed I continued to meet all the day to day responsibilities of work, of bills,and I continued to pursue interests and maintain friendships -but I was not sleeping well .

    I was prescribed Stilnox firstly by a colleague who knew my circumstances and then by my GP. who likewise was in the picture. I took it probably ‘every other night’ for a few months and (a phrase that all Stilnox victims will understand) to my recollection did not have any adverse reaction – I lived alone at that point so have no corroboration – I even wonder to this day what else I may have done.

    As those who have experienced Stilnox will know – I fell asleep very quickly after taking one tablet with my dinner that night and yes, with one glass of wine – one- It was mysteriously like an anaesthetic. With anything I had experienced before I would expect to feel sleepy – but not to have lost all will to sleep.

    Let’s think about that -involuntarily ‘falling’ asleep -There is a case of a woman who took her medication, went to the bathroom to clean her teeth before bed and woke up in hospital having to have her leg amputated as she had collapsed on the bathroom floor,and lay in such a way as to cut off the circulation to her leg -Apart from pre-operative procedures, do you expect to lose all will to one pill in your own home?

    For me – I went out fast -I recall sitting up suddenly about half an hour after going to sleep – the fax machine was “talking” to me – it was my ex partner’s voice – I recall only small snapshots of what occured after that -I had written something I tried to fax back – I dressed in odd clothing and somehow got down to flag a cab on a busy street – I went to my ex partner’s home – I have a few dreamlike snapshots in my head but remember little -until the police station many hours later.

    Ihave long ago had to cast off the shame I felt – if people judge me and my story without all the facts and knowing who I am -I have to live with that now – back then there was no information out there – I fortunately had sufficient self -knowledge to understand something very wrong had happened and the only variable was the medication – and fortunately the people who loved me also knew me – knew that wasn’t me. And my GP? Well he does not prescribe it to any of his patients anymore – he knows me too – and read the literature I since found …it scares me that there are still medical practitioners who prescribe it and people who say they have not experienced any adverse reactions – please pay attention – I took it for a few months before ONE NIGHT changed me forever.

    I never met the lovely Mairead – I am sure I would have liked her very much – but I know what she experienced in a way others will never know – we are forever bonded in a way I wish was not the case-

    I don’t feel sorry for myself – but for anyone who has lost their loved ones to this most terrible drug -my heart is with you and yours -

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    • Lucinda

      I don’t mean to be cruel, by why on earth did you have even one drink with this drug???? The literature is very very clear that alcohol increases the chance of a reaction hugely. It makes me wonder if this has been the case with many people who have had a reaction, even if alcohol hasn’t shown up in their blood later. Don’t do it. Just, don’t do it.

      This story is prime example why Z drugs should be at least reclassified – many people just can’t use them responsibly.

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      • Unnamed but not shamed

        Hi Lucinda – I am not offended by your comment and it is a fair question for anyone just beginning to learn about Stilnox and the serious and sometimes lethal outcomes.

        Unfortunately the story of Stilnox has a history – and one that was not told to Australians for a long time – despite Ambien having been available in the US and having already racked up many horror stories. At the time I was prescribed it (2006) NO information was made available to patients prescribed it.

        I was prescribed Stilnox back in 2007 – at that time there were NO warnings given with Stilnox – by the prescribing doctors, who at that time considered Stilnox and all the Z class jobs to be more effective than the benzodiazepines and less addictive – Well both of these issues are now dispelled.

        When filling the script I was not given any information by the pharmacist – and there was no pamphlet supplied inside the box of 30 tablets. The box had a simple sticker on the box which said ‘medication may cause drowsiness. Avoid operating machinery’ –

        I had a glass of wine with my dinner as I had done several times before – one glass – and I would suggest it would be incredibly alarming if a drug prescribed so easily could interact with one small glass of wine to such an extreme extent. No medication should be made available if the interaction is so extreme – remember that the ‘adverse’ effects of this medication are totally unique – can you think of another prescription medication that will cause you to jump off a balcony, get behind the wheel of a car, drive a motorbike, get out of your hospital bed and attack staff, set fire to your kitchen while cooking – ALL IN YOUR SLEEP and with some people – take all of your tablets? For those who haven’t experienced it I am sure it sounds odd and hard to get your head around but for all of us who have been there – trust me when I say it is a lot harder to get your head around what you appear to have done when you just DON’T do those things. And that is if you are lucky enough not to have harmed yourself or others.

        The ‘reaction’ I had is very similar to many many others – in fact I am aware of many many cases of people who don’t even drink alcohol who have in their sleep/wake state have gone out, driven AND purchased and consumed large amounts of alcohol – some have then crashed their cars, been done for DUI – at a time when they were not tested for Stilnox ingestion along with alcohol and ‘recreational’ drugs.

        At the time of my experience – I did not know about the experiences of others – I was very fortunate to have known that what happened to me was the medication and started investigating what on earth had happened to me – I was so fortunate to have found someone who had been monitoring the ‘adverse’ reactions over the years it had been available in Australia-

        I want you to know that I did not use any information in the press to ‘excuse’ what happened to me – quite the opposite – I was scared, and ashamed and began to question myself.

        Ultimately I was given a gift – I was asked to share my story and spoke to several media outlets who ran my story – I did not want the attention – I had wanted to hide – but I decided I needed to get over myself when I was made aware that two people had died – The story ran on ACA was followed up a week later as they had some 500 calls in by people who had identified with the story and realised that they weren’t crazy at all and finally understood a bit more of what had happened to them –

        It would be easier for me just to pretend none of this happened – easier not to be judged – but I want to at least use my experience to get something positive out of it – and that would be a wider understanding and a total ban on this medication.

        For with or without a glass of wine – one night it could all go terribly wrong.

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        • Lucinda

          Thank you for taking the time to respond and educate me further. I do think this drug is horrendous and I’d like to see it banned or reclassified as much as you! :)

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      • HELEN CROSS

        LUCINDA – YOUR COMMENTS ARE IGNORANT. MOST PEOPLE WHO TOOK STILNOX WERE NOT TAKING ALCOHOL. THESE CASES HAVE BEEN RECORDED BY THE ADVERSE MEDICINE EVENTS LINE AND OTHER MEDICAL SOURCES. DO YOU WORK FOR SANOFI AVENTIS?? THE MAKER OF STILNOX! THE ALCOLHOL WARNING ON THE BOX WAS NOT PLACED THERE UNTIL LATE 2008 AND EVEN SO DOCTORS WERE NOT WARNING THEIR PATIENTS BEFORE OR AFTER THAT OF THE OTHER 10 AND MORE BIZARRE ADVERSE EFFECTS WHILE TAKING STILNOX. I DO NOT DRINK AND YET I SUFFERED TERRIBLY TAKING THIS DRUG AND WAS NEVER WARNED BY MY DOCTORS OF ANY SIDE EFFECT AND I DID ASK. I DO THAT WITH ALL MEDS.I WAS SLEEP WALKING, SLEEP COOKING, SENDING SMS MESSAGES IN MY SLEEP, ACCIDENTALLY OVERDOSED 3 TIMES IN MY SLEEP AND ALMOST DIED. FACT. THIS DRUG SHOULD EITHER BE AT MINIMUM RESCHEDULED TO A CLASS 8 DRUG OR BANNED. ALSO PEOPLE NEED TO QUESTION THE TGA WHY IT HAS BEEN SO PATHETIC IN ITS TIMING RE DOING VERY LITTLE TO GET THIS DONE. READ EVERYONE’S COMMENTS AND UNDERSTAND THEY ARE NOT MAKING THINGS UP. THERE HAVE BEEN THOUSANDS OF CASES OF PEOPLE WHO HAVE SUFFERED IN AUSTRALIA TAKING THIS DRUG. BEING PRESCRIBED THIS DRUG WITHOUT WARNING FROM THEIR DOCTORS. WE HAVE BEEN LET DOWN BY THE MEDICAL PROFESSION AND THE TGA. THEY HAVE THE POWER TO FIX THIS PROBLEM YET THEY DO BUGGER ALL. HELEN CROSS

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        • Lucinda

          Take your caps lock off. It is bloody rude and unneccessary. And then I might read what you have to say. There was nothing ignorant about my question, it was exactly that. A question.

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    • siobhanc

      Thank you very much for sharing your story. x

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  16. Anon for this

    Thanks for sharing Siobhan, it is important to spread the word on the dangers of this drug. During a period of immense grief, I saw a Dr who I had never had an appointment with before as my usual Dr was unavailable. He looked at my recent history marriage breakdown, insomnia, stress at work and prescribed me stilnox. I had never heard of it, had never taken any depression medication and had never had insomnia drugs before. I have a tendency to be affected by all drugs very easily. I was so lucky that when the pharmacist handed me the stilnox she asked me if someone could be there to watch me take the stilnox as they had a history of side affects. When I told here I lived alone she suggested that I didnt take them as side effects included sleepwalking and driving whilst sleepwalking. I never took that tablet and the next time I went back to the clinic i told my usual Dr his colleauge should never have prescribed it to me. I can’t help but think I could so easily have been injured or worse.

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    • siobhanc

      Thank you so much for sharing your story. I’m very glad you were warned against the dangers of Stilnox by your pharmacist, and hope your regular doctor alerted his colleague to the risks as well. Unfortunately, there are still so many doctors out there who seem unaware of the volume of reports of serious adverse reactions, and continue to prescribe these drugs without question.

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  17. Stephanie

    Given the evidence available, it is completely negligent of TGA and the pharmaceutical companies responsible for producing and marketing Z drugs as a therapy for sleep disorders. GP’s arguably share responsibility too. Does anyone know the name of the company/ies producing these drugs?

    I applaud Siobhan and her family for taking a stand and fighting to make a difference for any other potential future victims.

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  18. Margaret

    Drugs that are mind altering, even for a minority, should have severely restricted access. No one should die as beautiful Mairead did. Siobhan, your courage is an inspiration and I support your petition wholeheartedly .

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    • siobhanc

      Thank you so much for your lovely words and your support, Margaret. x

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  19. Lucinda

    I have heard a few bad stories about stilnox including one friend whose husband had to lock the drugs away after she took one because she’d go looking for them in her zombie state and take more. She eventually stopped taking them because even locking them away didn’t stop her from unlocking them!

    After reading all these stories, this drug truly frightens me. It may only be anecdotal evidence, but the alarm bells are going off in my head and I can only hope that more research is done and eventually this drug can be banned or re-classed.

    My heart goes out to Siobhan and everyone else who has lost a loved one to this dangerous drug. And thank you Siobhan for raising awareness.

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    • siobhanc

      Thanks so much for your comment, Lucinda. I have heard of several cases like that of your friend’s husband, where someone has gone to bed and taken one Stilnox tablet, but awoken to find several tablets missing from the packet. It’s truly terrifying to think that you could accidentally overdose while in a sleep-like state.

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  20. Keira

    My psychiatrist has said he would only give me Stilnox if everything else failed and I was in hospital. I have a great deal of respect for him and his professional opinion. So, for him to be weary of the drug makes me weary also.

    I know that Valium has certain restrictions due to its addictive properties (I use this as an ‘as needed’/PRN medication during times of intense stress). And, I support something similar with Stilnox.

    Just like with depression, I believe insomnia should be treated with behavioural/psychological treatments with medication (if medication is needed).

    My insomnia is being treated with a small dose of anti-psychotic medication and a lot of “good sleep” routines. I find I sleep better with as little medication as possible. The “quality” of my sleep is better with small dose meds plus the behavioural things I do. I never feel quite as refreshed from a ‘chemical’ sleep and it just perpetuates the insomnia and sleep-dep fatigue.

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    • Gee Gee

      My local GP would only prescribe Stilnox because he thought other sleeping tablets (eg benzos) had too much of a negative effect on memory loss. Needless to say I went to another GP and got a prescription for temazepam.

      In addition, I spent a lot of money attending various sleep clinics where they teach behavioural techniques which unfotunately I have found to be of no use at all.

      Through my years of having insomnia on and off it is clear that there is no one solution but, furthermore, local GPs have no clue about how best to treat it. For me it seems I just have to struggle on taking sleeping tablets only when the going gets very rough and put up with severe sleep deprivation the rest of the time. Not an ideal way to live but I just am looking forward to the day when this particular bought of insomnia will pass.

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      • siobhanc

        Hi Gee Gee,

        Thanks for sharing your story. I’m sorry to hear you’ve had such a difficult battle with insomnia. I know a lot of people who swear by melatonin, but I expect that if you’ve been dealing with insomnia for years, you’ve probably tried just about everything by now.

        Hoping you find a solution soon, and wishing you all the best.

        Siobhán x

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    • siobhanc

      Hi Keira,

      Thanks for your thoughtful and insightful comment. I couldn’t agree more with you that insomnia should be treated first and foremost with the teaching of good sleep hygiene habits and behavioural therapy, if needed. A chemical sleep, besides being a second-rate sleep, is not a long-term solution to the problem of chronic insomnia, and should never be treated as such.

      I’m glad to hear you have a responsible doctor who you feel you can trust.

      Thanks again for your comment. x

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  21. LJ

    I have read alot about the dangers of Stilnox. I believe it should not be handed out to just anybody.
    I did take it for a short time a few years back. I asked my partner is he ever noticed any strange behaviour when I took it. He is a night owl. He said no. I am very thankful for this. My heart goes out to her family.

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    • siobhanc

      Thanks so much for your comment and your condolences, LJ. I am very glad to hear that your partner did not suffer any known adverse reactions to Stilnox when he took it, and hope he will steer clear of it in the future. Thanks again. x

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  22. Edgedweller

    There has been a fair bit of discussion in online illicit drug user forums about this drug. The general view articulated in these forums is that Ambien (stilnox) is a drug to steer clear of. This view is from long term illicit substance users who are usually never shy of promoting the mood enhancing attributes of all drugs.

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    • siobhanc

      Thanks for your comment, Edgeweller. Yes, I think the use of Stilnox as a ‘party drug’ is often underestimated. I haven’t checked for a while, but a couple of years ago there were hundreds of clips on youtube of (mostly) young people filming themselves doing all manner of crazy things while on Stilnox (or Ambien, as it’s marketed as in the US). I have also heard illicit drug users compare its effects to heroin.

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  23. Justine

    When my lovely cousin mairead died 5 years ago most of my friends and colleagues had never heard of stilnox. Now, thanks to the awareness raised by siobhan and others the name stilnox automatically raises a question mark. If this means more patients ask questions of their GPs, thoroughly investigate the potential side affects and do their own research about this drug before considering taking it then siobhans advocacy has been well worth it.

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    • siobhanc

      Thanks so much Justine. We are so appreciative of all the support that’s been given to us by you and all our other wonderful family and friends. xx

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  24. DavidR

    Siobhan, really sorry for the loss of your sister, Mairead in such tragic circumstances.
    I hope your campaign to have this drug banned will succeed. Certainly, the evidence to prohibit its use is mounting.

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    • siobhanc

      Absolutely David – the evidence is definitely mounting. Thank you so much for your condolences and your support for our campaign. x

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  25. JulieS

    I have taken Stilnox in varying doses for over five tests as i suffer from severe insomnia from other life saving drugs. My dose has remained low and I have no side affect as others have had do for me at least for now it’s a lifesaver

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    • siobhanc

      Hi Julie, Thanks for your comment. I’m glad to hear that you have not experienced any adverse reactions to Stilnox as yet, but I hope you are able to find a safer and more permanent treatment for your insomnia down the track. Wishing you all the best. x

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  26. siobhanc

    Thank you so much for all of the comments so far. I have tried to respond to as many as possible this evening, but as it’s getting late, I will come back tomorrow and respond to some more. I have posted two or three responses that haven’t shown up on the site yet, and I will definitely come back and answer further questions then as well. x

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  27. Amyintheworld

    My fiancé used to take sleeping tablets for a period of time in his life where getting to sleep and then staying asleep was difficult.
    I just asked him now I he’d taken Stilnox and he told me he had once been prescribed it by a doctor and had refused to fill the script,bad at the time he had depression. He told the doctor this and was told ‘those issues are only when it’s taken with alcohol’. My fiancé was in his early 20s at the time, very depressed and self medicating without alcohol, which he told the doctor – who still tried to give him Stilnox. After reading this article, I’m so grateful that he didn’t take it.

    Drugs can certainly have different side affects – my finance an I have both taken Cipromil for depression and it worked wonders for me, while it turned him intona zombie. He didn’t feel depressed, but he didn’t feel anything! However, his negative experience with it didn’t endanger his life – that’s seems to be more that can be said for Stilnox.

    Siobhan, I’m so sorry for your loss, and while nothing can bring your sister back, I do hope that this drug gets banned and you and your family have some kind of closure at least, knowing you might have helped save another family from the same grief you’ve had to endure.

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    • siobhanc

      Thank you so much for your comment and your condolences, Amy.

      It always scares me when I hear stories of people with existing symptoms of depression and anxiety who have been prescribed z drugs, as they are known to worsen these symptoms, and should never be given to such patients (although the patient information also warns against giving these drugs to patients with ‘latent depression’ which seems like a get-out-of-jail-free card for the drug company – after all, if your depression is ‘latent’, then you wouldn’t be aware that you had depression!). It is also scary that some doctors seem to be of the view that these reactions only occur when drugs such as Stilnox are taken with alcohol, which is not the case at all – there have been hundreds of reports in Australia of adverse reactions to these drugs where alcohol wasn’t involved, and many more where people have only ingested alcohol AFTER taking Stinox or Imovane – in other words, they did so unconsciously.

      Thanks for sharing your story. x

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  28. Spartzi

    This piece is an important reminder not only of the dangers of a drug like Stilnox but also how careful people should be when they are prescribed any drug. Thanks Siobhan for keeping up the awareness.

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  29. Steve Grant

    This is quite sad Siobhan. Just wanted to check, was Mairead taking Imovane and Stilnox at the same time? Surely a pharmacist, or doctor, or nurse would have picked up such a potentially dangerous – not to mention peculiar and unusual – combination!

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    • Amandarose

      iAmandaroseI wondered that myself. why was it continually prescribed? And why both types?

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    • siobhanc

      Steve and Amandarose – Mairead was being prescribed Stilnox on and off over a few months, as she was having trouble sleeping while she was trying to complete her PhD. Her Medicare records showed that she obtained all her prescriptions from the one bulk-billing medical centre in the city – the kind of medical centre where you take a number, and see the first available doctor (but obviously, they all had access to the same medical records). It appears that the effects of Stilnox began to wear off after a period (which is consistent with the warnings on the patient information about the fact that it can cause ‘rebound insomnia’ if taken for longer than the recommended period), and the last doctor she saw at this medical centre switched her to Imovane the week before she died. So she wasn’t taking them concurrently, though both drugs have a very similar profile, and very similar side effects, and this is why we are campaigning to have all drugs in this class banned for the treatment of insomnia.

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  30. Pharmacist S

    Thank you for your article.

    I support your idea to have Stilnox reclassed as Schedule 8.

    While I’m at it, I also support Mersyndol and Nurofen Plus becoming prescription only.

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    • Anonymous

      Yes! Mersyndol and mersyndol forte must the the most abused drugs amongst all of my acquaintances. I cannot believe the number of people who take them daily and recommend them for a variety of supposed ‘ails’.

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    • Alexa

      Maybe, but when you have a migraine and have to leave work and want to get some relief, Mersyndol is a life saver.

      3 asprin in warmish water also help.

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      • mscate

        as a migraine sufferer, mersyndol (I don’t take it every day) has enabled me to get back on track in half a day/night rather than a four day migraine.

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    • anon also

      why?

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    • siobhanc

      Thanks very much for your comment. We greatly appreciate the support we’ve been receiving from members of the health profession.

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  31. anna84

    When I was 17 and doing my final High School exams I was having some troubles sleeping. I could fall asleep okay but then i would wake up in the middle of the night and be unable to get back to sleep for 2 hours. It wasn’t serious insomnia like some people experience and it was just due to the stress of exams but it was frustrating nonetheless. I went to the doctor for an unrelated matter and happened to mention that I was waking up in the middle of the night. He prescribed Stilnox without hesitation. I took it and it worked like a charm! No waking up in the middle of the night, slept like a baby and no drowsiness.
    After this, I started using Stilnox regularly. Can’t get to sleep right away? Take a Stilnox. Wake up in the middle of the night? Take a Stilnox. It got to the stage where I was taking some every night and couldn’t get to sleep without it. I would feel anxious if I went away for a few nights and forgot to bring my packet, worrying that I wouldn’t be able to sleep. I wasn’t anxious or depressed at all, in fact, I was quite happy, but my body had become so dependent on using this drug that I was relying quite heavily on it. My doctor was quite happy to keep on giving me repeat prescriptions to the drug.
    Reading the story above and the comments has shaken me up a bit. I was VERY lucky to have never suffered any side effects from this drug besides a very minor addiction. There was no sleep-walking or anything like that. In the end I realised that needing a sleeping pill to get to sleep every night was probably not healthy and I managed to ween myself off it. Although at first I couldn’t sleep, it didn’t take very long for me to be able to sleep without it and I never got another prescription again.
    Siobhan, I am so sorry about what happened to your sister. Best wishes to you and your family x

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  32. Dara

    Like Siobhán’s dear sister Mairead, I too lost my dear wife Lindy in late 2007 as a direct result of an adverse reaction to Stilnox (Zolpidem).

    A day before her death, Lindy had been prescribed Stilnox by our GP in Perth. She had had a couple of days without sleep because of a relatively innocuous gastric proble, and needed to catch up on some sleep.

    Earlier in the year, while studying for some “high end” diving instructor courses, Lindy had also been given Stilnox. On two separate occasions while Lindy had taken this drug, circa 3am or 4am, she turned up in the bedroom with a fully cooked breakfeast for me !! She was in a very much zombie state, and having presented me with the cooked breakfast, jumped back into bed to resume her pseudo-comatose state.

    Ironically, we joked a little about this at the time, and I made the observation that this was almost the behaviour of the “perfect wife”, but just needed some “fine tuning”, to ensure the food arrived somewhat later than 3am or 4am !!

    We did remark at the time, that this behaviour was somewhat dangerous, particularly cooking food while in a “sleep state” with the risk of burning herself to setting fire to the house (like Jackie-O, as I now understand it ….)

    BUT, little did we know that 4 months later, the same drug would cause Lindy to undertake a fatal episode of “Sleep Driving”.

    I kissed her goodbye in bed at 6am, and left for work in the Perth CBD. At 9:30am, I took a call from Fremantle hospital to ask when I would be coming to the hospital to see her dead body ! It took a month or so, before I had pieced together what had happened, and the most likely root cause (later to be confirmed by toxicology).

    At about 7am, Lindy had jumped into her beloved red Jeep. About 700 metres from home, she had a low speed bingle and drove into a car stopped at traffic lights. Tragically, while people had observed Lindy to be “groggy” and incoherent, nobody stopped her from getting back into her Jeep. About 15km down the road towards Fremantle, on a perfect summer morning, her Jeep veered off the road into a tree in the median strip, having rolled 2 or 3 times. Lindy was an extremely safety conscious scuba diver and driver, and “inexplicably” she was not wearing a seatbelt which would have saved her life. Having been extricated from the wreckage of her Jeep, she died en route to hospital 45 minutes after her fatal bout of “sleep driving”.

    I absolutely concur with Siobhán, that this drug is beyond the pale with respect to what would reasonably be expected as “side effects” for a “sleeping pill”. The recent evidence that a “sleeping pill” awakens people like Sam, to me is a “no-brainer” (no pun intended) in terms of highlighting that this particular drug, and similar drugs in its class should only be prescribed under the most stringent medical supervision and for very specific reasons. It is hard to see any justification as to why it is still available for general prescription.

    Finally, it is interesting to note, that when I went back to our GP in Perth (Lindy and I had the seme GP back then), he told me unecovically that he would not ever ever be prescribing Stilnox to another patient, ever gain …. That’s saying something, in my book.

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    • Kylie

      What a terribly tragic story, I’m so very sorry for your loss xxx

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    • ameliastclair

      So sorry to hear about your wife, such a horrible story. Your bravery is inspiring xx

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    • siobhanc

      Thanks so much for sharing your story, Dara. xx

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  33. Anonymous

    I had taken Stilnox from time to time for years without any adverse effects then one night my husband woke to the sound of me knocking on the front door. When he opened it I was naked and on the front steps. I have no recollection of this to this day nor any idea of what I had been doing. I can’t explain how disturbing that is. So even if you think you have had no adverse effects can you be sure? And no I hadn’t been drinking alcohol.

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    • siobhanc

      Thanks very much for sharing your story. You make a good point about people often not having any idea whether or not they’ve experienced an adverse reaction to these drugs, as they cause amnesia after the event, and unless there is a witness or some evidence as to what you’ve been doing in your sleep, how would you ever know what had occurred?

      Have you ever reported your experience to the Adverse Medicines Events line or to the TGA? I know of many stories like yours where the person who’s experienced a distressing reaction has felt too embarrassed to report their story, but rest assured, your story is not an uncommon one.

      Thanks again for your comment.

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  34. Amandarose

    I think we need to be careful judging drugs on what people tell us as opposed to the professionals who deal with these drugs and judge these drugs as part of their career.
    All sleeping pills are addictive and dangerous but they do have a place. People need to know the risks but also the ability to decide based on this information if it is appropriate.

    As for alternatives- even the over the counter ones have risks and addictive properties. – Best to use the drugs for very short periods of time to avoid long term problems.

    I feel abit uncomfortable with this article as I don’t think it is balanced and the quotes from the review are taken out of context.

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    • siobhanc

      Thanks for your comment, Amandarose. While ‘anecdotal evidence’ is often dismissed by scientists and those in the medical profession, it is still evidence, and sometimes it is all we have until the science catches up. Thankfully, the science is starting to catch up, as can be evidenced by the review of zolpidem and other z class drugs published in the Journal of Forensic Sciences.

      This review is the first that I am aware of that has looked specifically at the deaths associated with these drugs, and is therefore a pretty significant review.

      Despite their continued refusal to ban Stilnox and other drugs in its class, the TGA did in fact issue a new warning to doctors about its dangers only a month ago. And today, an article was published on the Pharmacy News website urging pharmacists to “rigorously explain the risks of Stilnox” to their patients in light of the TGA’s decision and the findings of this new study.

      http://www.pharmacynews.com.au/news/latest-news/crucial-role-for-pharmacists-in-stilnox-saga

      We have had several doctors, nurses, pharmacists and other health professionals sign our petition, and know many more who have also told us that they no longer prescribe these drugs to their patients, after seeing too many patients experience serious adverse reactions. We also know several pharmacists who now refuse to dispense the drug.

      I also noticed that after the results of this review were published last week, some well-known doctors including Dr Kerryn Phelps (former head of the AMA) and Dr Ginni Mansberg posted comments on Twitter calling for a ban, so there is definitely growing awareness and support from the medical profession about the dangers of these drugs.

      I do agree wholeheartedly with your comment about drugs being used for as short a period as possible. Aside from the other drugs on the market, such as benzodiazepenes (which, admittedly, can have their own problems, including being quite addictive), there are more natural alternatives available (such as melatonin and valerian), as well as other treatments that involve behavioural therapy, learning relaxation techniques etc. Of course, it’s important that any underlying issues that could be contributing to the insomnia are treated appropriately too.

      But also on the point of how long sleep medication should be taken, there are many, many cases where people have had a serious adverse reaction after taking Stilnox for a brief period (and many who’ve experienced a reaction the first time they’ve taken it). This is why we don’t believe it’s safe even for short-term use (and in fact, it’s only recommended for short-term use, despite the number of patients who seem able to get prescription after prescription from their doctors…).

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      • Amandarose

        it is also worth noting people need to report these post trial side effects as the information helps get a better picture of what is happening.- Iook at all the stories on here- I wonder how many are reported to The adverse drug events line? I bet only a fraction of the events

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        • siobhanc

          Absolutely Amandarose – I think the reporting of adverse reactions to Stilnox and Imovane, or any drug, for that matter, is absolutely critical.

          I am aware of one or two of the other stories that have been posted here so far, and believe they have been reported, but there are many other accounts that I have not heard before, so wonder if they have been ever been reported.

          From numerous people I’ve spoken to, I think there are a lot of people in the community who’ve done things that are completely out of character while on Stilnox or other z drugs, and they are often too embarrassed or ashamed to report their experiences. I know of a woman, for example, who was discovered completely naked in the underground carpark of her high-rise apartment building attempting to get into her car. Some of her neighbours discovered her, but she was so mortified that her neighbours had seen her in that state that she could barely bring herself to share the story with her closest friends, let alone report her experience to the Adverse Medicine Events Line.

          I strongly believe that the cases that have been reported to date, while very significant in number, still only represent a small minority of actual cases.

          For anyone reading this, the AME line number is 1300 134 237. And this is some further information on how to report an adverse reaction: http://www.tga.gov.au/safety/problem-medicine-report-adr.htm

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          • Amandarose

            I take it back- your obviously well read on this issue. And even if it is not banned you can rest assured the public hear your message- It is not a very well thought of drug in Australia and is rarely used due to public distrust.

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            • siobhanc

              Thanks so much, Amandarose – I really appreciate your comment, especially as a pharmacist who obviously has first-hand dealings with these drugs. I am very pleased to hear that public awareness about the dangers of z drugs is growing, and hope we can continue to spread the message further. Thanks again for your comments.

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  35. Nicole

    I have had a completely scary experience while taking Stilnox. I took one tablet and went straight to bed. I had no alcohol in days. About an hour later I came gliding out of my bedroom on my pj bottoms like I was an ice skater. My husband thought I was doing it for a laugh until he saw my eyes. He said my pupils were huge. He asked if I had taken Stilnox and I told him I had. I then started crying and told him there were people in our bedroom. As he was leading me back to bed I vommited in the kitchen sink and then immediately cleaned it up. I then walked into the bedroom and vommited again. I had put wrestling on the television and told my husband I wanted something nice to watch. When I woke up the next morning I had a vague recollection of being sick and was completely shocked to hear what had gone on. Needless to say I haven’t taken them since. I had maybe taken 10 tablets sporadically prior to that night and I suspect once I got up in the night and took another.
    What a tragedy to for Siobhan and her family. Thank you for sharing your story.

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  36. Paul

    I’ve been following your families campaign for many years now as I know your sister Sasha and have had my own horrible experiences with stilnox. In a nutshell I was prescribed it for 8 years and obviously became dependent. Throughout this time I have woken up on buses, at taxi ranks, walking Oxford street at night with nobody about. I am very lucky that i had no serious incident while under this drug. My brother is an avid recreational drug user of all sorts and would often steal my stilnox as he and his friends enjoyed the ‘outer body experience’. I hope you get some success in your cause someday. I hope it doesn’t take too many lives before a change is made.

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    • siobhanc

      Thanks so much for sharing your story, Paul, and for your ongoing support – we greatly appreciate it. x

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  37. chellebelle

    Wow, that’s so scary. Many many years ago I had a chemical depression (caused by alarmingly low iron levels). I was on anti-depressants for 6 months or so to get me back on track. They caused insomnia so I also took Stilnox. It was kind of scary how effective it was. 20 minutes after taking it I basically blacked out. I slept like the dead, which actually could have been dangerous (slept through fire alarm low battery beeps, people banging on the door, noisy parties next door etc etc). I was very happy to get my iron stores finally back up, to work through my depression and to get off the drugs. It was awful.

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    • siobhanc

      Thanks so much for sharing your story, chellebelle. Stilnox is known to cause worsening of depression in patients with existing symptoms of depression, so it is a worry that you were ever prescribed Stilnox in the first place.

      I’m very glad to hear that you were able to get your iron levels back up, treat your depression and stop taking Stilnox.

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  38. Jenny Dickson

    My son, Peter, also died as a direct result of the side effects from Stilnox.
    He was prescribed it on the Monday and killed himself in front of a train on the Saturday night. After his death we found out that he had been sleep- walking during the week to his friend’s house in the middle of the night, but not ‘engaging’ when he got there.
    He had been out with friends on the Friday and Saturday nights and they had made future plans for celebrating birthdays. When he left his friends on the Saturday night he stated ‘I am tired… I’m going home to sleep’.
    We heard some noise in his room that evening and discovered that his landline phone and mobile phone were smashed and there was a hole in the wall. And Peter was missing. He had never been violent and this was unusual and out of character.Peter’s disposition during the weekdays had been happy and uneventful.
    Zolpidem (Stilnox) was in his toxicology. The Doctor who prescribed it had asked him on the Monday if he felt suicidal, to which he answered ‘no’.
    His death is one of several which the T.G.A. have said was most likely due to the side effects of Stilnox.
    He was 24 at the time. He worked as a Genetic Scientist and was about to embark on further studies.
    The evidence is there that this drug kills innocent people who have merely sought medical assistance for relief from insomnia.
    It is unbelievably dangerous and should not be available to be prescribed.

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    • chellebelle

      I’m so sorry for the loss of your son
      x

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    • siobhanc

      Thanks so much for sharing Peter’s story, Jenny. xx

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  39. Elise

    Talk about Stillnox being banned for Olympic squad now on The 7.30 Report on ABC due to its hallucinogenic and dependency effects.

    I admire your tenacity and commitment Siobhan. And so sad for your loss. X

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    • siobhanc

      Thanks so much for alerting me to the 7.30 Report story – I will watch it on iview. The 7.30 Report also did a story on Mairead’s death a couple of years ago, so I have been wondering whether they were going to follow this latest news, which is quite groundbreaking, as it’s the first report to look specifically at the deaths associated with Stilnox.

      Thank you too for your kind words and support, Elise – it really means so much to me and my family. x

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  40. Brittney

    I’m glad that the very scary effects of Stilnox are being discussed more widely thanks to the bravery of families like the Costigans. This is a dangerous class of drug, and far too easily obtained. Many people just don’t realise the very real dangers that popping a little sleeping pill like Stilnox (also known as Ambien) can pose. More education on the dangers is needed for GPs as well as the public and yes, the TGA should ban Stinox as a sleeping drug

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    • siobhanc

      Thank you so much for your comment and your support, Brittney – it’s greatly appreciated. x

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  41. Michelle McGrath

    I took Stilnox for 4 weeks only…when going through a terrible time with insomnia. Taking it made me feel even WORSE….

    I was handed over a prescription for it in 5 minutes by a GP I’d never seen before…
    I would fall into a deep sleep to wake up suddenly about 2am and then be wide awake….. I was like a zombie, could hardly function and my memory was terrible. I would get up in the morning, have something to eat and the rest of the day passed by in a haze…. I felt really spaced out and went from a size 12 to size 8 in that time as I would just forget to eat…. I felt like I was losing my mind…..

    When the prescription had run out, I didn’t bother to replenish it as I had felt so bad. I felt better immediately NOT taking it…..I can’t say that I got any benefit out of it whatsoever…

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  42. Ex-Addict

    I have been in hospital for a Stilnox addiction.

    Trust me – a Stilnox addiction is not a bit of insomnia and a strong desire to knock yourself out, although that’s the reason why I started using the drug in the first place. If you’re wondering how the addiction started, I took it every night for years. It gets you off to sleep immediately and you feel well-rested the next day. Who doesn’t love that! I thought I could stop at any time.

    Then, I started taking more and more of it, because a quarter/half/one tablet wasn’t having the same affect anymore. When I was taking two tablets a night, that’s when things got messy. Very messy. My brain completely went to mush. I was practically a vegetable and didn’t think I was ever going to recover. It was truly frightening and I wouldn’t wish it on my worst enemy.

    When I went cold turkey and stopped taking it, I was up for three days straight and had a withdrawal seizure (which is something heroin addicts have). Luckily, I was sitting in a chair at the time (I could have been in the shower, and in the house alone, and fallen through the glass shower screen). It wasn’t scary for me – I don’t remember it. But it was extremely scary for the other people in the house! They had to call an ambulance.

    I know a lot of people who, if they’re honest with themselves, can’t sleep without Stilnox – even if it’s just half a tablet each night. In that case, you probably won’t be able to get off it yourself. I’d suggest you check yourself into hospital. They’ll wack you on a LOT of Valium. Then they’ll wean you off that, too. At least you’ll be relaxed!

    It’s been a couple of years now and I haven’t even SEEN a Stilnox tablet since I came out of hospital – and I plan to keep it that way. Having said that, I’m not sure how I feel about banning the drug. It can be extremely effective when used as directed.

    If you’re having trouble sleeping because you’re depressed/anxious, don’t take Stilnox. Get onto a good anti-depressant, like Avanza. That’s what’s turned my life around.

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    • siobhanc

      Thanks very much for sharing your story.

      Your experience sounds truly frightening, and I know from many comments we’ve received on our petition, and from other correspondence I’ve received, that you are not alone in experiencing addiction and serious withdrawal effects at the hands of Stilnox.

      Over the time we’ve been campaigning to have these drugs banned for the treatment of insomnia, my family and I have recieved some nasty, vitriolic and hurtful comments from some members of the public, who seem incredibly angry about our desire to see these drugs taken off the market, and in many cases, it is not hard to see that it is somebody’s strong addiction talking.

      I’m very glad that you were able to get help for your addiction, and appreciate you sharing your story.

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  43. Rachel

    My husband has taken stilnox off and on for a few years now after suffering from insomnia since his early teens. He’s tried everything else under the sun, and stilnox has helped where nothing else has.
    Given the potential for harm caused by the side effects I’d definitely support further research and studies, but knowing how it can help many people with crimpling insomnia I don’t think banning it is the answer.

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    • siobhanc

      Hi Rachel, Thanks for your comment. I really do sympathise with your husband, and know how crippling insomnia can be, but as zolpidem and zopiclone are only meant to be used short-term, I don’t think drugs like Stilnox are the answer for people suffering from chronic insomnia. I know there are lots of people out there who feel that they’ve tried everything else without success, and that Stilnox has been the one drug to help them, but you just never know if or when you might experience a serious adverse reaction. Mairead took these drugs on and off for a few months without incident (that she was aware of, anyway), but all it took was one serious reaction and her life was lost. If your husband has experienced chronic insomnia over many years, it sounds as though he should be evaluated at a sleep clinic to see if there is an underlying physiological issue that needs to be addressed, as Stilnox, even when it works, can never offer more than a band-aid solution anyway.

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  44. beansbeansthemagicalfruit

    I’m very sorry for your loss Siobhan. I can only imagine what your family has gone through because of this and my heart goes out to you all.

    It says in the article that Mairead had been prescribed Stillnox over a longer period than recommended. I’m not intimately familiar with Stillnox other than stories relayed to me by friends and in the media. But I question what her GP’s reasoning was for prescribing it for longer than they should have.

    Is this a drug that the longer one uses it the more chance they have of experiencing these awful side effects and that’s why the manufacturer recommends maximum time frames or is it so strong that this can happen after the first time you take it? If it’s the latter then that is indeed truly alarming.

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    • Zelicat

      It can happen from the first time you take it.

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      • beansbeansthemagicalfruit

        Thanks Zelicat. That’s all I need to know now to stay the heck away from Stillox and warn my loved ones about it as well. If you don’t even need to have a prolonged buildup of the drug inside of you to experience these side effects, I don’t understand why GPs are willing to take the risk by prescribing it at all.

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    • siobhanc

      Hi beans, Thanks so much for your comment, and for your condolences. Mairead had been going to the same medical centre in the city, where she was prescribed Stilnox (and then Imovane the week before her death) over a period of months by two or three different GPs (it was one of those large, bulk-billing centres where you take a number and see the first available doctor).

      I believe that there are several reasons why z drugs are not recommended to be taken for more than a few weeks at a time. Firstly, zolpidem and zopiclone are now understood to be addictive; secondly, insomnia can actually worsen the longer one takes these drugs; and thirdly, when you stop taking them, you can experience ‘rebound insomnia’ as well as other withdrawal symptoms.

      But yes, as Zelicat says below, a serious adverse reaction can occur the first time you take Stilnox or Imovane, and there have been many reported cases where someone has experienced an adverse reaction after taking these drugs for the first time.

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  45. Alex

    I’m sorry for your loss, but banning this drug won’t bring your sister back and in doing so you may deprive people who really need it from getting it. Reactions should be calculated and measured, not excessive and knee jerk.

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    • Michelle McGrath

      excessive and knee jerk really?….when there are many more options available. I think if you were more aware of the thousands of complaints and deaths that have been caused due to the use of this drug (proven facts) you would view it differently – especially if it was a member of your family….

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      • Alex

        all pharmaceuticals interact with the body in ways which have associated risks, penicillin for instance routinely kills people but the probability of it occurring is weighed against the benefits of its use

        drugs by their very nature interfere with the biochemistry of the patient, they are tested to show that enough of an effect occurs so as to be deemed therapeutic but not too much that are become deleterious or even lethal, however as a function of evolution we are all slightly different and as a consequence drugs will affect us all in slightly different ways making some of us more susceptible to negative consequences of some medicines more than others

        i don’t think you appreciate that i am aware of the risks associated with medications (not just this medication but all medications) and i accept it, because if we were willing to to ban any drug that had ever killed somebody we would have do medicine with which to treat people at all

        (and my opinion stands even if it meant i lost relatives to drug related complications)

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        • Felicity

          You are right, banning it won’t bring people back BUT it will save others from losing their lives and their families from the devastation of that loss. We are talking about people,not statistics. I am guessing that you Alex have not lost someone close to you,nor do you have children? If you do then I struggle to understand how you can be so flippant in your response.
          Yes drugs have side effects and yes people and their reactions are all different but when a drug has known side effects that cause otherwise healthy people to die then SOMETHING must be done. Side effects can and must be managed and dealt with when the effect of the drug outweighs the negative effects such as chemo. This is NOT the case when healthy people have other options and IF INFORMED of death being a possible outcome would never take the drug. I am sure thalidomide helped some women with morning sickness BUT the side effects (which did not affect all those that took it by the way) were so horrendous that it was banned, so is not unnecessary, premature death of otherwise healthy people horrendous enough?

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          • siobhanc

            Thanks so much for your comment, Felicity. I agree with absolutely everything you’ve written.

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    • Zelicat

      My husband was prescribed stillnox on his return from Iraq in 2007.The 7 nights he took it for were the singular most terrifying nights of my life. He was sleep walking, attempted to drive the car, he kicked a hole in the wall dreaming he was being attacked by dogs, he pinned me to the bed with such force that he left bruises. He had no memory of any of this at all and woke up feeling exhausted and dopey the next day. What is even worse, he wasn’t suffering insomnia – they were given as a “just in case” he had trouble sleeping. I am very very glad to hear it has been banned.

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      • Cleo

        It hasn’t been banned

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      • Alex

        yes, what cleo said, it hasn’t been banned, also i am puzzled why your husband took the medication on the second night, you dont have to take prescribed medication in fact i insist you do not if you have had a severe negative reaction

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        • Zelicat

          Because Alex it was in 2007, before there was information about stillnox reactions, ( before there was even the black box warning on the pack )he was told to take it to get his sleep patterns back to normal after 10 months of shift ( 24/7) work in a warzone. The first couple of nights we put in down to a stress reaction – he was acting out his dreams. At first we were giggling about the fact he was ordering me to do things, that we had sex and he had no memory of it the next day, but the third night he was up and kicked a hole in the wall. We STILL didn’t connect it to stillnox, ( after all it was just a sleeping tablet, right?) but did go to his dr, who referred us to a psych.
          It wasn’t until when he was up with car keys in his hand , and I realised he was not awake but sleepwalking and having to physically fight my 6’2 90 kg husband to keep him from leaving the house and trying to drive the car that I realised what was happening. He had NO memory of these things and it was hard to convince him what had happened. He stopped taking stilnox, and his sleep returned to normal. This was five years ago, long before ” reactions” to stillnox were recognized.

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          • siobhanc

            Hi Zelicat, Thanks so much for sharing your story. That must have been a very frightening experience for both you and your husband, but I am glad you connected your husband’s bizarre behaviour to Stilnox before anyone was hurt. We have heard countless stories like yours and involving similar experiences (the attempt at sleepdriving, the sleep sex, the violence etc.). Many of the stories sound so far-fetched that it’s hard to believe they’re real, but the more you hear, the more you realise what frightening and dangerous drug this is.

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    • Emily

      I’d hardly say 5 years after her sisters death is a ‘knee-jerk’ reaction. This family has clearly had plenty of time to think about, research and become knowledgable in this subject (probably far more knowledgable than you or I). I also think that it is not ‘excessive’ to demand the banning of stilnox for treatment of sleep disorders when there are many other options available to patients that work. It’s not as though this is a cancer cure for which there is no other alternative. It is not out of my realm of belief that a drug company would keep a dangerous and unnecessary drug on the market for the sake of profit and market it as the ‘best’ form of relief for insomnia sufferers (even though we know there are many other viable options). Just because some people do not suffer side effects as Mairead did does not excuse the drug company from doing their moral duty and removing this drug from the market. 1 death is too much let alone the thousands that have been attributed to the side effects of this drug.

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      • siobhanc

        Thank you so much for your comment and support, Emily. You are right – our reaction has been anything but ‘knee-jerk’. In fact, despite repeated requests for interviews, we refused to speak with the media for several months after Mairead’s death, until the police had completed the bulk of their investigation and we’d had time to do some research on these drugs, which is how we discovered that Mairead’s case was not isolated, but that was in fact one of many whose deaths had been linked to z drugs, not to mention the thousands of people we found out about who’d experienced serious adverse events, but who were at least lucky to still be alive.

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    • siobhanc

      We are not attempting to bring my sister back, Alex, but we are hoping that by alerting as many people as possible to the dangers of these drugs, and continuing to fight for z drugs to be banned for the treatment of insomnia that we might help to prevent other deaths. This aim is far from ‘excessive’ given the number of serious adverse reactions that have been associated with these drugs, not to mention the numerous deaths. As Emily said below, we are not talking about a drug that is curing cancer – we are talking about a sleeping tablet, for which there are many alternative treatments, most of them far safer than drugs like Stilnox and Imovane, which belong to a very poorly understood drug class.

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  46. Jackson

    I can not imagine the pain your family must be going through and I am sorry for the loss of your sister.

    I am curious as to what the official cause of death was for your sister.

    Is the official finding that stillnox killed her? If not then I question the sensational type headline for this post.

    Also, given the fact that MM has put links to organisations generally placed at the end of stories about suicide I am wondering if there was something more to the reasons behind your sisters death.

    I am all for banning things that are bad for the public, but not for blaming something that only a small percentage of people have problems with.

    If we were talking about your sister dying from an immunisation jab I am sure you would not find a welcome audience here if you led a call to ban that.

    I am not trying to have a go at you, but I am uneasy for calls to ban something that has helped many more people than have had problems with it.

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    • Anonymous

      Stillnox in considered one of the most dangerous form or sleeping tablets available on the market. Some people have no side effects with it, but some people have very serious reactions after being on the drug for only a very short time. these reactions are causing a type of sleep walking that means people are walking into traffic, falling off ledges and similar. In terms of numbers, there is more side effects then is generally considered appropriate for any approved medication.

      If the medication can’t be banned then people should know the very real side effects. A little pamphlet in the box isn’t going to cut it, most people toss them away without reacting it. Education here is extremely important, especially when you’re talking about possibly risking your life by taking this medication.

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    • Beanie

      You call death a problem?

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  47. Jess

    While I sympathise with you and your family after such a tragic loss, I am quite concerned that you hope to completely ban this drug. Like so many other drugs, especially psychiatric and neuro drugs, very little is known about the mechanisms that make these drugs work. However, in some circumstances they do seem to relieve symptoms and work very well, while in others they have awful side effects.
    While Stilnox may have caused the tragic death of your sister, is it really right to deny it to those who see improvements with this drug?
    Some anti-depressants for example are only 60% effective, but should that 60% be denied it because others see no improvement?
    I guess the only ‘solution’ I can offer is perhaps greater restrictions for prescribing these drugs, obviously to not mix drugs and alcohol, and more research into these drugs.
    Also benzodiazepines are highly addictive and cause serious withdrawal symptoms, so are only used in acute situations and are not really a proper alternative.
    This is obviously a really emotive and contentious issue, but I’m not sure a complete ban is the right option. The study didn’t advocate for a ban, and concluded that in most of the deaths other drugs were involved.

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    • Anonymous

      Because there are many other drugs out there that will achieve the same results. However I wouldn’t take Stillnox knowing the very real possible side effects and I am someone who has suffered from severe insomnia

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      • siobhanc

        Thanks for your comment. I hope you find help in treating your insomnia, and am relieved to hear that you wouldn’t use Stilnox, despite what I know can be a crippling condition. Wishing you all the best. x

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        • Jess

          Hey Siobhane,
          Just to add to my previous comment, I’m really curious as to why you feel you know more about this drug than psychiatrists? Correct me if I’m wrong, but there doesn’t seem to be any push in the psychiatric field to ban Stilnox. I’m just really concerned that you’re basing all this on a very small data group. I know that this is really emotive, and I’m truly not trying to be aggressive, I’m just really curious. All drugs have side effects, and psychiatric drugs even more so, but I don’t think an outright ban is the best option.

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          • siobhanc

            Hi Jess,
            I’m interested to know why you mention psychiatry specifically? I don’t know how commonly prescribed Stilnox and Imovane are in the psychiatric profession, but I do know a few psychiatrists who are completely opposed to the use of these drugs at all, let alone for patients suffering from psychiatric illnesses. I also know one forensic psychiatrist who has done some very significant research into the ways in which different people metabolise drugs such as zolpidem, and has concluded that some people are far more likely to experience a serious adverse reaction to drugs like Stilnox and Imovane depending on the existence of certain cytochromes in their genetic makeup.
            Another prominent psychiatrist and author, Dr Robert Kaplan has spoken publicly on numerous occasions about the dangers of sleeping pills, and more specifically, zolpidem (Stilnox).
            Stilnox is meant to be used for the short-term treatment of insomnia, not for ongoing, chronic insomnia, and not for people with underlying mental health problems, such as depression or anxiety. In patients with existing mental health issues, Stilnox can actually make these problems worse.
            I am not claiming to be a medical expert, but I have spent nearly five years thoroughly researching these drugs – speaking with hundreds of people who’ve been directly affected by them, and with numerous people who’ve lost loved ones to both zolpidem and zopiclone; speaking at length with many prominent physicians and specialists, with pharmacists and nursing professionals, with scientists, with researchers and academics, with investigative journalists who’ve been following this story for years… So while I’m not a health professional, I am quite confident that I do know what I’m talking about when it comes to this subject.
            I do have trouble understanding why there are so many people who passionately defend the use of drugs such as Stilnox when there are many alternatives to treating insomnia. I’m certainly not suggesting that this is the case with you (and I’ve no idea if you take these drugs yourself), but I do suspect that in many cases it is addiction talking…

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            • Jess

              My comment seems to have deleted itself (pretty sure it’s my computer not mods). In a nutshell, having read what I can of the recent review there doesn’t seem to be any statistically significant evidence to warrant a ban for Stilnox. The data is very misleading as it doesn’t put it into perspective in regards to how many people are currently taking Stilnox. Yes it says 1/3 of deaths attributed to Stilnox were suicides, but actually 85% of the deaths had other drugs involved. And the data fails to show how many deaths there has been in relation to the entire Stilnox taking population.
              Of course any death is a tragedy, but if we start to ban drugs based on number of deaths, we wouldn’t have an drugs available at all.
              I have full faith in the scientific method of research and review, so until there is enough data (not just anecdotes and small data groups) I can’t see how an outright ban is warranted. Although I fully support tighter restrictions for this drug.
              I’m not a Stilnox advocate, I’ve not taken this drug, but I think that trying to ban a substance based on emotion and little evidence is a very concerning.

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            • siobhanc

              This is is response to the comment above by Jess:

              I believe it is telling that the professor who undertook this research has concluded that these drugs are unsafe, and has recommended that z drugs now be tested for in all violent and unexpected deaths. That to me speaks volumes, as do the actual results of the study.

              I do not believe these drugs should be banned based on the number of deaths that have been associated with them alone. There have been thousands of reports of adverse reactions that did not result in death, but that could very easily have been far more serious, particularly in the numerous cases of sleep driving, as well as in the cases of acts such as sleep cooking.

              The research done on these drugs to date has been commissioned and funded by the pharmaceutical company who manufacture these drugs, and as such, I’m afraid I have a little less faith in the rigours and balance of that research than you appear to. I also find it interesting that Sanofi-Aventis have distanced themselves from the international studies that are currently being conducted into the use of zolpidem to awaken brain-injured and comatosed patients. Clearly, supporting such research would mean having to explain how a drug that is being marketed as a sleeping aid is also able to wake someone up from a long-term coma. And of course, there’s a lot less money in treating brain-injured patients than in treating people simply looking for a decent night’s sleep…

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        • Anonymous

          Thank you for your response. Yes I have found some various ways to help the insomnia and *knock wood* haven’t had any bouts for over 12 months. However it does come and go so it’s possible it will return. The worst thing is that nothing in particular will set it off, it just happens.

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          • siobhanc

            I’m sorry to hear that, and hope you find something to help you. I know a few people who swear by melatonin in helping with insomnia, but if you’ve been suffering from insomnia for a long time, I imagine you’ve probably tried most things…

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    • siobhanc

      Our hope is not to ban these drugs entirely, but to ban them for the treatment of insomnia, which is how they are mainly marketed at the moment. I do find the research into the use of zolpidem (Stilnox) for the treatment of brain-injured patients such as Sam Goddard very interesting, and would certainly support continued research in this area (though of course marketing Stilnox to brain-injured patients wouldn’t be nearly as profitable for the drug manufacturers as marketing it to people who are having sleeping difficulties). My concern, however, is that even the scientists who have studied these drugs at length do not understand exactly how they work on the human brain, and the fact that something that is sold as a sleeping pill can simultaneously ‘awaken’ patients from a serious brain-injured state or a long-term coma is very alarming to me and to many others, including many members of the medical profession.

      Stilnox, Imovane and other drugs in their class are not the only options available for people suffering from insomnia – far from it. There are many other drugs on the market that have a better safety profile and that we understand the mechanics of a lot better (but yes, I take your point on benzodiazepines). Additionally, there are many other non-drug treatments available, and sleeping tablets should never be considered a long-term solution for the treatment of insomnia anyway.

      Regarding my thoughts on the mixing of Stilnox and other drugs, including alcohol, please see my response to Anna’s comment further down the page.

      I also wanted to point out that the purpose of the review was not to advocate, but merely to report on findings. The study’s leader, Professor Shane Darke, did make a comment to the Sydney Morning Herald that “we need to take account that there does seem to be a particular problem with this particular substance for susceptible people to be doing things they’re not conscious of or wouldn’t otherwise do.”

      It is up to the TGA to make a decision about further scheduling or banning, but given that the TGA receive 100% of their funding from pharmaceutical industry fees, we anticipate a long fight…

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  48. Nana Tipsy

    I too have taken zolpidem in the past with no adverse effects. I feel that calling on people to petition the TGA to ban a drug because someone in your family had a bad reaction is somewhat arrogant. I have the utmost sympathy for you and your family for the terrible thing that happened, but to put all of the blame on ‘z’ drugs is misguided in my opinion.

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    • Nicola

      Hmm…considering that the data referred to in the article states that these type of drugs contributed to the deaths of a third of the people taking them, I definitely think more research and follow up is needed. It’s not arrogant at all.

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      • beansbeansthemagicalfruit

        To be fair, it contributed to a third of the people who died violently or unexpectedly while using Stillnox in NSW. Not a third of everyone taking them. It also doesn’t state how many people actually used this drug at all in NSW during that 10 year period when those 33 people died so these stats aren’t telling the whole story (for better or worse).

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        • siobhanc

          Thanks for making that clarification, beans. I would hope that most people would be as alarmed as I was to read the results of that review on Friday – the fact that Stilnox contributed to the deaths of over a third of the people who were taking them when they died violently or unexpectedly is pretty horrifying to me (and note that the study was only looking into deaths in NSW over a specific period – we know of a large number of deaths in other states, not to mention overseas). I would also love to see some figures on how many people are taking Stilnox and Imovane at the moment, but Sanofi-Aventis (the drug company who manufacture and market these drugs) have refused to divulge their recent sales figures, which I find interesting. The Sydney Morning Herald article does note that 2008 data showed that prescriptions of zolpidem were equivalent to about one in 1000 Australians taking a daily dose of it.

          One thing that I think is very important to note is that zolpidem and zopiclone are not routinely tested for in post-mortem toxicology tests. We knew Mairead was taking Stilnox, so requested that the Coroner send her blood away to a specialist laboratory where they could test for z drugs, but unless the Coroner has reason to believe that these drugs could be implicated in a particular death, the family need to be aware enough to request that the toxicology includes testing for these drugs.

          We have met a few families since Mairead’s death who had previously attributed their loved ones’ loss to suicide, however unexpected and unexplained it had seemed at the time, but on hearing Mairead’s story, had suddenly recalled that their family member was also taking Stilnox or Imovane at the time of their death, so it is our strong feeling that the actual number of deaths caused by these drugs far outnumbers the number of officially recorded cases.

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          • Amandarose

            stilnox is not used any where near as much as temazepam and oxazepam – I rarely see it prescribed anymore as it has bad press and people are cautious. I would guess about one script of a z drug for 30 of benzo’s.

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            • siobhanc

              According to Ron Grunstein of the Woolcock Institute (a long-time Stilnox defender, who almost always fails to disclose his close financial ties to Sanofi Aventis when quoted in the media), “Stilnox is zolpidem, the most prescribed sleeping tablet or hypnotic in the world. In North America it is called Ambien, the No.1-selling hypnotic.” Sanofi-Aventis have refused to disclose their recent Australian sales figures to enquiring media, and I would suspect this is because doctors are prescribing it less (thanks to increased warnings they’ve received from the TGA etc. since the Black Box warning was introduced in 2008), and patients are becoming more wary as more and more stories such as Mairead’s are coming to light. So I would guess that there has been a downward trend in sales in recent years, and if this is the case, then it’s very good news.

              Are you a pharmacist, Amandarose? I have spoken with many pharmacists who have said that they definitely see less Stilnox scripts than they did a few years ago, so I certainly hope this means that doctors are becoming more aware of the risks associated with it.

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            • Amandarose

              I am- People in Australia are very cautious of using it due to information related to deaths. even when it is prescribed by the to e you explain the risks etc a lot of people refuse to fill the prescriptions. It was never very popular anyway due to price. It is not PBS listed so people get benzo’s which are an entire problem in them selves.

              Your message has been heard but the public and many people mention your sister when they discuss the dangers of it.

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      • siobhanc

        Thanks very much for your support, Nicola. x

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    • Julia

      I’d hardly call it arrogant. I think it’s very courageous of Siobhan and her family to stand up and raise awareness about the problems associated with these drugs. Just because a large percentage don’t experience problems doesn’t discount the fact that they are there and that they can be life threatening.

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      • siobhanc

        Thanks so much for your comment, Julia. It means a lot to us to have the support of people who understand why we’re doing this. x

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    • siobhanc

      Nana Tipsy – with respect, my sister died – I would call that more than a ‘bad reaction’. The reason my family and I started a campaign to try to have this class of drugs banned is not just because of Mairead’s death, but because of the many thousands of stories we have heard since – each one more bizarre than the last – of what this drug is capable of doing to people. If you read the article that was in Friday’s SMH (I’m not sure if the link above is working, but here it is again: http://www.smh.com.au/national/stilnox-sleeping-drug-considered-unsafe-by-review-20120705-21k8n.html), you will see that there have been many deaths attributed to Stilnox, so I’m not quite sure how and why you would view our reaction as ‘arrogant’.

      I’m glad that you have taken zolpidem without any adverse effects. We are certainly not claiming that every person who takes these drugs will experience an adverse reaction, but the number of people who have experienced serious adverse reactions is significant, and to be honest, I think anyone who takes Stilnox or Imovane is playing Russian roulette, especially when there are alternatives.

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    • guestess

      Did you forget your manners today? She is telling her story about the tragic death of her sister.

      She is talking about her sisters case specifically, but there are many well-documented accounts of adverse reactions and events with stillnox. the thing that would scare me the most is that the person taking the drug would not really have any idea of what problems they were having as they are not able to recall. if you live alone and take it, who knows what you get up to.

      we have to be grateful that when a terrible tragedy happens to someone, that family uses it to try to prevent it happening to someone else. they are trying to save another family from the grief they have suffered.

      all the best siobhan, to you and your family. i will certainly never take this drug now. it isn’t worth the risk especially given the other alternatives.

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      • siobhanc

        Thank you so much for your very supportive comment, guestess.

        You make a very good comment about people taking Stilnox often not being aware of what they’ve been doing in their sleep because they cannot remember what they might have done the following day.

        We have heard many bizarre accounts – stories of people piling on dozens of kilos without apparent explanation, only to discover one day that they’d been raiding the fridge and gorging on food in their sleep; people doing house painting in their sleep, only to wake and find they’d repainted the white living room red without meaning to; non-suicidal people calling friends and telling them that they were planning to kill themselves and saying goodbye only to have no recollection of making these calls the next morning… the list goes on and on and on.

        I am always happy to hear that our story is making people aware of the dangers of these drugs and that more people will rethink their use in future.

        Thanks again. x

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        • guestess

          i genuinely admire families such as yours that could walk away and absorb yourself in your grief. but instead you choose to make a difference and save lives.

          i am sure many people have had uneventful experiences with stillnox and that is great, but there are too many terrible cases, for this to be ignored.

          keep up the good work, ignore the negative nellies and hold you head high, we need more people in the world like you and your family.

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          • siobhanc

            Thank you so much for your lovely words. It makes an enormous difference to know that we have the support of so many people in the community who understand why we are doing what we’re doing.

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    • Tara D'cruz-Noble

      You are so brave to take up such a task as this in light of the devastating affect this must have had on your family Siobhan. I am sure every time you approach another task in this battle, it must bring up raw and intensely sad emotions for your sister Mairead.

      I really hope you achieve what you have set out to do, sooner rather than later, as I’m sure this drug will continue to tear life apart for some people. I know first hand the torturous feeling of sleep deprivation but there really are other ways of tackling the beast such as acupuncture, hypnotherapy and relaxation techniques including yoga and meditation. Good luck… you have come so far already just in terms educating people about the truth behind this drug.

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      • siobhanc

        Thank you so much for all your support over the past few years, my lovely friend. xx

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  49. Angelina Ballerina

    I take Stilnox whenever I have a bout of depression and it works well for me. No weird side effects. A very small % of people have nasty side effects and this is disturbing.
    However, I do think some people (eg Grant Hackett) are just jumping on the bandwagon and blaming stilnox for their inappropriate behaviour rather than taking responsibilty for it.

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    • Angelina Ballerina

      Insomnia not depression. I think someone else edited me. Or maybe it was a Freudian slip. Weird.

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    • siobhanc

      Hi Angelina Ballerina, Thanks for your comment. I think the original article on Grant Hackett was quite misleading. The Sunday Telegraph published a follow-up article over the weekend, to clarify the fact that the journalists who wrote the original story uncovered this information about Hackett’s battle with Stilnox, and approached him for comment. Given his recent troubles, he was unwilling to comment, but after they told him they were intending to run the story regardless, he decided to make a public statement:

      http://www.dailytelegraph.com.au/news/opinion/prescription-for-pain-apologists-are-wilfully-missing-the-point/story-e6frezz0-1226419832198

      To be honest, I think this article was probably the last thing Grant Hackett needed at this time, and I don’t think he’s in any way tried to blame Stilnox for his behaviour, however some of the stories I’ve read about his behaviour would be consistent with many of the stories we’ve heard of people with no history of violence who’ve lashed out and behaved uncharacteristically after taking this drug, so you never know…

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  50. anon

    I took Stilnox for a number of months when I was going through a really rough time. I would spend all night wide awake and finally get to sleep around 6am when I needed to wake at 7am for work. Insomnia really is so cruel… I remember just crying – I wanted to sleep that badly. I found it alright to take and there was only one occasion where I did something I didnt remember which was taking my cat out of my sisters room… very tame.

    All the same I hated taking something like that but other sleeping pills Id tried didnt sleep to help me sleep. I weaned myself off them and thankfully havent had trouble sleeping much. My daughter now keeps me awake!

    I remember hearing about Jackie O taking them a few years back and cooking up a storm then passing out only to wake to the fire brigade putting out a fire in her kitchen… scary stuff!

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    • Sydgel

      I was recently in a psychiatric ward and there were a few people there who had very severe insomnia, so severe they were hospitalised. They were all successfully treated with Seroquel. Some had to take a lower dose as it made them dopey the next day but once adjusted it worked tremendously for all of them.

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      • Amandarose

        Seroquel is not for insomnia and is used”off label” for this use. it has lots of side effects including weight gain so is not and ideal sedative for the average person.

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      • Ella

        I actually believe seroquel (quetiapine) is addictive too. I’ve been on it for 3 years, literally cannot sleep without it, find it almost impossible to reduce the dose, etc. it’s expensive because insomnia is an off label use (& I’m talking like $220 a month) & I’ve done some weird stuff while on it – sleep walking, eating, etc.

        All psychotropics have the potential to be very dangerous & improperly prescribed. Sleeping meds are not exempt from this. It should be far, far more difficult to get psychotropics (I believe psychiatrist only for first prescription) than it is.

        I have a friend who had a glass of wine to drink, took stillnox & woke up having unprotected sex with a stranger. She ended up being raped multiple times that night (that she remember) by this man & his friends. She thought she was just going to bed to get some sleep.

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        • siobhanc

          Hi Ella, I’m so sorry to hear about your friend’s horrific story. I know of several people who’ve had sex with strangers while on Stilnox, and have also heard of others who’ve been sexually assaulted. There was one case a couple of years ago where a woman who had separated from her husband (with whom she had an acrimonious relationship) would turn up to his house in the middle of the night demanding sex with him. He thought the relationship was back on, until he realised that she had no recollection of visiting his house at night. She was horrified and devastated when she discovered what she’d been doing while under the influence of Stilnox.

          I hope you find some help in treating your insomnia, and that you are eventually able to come off the Seroquel without experiencing any serious adverse events.

          Wishing you all the best.

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    • siobhanc

      Thanks for your comment, anon. I’m glad you didn’t experience any adverse reactions to Stilnox, and hope you are sleeping better now.

      I also heard the Jackie O story, which is only one of a large number of ‘sleep cooking’ and ‘sleep eating’ stories we’ve heard.

      One of the more bizarre stories I’ve heard in relation to sleep cooking involved a man who arrived home to find his front door wide open and his flatmate gone. He walked through the house and discovered that every table in the house (the dining table, coffee tabels, side tables, bedside tables, outdoor table etc.) was set with knives and forks, as though someone was planning a strange dinner party. When he walked into the kitchen, he found a large pot in the oven with all kinds of random foods being ‘cooked’ – raw, unpeeled carrots, tins of tuna, cat food, as well as some inedible items. There was another pot on the stove, where a raw chicken was being ‘boiled’ on the heat without water. Later that night, the man’s flatmate was found several miles from his home after crashing his car into a tree. He was lucky to be alive, although did spent a few days in hospital. When he woke the next after the accident, he had no idea where he was and no recollection of anything that had aoccurred the following evening. His last memory was of putting his pyjamas on, getting into bed and taking a Stilnox…

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