Dear Friends,
I do love you so, I relish your company and, above all things, you keep me sane in this crazy ride that is motherhood.
But I’m afraid I won’t be able to see you for a while.
You know, it’s about Molly. The first coughs have hit us this season, and my heart has begun the jitters, my brain is whirring in pessimistic overdrive: Is that snotty nose a little green? Oh, your son had a restless night – illness brewing maybe? Don’t they say there’s still a risk of infecting others for 24 hours after a temperature?
I fall nauseous at the thought of our Miss Molly catching something – a cold, gastro, bronchitis. And with all the unimmunised children about now, deadly diseases seem to be winning the war of ill health. There are so many things which could bring her fighting gloves down and threaten her life.
You see, it was as simple as someone sneezing or coughing on her in the first place which gave her this damned disease. Just unlucky they said, that she managed to pick up one of the strains not covered in her immunisation. That pneumococcal illness – yes, that’s the same one which leads to meningococcal – is apparently very common, something many of us carry around in our nasal passages or throat. But most think it is just a cold their child has – and if they’re over two years of age they’re likely strong enough to fight it off. But not when they’re six months old, like our little Molly was. Then, it can kill you.
We were lucky, I’m well aware of that. Those medical magicians saved her life. But not before the bacteria ravaged her little hip, leaving her disabled and looking toward a life of extreme pain.
But my major worry is that a skerrick of bacteria still in her system might be given the chance to ark up and multiply again. You know, her body is down and out with a cold, and unable to keep under control, as it normally does, those couple of remaining mites that might be lurking.
If she’s tired, I wonder… Is she sick – is the bacteria back? Or is she just “growing”, like a normal child? I don’t know if I ever explained to you, beautiful friends, the latest news we had, which was that the pneumococcal bugs got into her bones? That is why her hip ball joint completely disintegrated. Unfortunately this means if the bugs do regenerate, they are undetectable for a long time while they grow strong as an army, because bones don’t speak of pain. When the pain does come, it’s too late, they’ve feasted on all the bone, and are looking to switch off the bright shining star that is our Molly.
Anyway, this is not your problem. I just feel I need to explain my absence. I don’t want to lose my friendships, or those of Molly’s older brothers – I realise I haven’t even been catching up with their friends at the park like we used to. All those slides and climbing things off which Molly could fall and dislocate the delicate structure in her hip…Scares the living knickers off me.
It’s ridiculous. You, my friends, are the ones who keep me sane during the very best times of motherhood: I need you so, during these challenging times. I’m amazed that you have still managed to be there even though I’ve kept you at arms length. Like you, my thoughtful friend, who dropped in with flowers after I dumped tears all over you in the carpark when we’d found out Molly would be disabled. Or my group of lifesavers, who thought about me, as well as the patient, and organised some recuperative time out when I emerged a train wreck from living at the children’s hospital.
But anyway, this is not about me. This is one of those times when baby really does have to come before the needs of mum. I have to choose my baby’s life.
Lots of love, please don’t forget me.
Catapulted into the glamorous world of fashion and beauty, Felicity began writing, editing and styling nearly 20 years ago. She blogs here and is also writing a book on Miss Molly – the subject of her submission today.







Comments
47 Comments so far
Mama, why don’t you get in contact with L’il Aussie Prems? They might be able to put you in contact with a playgroup for microprems. Those mummies will be just as vigilant about germs as you need to be.
Molly is so so beautiful. What an amazing little fighter!
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Great idea, thank you!
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We are here behind the safety of a screen, whenever you need a virtual shoulder.
I can’t ease your ‘right now’ fears, but I can hopefully help with your ‘when she grows up ones. I am crippled, with a severe spinal injury and chronic pain.
I have five amazing kids, am about to start my dream job lecturing at my beloved university, and the best bloke in the world. A wonderful life, in fact, with people tolerant and patient when I cannot move, the bad days when I have pushed too hard.
One grows accustomed to severe pain, in such odd ways. You manage, adapt, and deal. CBT (cognitive behavioural therapy) is such an indispesable tool in my arsenal, but just one in my bag of tricks.
In short, she too can have an amazing, rich full life. It will just be sadly different from what you hoped for her. I have found that is the case with all our children, however, we can only do the best with what we can give them.
And it sounds like she has lucked out with an amazing mum. Good luck to that sweet little princess, and to all of you. We are just a keyboard away…
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I can’t tell you how great it is to hear from someone who is living through a similar thing. The doctors don’t really know how her condition will pan out, they’ve just told us of the many things that could happen in her future, and that there may be more they don’t yet know of. What you’ve just given me, as well as the practical side, is that she’ll be fine if her attitude is right – and luckily she was born with all the spirit to deal with it. I just need to concentrate on my own attitude now so I can be her backup. Thank you so much. xx.
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I am only too glad I could help:) Chronic pain is one often one of the least understood aspects of disability – there is often nothing to see. But it is also an odd source of growth and strength. I hate my bad days, but I have also learnt I have a resilience and ability to cope that I never knew. I know my friends. I know when to be vulnerable, and when to be strong. In short, it is an oddly twisted blessing – albeit one I would wish on nobody.
Your little girl will know no other life. And while that is crushing to you, there is a sad advantage to it. She develops her strengths young. The young are, after all, most adaptable. I have no doubt she will live an amazing life. And do not discount the advances made every year in medicine!
And again, she sounds like she has a most amazing mother:)
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Please look after this mother and her family and make sure this is not copied and piste by a certain group which then write an article and dissect you and your situation. This happened to me and it’s not needed. What is needed is for people to be made aware of what happens.
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Beautiful post and beautiful baby. Real friends will hold you close, no matter what. May you be blessed with them and good health for your precious little girl.
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I echo Jackson’s sentiments exactly and marvel at your strength and clarity. Tough times such as this brings out the best in us Mums and Dads and I wish you an abundance of success and breakthroughs as you journey through this challenging time. Molly is adorable and glows of happiness and spirit. I’ve spent a lot of time being cranky with my own two healthy boys today, for little insignificant things like messy rooms and lack of manners. Your plight has truly humbled me and as I hug my children and thank God they are alive and well, I will pray you get to enjoy a very long, happy and healthy life with your Molly and all the wonderful friends around you who need no apology. Best wishes always.
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Thank you so much, beautifully said. x.
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True friends will be there for you now more than ever. Its actually times like these that you realise how amazing some people are. I send you and Molly love and hope x
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Felicity, your frienships will adapt and adjust to your changing circumstances. My closest friends now communicate regularly online due to time constraints and other commitments – it’s a great way at the end of a frustrating day to unload! Wishing Molly a speedy recovery xxx
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Absolutely heartbreaking.
My four month baby has a virus and as his temperature started to soar and he became listless my mind raced and the ‘negative nancy’ in me thought the worse. Thankfully he is going to be ok.
Reading your post has bought me to tears for brave you. Be strong and allow your beautiful friends to rally around you.
Prayers and thoughts with you xx
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Thank you. A sick baby is frightening no matter what the degree – the nurses at the Children’s hospital taught me that every case needs to be treated seriously. And every parent treated as if they know best about their child. Never doubt yourself.
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It’s stories like these that remind me how lucky I am to have a healthy kid, no matter how accident prone! His bruises and bumps (and black eye) will fade, but it’s not that easy for everyone. All the best for your little girl, and te countless others.
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I’m so sorry…. I have a two-month-old and I burst into tears reading your post. How unimaginable…
It’s not fair.
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You are an amazing mother with a gorgeous daughter.
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Prayers to you, your family and little Molly. I know the fear you are talking about. Anyone whose had a close relative go through chemo knows how devastating catching a simple cold could be. This is a lovely letter and I hope that you find the majority of people understanding and accepting. I’m so sorry this happened to little Molly. Your story is brave and inspiring. She’s so lucky to have you protecting her.
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Thank you so much, prayers mean a lot to us.
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Heartbreak!!!
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My eyes welled up with tears looking at Molly’s dear little smiling face after reading your story. What a beautiful brave little girl.
I am up late worrying over my 17month old who in the space of a week has had an ear infection in each ear with soaring temperatures, and has now spent this evening projectile vomiting. when he is sick it fills me with fear, i sit up long after hes gone to sleep just so i can check on him, so i cannot even imagine what it must be like after facing such a serious illness with your little one. I wish you and your family love and all the very best xx
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Unbelievable. I have lost track, are we immunising against this now?
This is a timely reminder…Must check if my kids are due for more jabs.
Gorgeous baby, great post.
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Yes, we are immunising against this now – and they’ve just updated the dose to cover more strains, so you may need a booster for your kids. It affects the vulnerable (young and old) more but you can never be too safe.
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thanks for sharing your story. wishing Molly and your family health and happiness x
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my prayers are with Molly, you and your family.
That letter broke my heart, you seem very kind to be thinking of others at such a difficult time.
Molly is absolutely beautiful, and I hope each day of this winter zooms by without incident
take care
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No words xxx
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Mothers of Mollys unite! Actually MY daughter is a Mollie. Is also six months old , well closer to 7 months now and she been unwell also. I too have spent time in children’s wards. Your brave, loving words brought a lump to my throat. Love and strength to you. X
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Thank you so much.
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Oh Felicity this made me cry. Best wishes to you all for the tough times xxx
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What a sweat beautiful girl with those shing eyes and perfect smile. Best of luck through these winter months.
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My prayers are with Molly and your family. From one mum to another, my heart is breaking for you.
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Oh Felicity this made me cry. Wishing your family the best through the tough times.
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You may not know me but I will never forget you, Molly and your family. Love always
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I am just in tears now, thinking of you and Molly is so cute.
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As a mother of an oncology kid. I hear ya and will be knee deep myself for quite some time. Power, love and strength to the whole family xxxx
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And to you. I don’t know how you do it having seen the oncology kids during our time in hospital – you and all the other mothers of oncology children inspire me to keep going. And your babies are nothing short of incredible. xxx.
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My Lordy Lord that’s a cute baby.
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Suppose I’m a bit fragile at the moment, but I’m crying for you and Molly’s life at the moment.
Other commenters are right – the true friends won’t forget you. Just tell them you love them and miss them and can’t wait til you can catch up properly again.
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My heart goes out to you Felicity, and anyone else as well who has a child with a serious illness. I have 3 young children, now 3, 4 and 6, which had been bloody hard at times, but I am thankful everyday that they are all healthy… Sending lots of strength your way, Molly is absolutely gorgeous, her little face just beams with love
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Molly is just beautiful.
A friend of mine has a son who was delivered early due to pregnancy complications. He had a few health issues which meant that essentially they lived in the childrens hospital for the first few years of his life. When he was 4 and a half things finally turned the corner. Her sons illness became all consuming for the family and how they all retained their sanity I’ll never know.
Felicity, you have my utmost admiration. I’m sure your friends won’t forget you, and if they do you just go out and get new ones.
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what a beautiful little girl. You and your family are in my heart and prayers. and i wish you good health x
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I can totally relate. My beautiful 18mth daughter became gravely ill spending 2 weeks on a ventilator in ICU before another 3 months in hospital….you start to become instituionalised in there. And now we are out her eyes are so fragile and she is now near blind from her disease that she cant be in the wind or heat or extreme cold, she is also on immune suppression for a recent transplant, so we are still very much house bound and often thinking of those days when we were at the park with her older sister. My friends are amazing and took turns cooking meals and looking after my older daughter and they still do 18 months later – always offering to look after my eldest.
True friends don’t forgot us…I think the hardest thing is just missing what we took for granted and the life we once led. Every so often I start to climb the walls being in isolation just wanting to break free, but you are right they must come first
Good luck with little Miss Molly and as I am constantly reminded by the doctors technology is coming in leaps and bounds so who knows what the future holds for her.
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So sorry to hear about your little one and love how helpful your friends have been and continue to be.
Makes me want to be a better friend to all my friends starting right now!
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Thank you so much, God bless your little one. If she shows any of the spirit that all the other kids who go through these tough things, then I’m sure she carries you at times, just as Molly does for us. xxx.
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Wow, Molly is one gorgeous girl! She has such a strong and capable mother too, one that will do everything to keep her happy and healthy during the tough times ahead.
My daughter had open heart surgery when she was 7 months old and we had months before and after of keeping her well to be in the best shape for surgery. This meant keeping my son from daycare as we didn’t want germs brought home, avoiding friends with “just a sniffle” etc.
Trust me, those that understand are the ones to keep close, those who don’t aren’t worth worrying about.
Best wishes to you – you are doing a fantastic job.
xx
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Wow, Felicity – well said. I hope Molly can completely beat the bug and grow strong and well. Good on you for being her advocate – that is the best we can do for our children. Bless you both and best wishes.
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Much love to your gorgeous girl Molly and your family, Felicity. God bless you all xx
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Oh Felicity. I can not imagine what you and your family have gone through. You sound like an amazing mum and a great friend. Just by the fact that you are thinking of your friends and you took the time to write this and explain shows what a great friend you really are.
I wish for you and your family nothing but an uneventful life from this point on!! (obviously I mean this in a positive way).
Remember to take care of yourself as well.
Much love and happiness from me to you and your family.
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