By SARAH GRANT
For the best part of the last decade, I have spent Australia Day in the same way that many 20 and 30 somethings do – having a barbie with friends at the beach or park, drinking too much, chasing the next party. It’s always been a fun day, albeit more of an excuse to stretch the hedonistic Sydney summer vibe to its full capacity than a celebration of patriotic pride.
Last Australia Day, I went to a house party in Bondi – the kind of affair that gets shut down by the police before 10pm, hordes of boozy blokes and girls clad in cut off denim spilling into the street, itching to take the party onwards and upwards. To be honest, the memory feels distant, like it belongs to a file in my mind archived long ago.
This year, Australia Day was poignant to me for reasons completely unrelated to being born in this country, or celebrating the fact. Sure, I drank a beer, I listened to the Hottest 100, I had a swim at the beach – I even chased a sizeable skink out of my bedroom. (That’s pretty bloody Australian by anyone’s standards). I wasn’t in Sydney, I was in the bush, at my Dad’s property on the outskirts of Margaret River, W.A, where I have spent the best part of three months.
Dad has advanced Parkinson’s disease and sometime midway through 2012, my sister and I made the call – we’d pack up our lives (for me that meant putting work on hold, for her it meant also relocating her husband and one year old son) to spend time with Dad.
To experience a continual stretch of time with him before his disappearing speech is lost forever, before his largely impaired mobility gives way altogether, restricting him to a wheelchair bound existence. Australia Day was my last day with him, an occasion that happened to fall on the date we raise our beers to collectively cheer our country. I toasted to my time with Dad instead.
It’s been a time of soul souring highs and heart aching lows, challenge and triumph, expression and introspection, acceptance and wonder. In some respects, I feel like I’ve learned more in the past three months than I have in the past three years. I’ve learned that life is fragile and precious, but it is to be consumed, inhaled and never taken for granted.
Two months into our WA sojourn, my brother in law’s mum, a very special lady named Gill, died suddenly following a massive stroke. The sad irony of the fact that my brother in law Tim was helping us deal with the difficulty of Dad’s situation, only to be plunged head-on into his own devastating family tragedy, was not lost on any of us. But even in death, Gilly was still weaving her maternal magic, bringing people together and reminding us all of just how special time spent with loved ones really is.
Suddenly, Dad’s debilitating illness didn’t seem so difficult, so hard to handle. We could still have a cup of tea with him, share a laugh and a meal. It was a renewed perspective, and one that I thank Gilly for.
The past three months have shown me the strength that can be found in grace. To see my Dad, a man once renowned for his impatience and grumpy temperament, accept the fact that he can no longer swim, fish, run or drive, let alone slice a loaf of bread or open the lid of the ice cream. He doesn’t show the pure frustration he must feel every single day, when he struggles to get out of a chair, or when his impaired speech is not understood.
He doesn’t ever get upset, or lash out with anger. He just keeps attempting the required movement or repeating the word, time and time again, until the goal is achieved. He has accepted his situation, irrespective of the huge physical and emotional toll it must take, and does what he can to prevent it from becoming a burden for anyone else around him. I have so much admiration for this acquired sense of patience and grace, attributes I never knew he had.
This time has enabled me to understand the things in life I put unnecessary emphasis on, namely physical appearance and material possessions. By stripping back my day to day existence to aid Dad’s simple way of life – cooking, household chores, supermarket shopping, doctors and carers appointments – I’ve realized the often shallow existence of my world in Sydney.
Being in the bush has provided a welcome relief from city expectations; I don’t care what I’m wearing, what my hair looks like or how much exercise I have or haven’t done on any particular day. I’ve made slices, cakes, pies, curries, pastas and roasts for Dad and his wife Karen – and enjoyed every guilt-free mouthful.
Living on Dad’s long treasured patch of land has been also been an incredibly peaceful experience. The property not only captures the essence of who he is, but has also served as a firm reminder of how essential it is to connect with nature.
I’ve caught marron in the dam, pulled the nets over the peach trees, fed the guinea fowl and picked the lemons. I’ve spent very little money, bought no new clothes or had any big nights out – all things I frequently repeat in my normal life. But I’ve had a sense of contentedness and a level of quiet self-assurance I’m not sure I’ve experienced before.
Overwhelmingly, it has enabled me to see the values worth prioritizing in life. To understand the virtue of family, the strength that comes from challenge, the calm that can come with acceptance. It has surprised me how many people have complemented us on our decision to spend time with Dad, like it was some great act of kindness or compassion.
For me, it feels like I was the one who was given the gift. A snapshot of time I’ll cherish forever.
Sarah Grant is the features editor at WHO magazine. In her spare time she likes to delve into topics that aren’t quite as glossy as the world of celebrity. You can find her blog here.
Where did you spend Australia Day this year? Does the day mean something else to you?








Comments
18 Comments so far
Wow beautiful post. I skip over most of the fluff on here unless I’m really bored. Posts like this are why I keep Mama Mia on my RSS feed however.
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Thank you for such a beautiful story. My father was diagnosed with Motor Neurone Disease 4 months ago and I’ve done exactly as you have done. People often ask “how will you afford living like this?”. You’re absolutely right – in these life changing situations you realise how superficial and wasteful your life was. Spending quality time with my ailing father, and reconnecting with my whole family, has made me far richer than any pay packet. Light and love to you and your father.
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That was a beautiful post. Your Dad is very lucky to have such a loving family and whatever time you spend with him will mean so much to him.
My Dad had advanced Parkinson’s and died, quite suddenly, last December. I miss him immensely. Give your Dad a big hug and rejoice in the man he is now, as well as the one you grew up with. May you have many more happy memories with him
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Sarah your post was beautiful. I really feel that making the most of every day is the best way to live your life. The reality that you are facing makes this all the more important.
I too spent my Australia Day in Margaret River- such an amazing part of the world!
(and I have to say gosh not one night out while you were there? Totally missing out on the amazing times you can have at the cranking Tav on a Friday night- hehehe
)
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Thanks for sharing your story and I wish your dad and family well. I love my little patch of south West WA, the gentle rhythm of life here is certainly special and cathartic.
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Such a wonderful thing to do. I am glad, for you and your sister, that you made that decision. Life will go on after these three months. You will both return to the life you had before this journey. And then one day, sooner than you wish, you will be saying goodbye. And that is when you will realise how important this has been.
When my daughter was 3 and I was 32 weeks pregnant with our son, my mother-in-law was diagnosed with a terminal illness and given three months to live. We made the same decision. At 36 weeks pregnant I flew from north Queensland to Melbourne so that my husband could spend those last few months with his Mum before she left. And thankfully she got to meet her grandson too. I will never regret that decision, despite the fact that for the last month she rarely even recognised him, despite the fact that for the first few weeks of my son’s life I rarely saw my husband, and despite that fact that life did not go on as normal for us as my husband lost his job while we were away.
I will not regret it because my husband got to say goodbye and because my mother-in-law got to meet her grandson. I do not regret it because it meant she did not die alone, that she had family by her side during what was a scary ordeal for her.
And because I believe that to make life meaningful, we need to make the people we love our priority in life, because when everything else is gone, they are the ones that will matter.
I hope you get to spend some more special time with your Dad before he says his final goodbye.
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You are a wonderful person. Thank you so much for sharing this. Tonight we have realised our family is riddled with nits. I thought tomorrow would be an awful day of delousing but now? I’m going to savour every moment. Might be a great chance to talk to our preteen without distraction. Enjoy your dad every moment. Thank you
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Thanks for sharing such a beautiful post.
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Thank you Sarah. My mum has Parkinson’s disease so your story is meaningful to me.
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Thank you for sharing you story Sarah, I sincerely hope that your Dad is grateful and appreciates everything you are doing for him.
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Thank you for sharing your story Sarah, I sincerely hope that your Dad is grateful and appreciates everything you are doing for him.
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Hi Sarah,
This is such a lovely story – thank you for sharing. Life throws little gifts to us in the funniest of circumstances. Wishing you and your dad well x
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My life was contained in a single tupperware container for over a year – see story here (it covers the same grounds)… http://www.couriermail.com.au/news/queensland/lisa-shares-her-life-changing-perspective/story-e6freoof-1226548361695
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Like you Sarah, I spent the long weekend with my family, specifically my Mum, who has terminal breast cancer. I could easily have written this article: “the calm that comes with acceptance”, the realisation of what is important, the compliments I received when I took 2 months long sve leave last year to spend time with Mum and help Dad care for her – as if I was doing something unusual? I’m glad I did it and will do it again if my Mum lasts another 6 months. Time is now precious. God bless you and your family, I get it, I really do.
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Sarah, you are a lucky, lucky girl and this is a lovely story – it’s obvious that you are so thankful to have had this time with your Dad. My Dad died a few years ago of a lung disease, and even though I saw him every few days, the ‘D’ word was never mentioned by my mother, who was doing all the daily care. She would tell me about the latest doctor’s visit, and call me when he was taken to hospital by ambulance several times, but she never told me how bad he was, and never mentioned that he was near to death. I knew he was getting worse, but with no information from Mum, and having been discouraged from ‘sticking my nose in’, I just didn’t realise how close his death was. I didn’t know the signs, never having watched anyone die before, and even now, four years later, I am still resentful of being denied the knowledge. My mother is the world’s worst communicator, bar none, and to this day I don’t know whether she just couldn’t bring herself to say it or whether she really ‘didn’t want to bother me’, as she said. My kids were devastated at losing their Grandpa, and he was denied the chance to hear from me how I felt. I said all I wanted to say to him after he died, but that’s a poor substitute for a hug and a warm held hand of a living man. I’ll never stop regretting not having that time.
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Thank you for writing this Sarah, what a wonderful family you have. My uncle had Parkinson’s, it’s such a cruel disease, one where you definitely need to have the love & support of those close to you. xx
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What a beaituful post. Always nice to remember to appreciate the little things, those finer moments that often go unnoticed in the fast paced lives we lead. Really enjoyed the read.
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what a lovely, lovely story. i hate skinks in my bedroom too.
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