I have two great daughters who are different in almost every way. The younger is Lily. She is a funny, outgoing, fairly relaxed, self-assured kid who isn’t troubled by very much. Sometimes I have difficulty believing such a person came out of me, being that I am the complete opposite and more like …
… Georgia, who’s a serious, incredibly clever girl who is troubled by almost everything. She rarely listens (her kinder had us test her hearing three times), can’t sit still (she usually sits on the backs of chairs, or sideways, or partly on the floor) and is always on the go.
She gets hurt feelings all the time, like when leaves fall on her. She once cried for half an hour when her hat fell on the ground. That might have been me.
So, there are three potential things to worry about with a kid like this, and they’ve all been bandied around at some point by different teachers she’s had: Autism, Aspergers and ADHD. We made an appointment to go and see her teacher, since she sees her for so many hours a day, especially when she’s supposed to be concentrating.
The thing about Georgia is this: she tries super amazingly hard all the time. And that’s why I wanted to go and speak to her teacher. Lily is like this little piece of dynamite who goes out of her way to not do what she’s supposed to be doing. Georgia wants to do the right thing but gets waylaid and suddenly finds herself carving a portrait in the dining table or building a fort instead of setting the table. And when that happens, I’m not convinced that she even knows how she got there.
At any rate, her teacher sat down with us and said, “I think it’s really smart that you came to speak to me,” which is teacher speak for, “There’s something wrong with your kid but I’m not allowed to tell you in case you sue me,” so that was a good start. She said she thinks G-dog is hyperactive but of course she’s not a doctor so she can’t be sure, but that if she was a doctor she would almost definitely say it was hyperactivity.
It was selfishly very hard for me to hear that. You see, my ex-husband is of course a huge thorn in my side, bless him, but he’s also incredibly normal. So the fact that Georgia has these issues is all my fault. I am exactly her; I put our Grade 1 reports side by side and it’s as though they were written about the same person. They go like this:
Anna/Georgia is a very bright girl but she spends more time disrupting the class than she does learning and contributing. Sometimes she finishes things early and then sets up a store in the corner of the classroom and tries to sell pencils at a profit. If she could just apply herself she could control small or even medium sized nations, but that will never happen because her brain has already stopped thinking about it.
Maybe you, Anna/Georgia’s parents, should be better at whatever it is you’re supposed to do at home to help children be happier and better people. But because you won’t, your child will forever struggle to finish whatever the hell it is they decide they want to yell and scream about at any given moment until they move on to the next thing for eight seconds.
I have struggled massively with clinical depression and anxiety for, well, my whole life. I remember the first time I had a panic attack. I was eight and I suddenly flipped the hell out because HOLY SHIT I HAVE EYEBALLS AND THAT IS INSANE HOW DO THEY EVEN WORK?!
I’ve spent the past 15 years working on being less depressed and less anxious. It’s like a bumpy road with no actual end and some jerk drives alongside you throwing rocks at your temples several times a day. So I called my mum and asked for her help. And she said, “Yeah, that’s how I felt about you,” because she has also been depressed for most of her life. And if you put her report cards next to Anna/Georgia’s, they’re the same (but with more ‘olde’ and ‘ye’ in them).
And that’s okay, because I can deal with it, mostly. I go to my counsellor and she says, “you’re the most self-aware person I know!” and I feel chuffed because I am awesome at being depressed.
But my little girl shouldn’t have to be.
I look at this kid and she is so tiny and beautiful and she tries as hard as anybody I know and lord help me if she has to do the same thing for her entire adult life.
So now I’m kind of just waiting with my girl who I love so much and wondering if there’s anything I can do now to help her not be that adult, and it is the worst thing there is. I want to make everything easy for her, never yell, always give, wrap her up in a little Georgia bundle with candles and soft music and friends. But I don’t want her to be spoilt and unworldly either, so I have to whip her with canes and leave her in the forest so she can find herself.
I’ve given her the gift of these dysfunctional genes, and that devastates me every time I have to tell her not to do something, or that something she’s doing isn’t appropriate. It’s hard when Lily comes to me and says that her little boyfriend doesn’t like her anymore, but it is world shattering when Georgia arrives home and says she doesn’t understand why the other kids don’t want to listen to what she has to say. Because she has so many amazing things to share with the world, but she doesn’t understand how to get them out, and people are worse off for it.
I have one hope. In all the years and hours and dollars I’ve spent trying to figure out my own mind, maybe I’ve learned a thing or two that could help her. Maybe when she calls me up one day and says, “mum, I think I’m depressed,” I’ll be able to say, “my beautiful daughter, I know just the thing that will help you.”
Anna is the Digital Producer for Australia’s longest running TV show. She blogs here and you can find her on Twitter at @annaspargoryan.
Have you suffered from depression? Do you know anyone who has?
If you need immediate help, you can contact:
Lifeline – 13 11 14
Suicide Call Back Service – 1300 659 467
Kids Helpline – 1800 55 1800
MensLine Australia – 1300 78 99 78SANE Australia has fact sheets on mental illness as well as advice on getting treatment. Visit www.sane.org or call 1800 18 SANE (7263).
You can also visit beyondblue: the national depression initiative (1300 22 4636) or the Black Dog Institute, or talk to your local GP or health professional.







Comments
86 Comments so far
Thanks so much for such an eloquent, tender, funny, heartbreaking, brave piece of writing. I could also relate soooo much to you and many of the below comments. I have past medical history of extreme anxiety (once resulting in psychosis and 5 week stint in psych hospital (2001)), in addition to coeliac disease, and more recently a touch of depression. I am a fully functional busy working mum who adores her two daughters, who are like yours; chalk and cheese. One also has tendency to all of above emotional stuff, both of them with coeliac disease. I share many of your feelings.
I think that, you, as I will, must always remember that our daughter’s emotional lives will be much better managed than ours were, without any doubt, and hence their emotional health prospects will be different too. I like you, attend counseling from a wonderful woman who is very in tune with this situation. I have learnt so much from her, which has retrained my brain, and hence I have learned how to help teach my daughter and develop myself. I am miles more insightful, honest, self-aware, and educated in this area than my parents were/are.
For the bad days…when things are out of our control, or we handle ouselves/our kids in a way we regret, we need to be kind to ourselves. Do our best, delegate as much to others (remember it takes a village, husband/daddy too…and all that). As I said in a comment below, our kids don’t feel as we do exactly, they are not us. Similar, but not with all our 30 odd years of associative baggage tied to each emotion.
I would like to suggest that we are both bloody MARVELLOUS. We should congratulate ourselves for the job we are doing, to the best of our ability. Surely that is all we can ask of ourselves as parents, and indeed, fallible human beings! Sometimes, yes, it feels like the blind leading the blind….but we will get there. Worse case scenario, put a few dollars in the therapy jar for them later
Will sign up for your blog! Love your work. X
P.s. just to put another 2c worth into to the amateur diagnosistic debate…have you had assessment for dyspraxia(or dcd) and/or dyslexia. That is what we have ended up with for my first born….?ADD too, but not autism like things, or the rest…so far! X
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Hi, sounds like you are describing my son. He was recently diagnosed as having sensory defensiveness or borderline SPD by an OT.
I also suffer from anxiety and was also a highly sensitive bright child.
X
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I have suffered for years with depression and anxiety. I have made a concious decision not to have children as I don’t think I could cope if they were like me. I also wouldn’t be able to cope if I had a bout and had to care for children. I am full of admiration for people who manage their illness and raise children and are able to look out for them so well. x
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OMG Anna, your Georgia and my 11yo boy could be twins! I always say that he has no off button, which is simply him not being able to self-regulate his behaviour, plus unable to explain just why he can’t. BTW he got diagnosed with Aspergers and ADHD around 5 1/2, and the learning curve from then on was steep. Honestly, like pushing a 100kg fridge up a hill. Hearing is the first thing they tested but it was normal. The thing is, the spectrum is wide and varied and no two Aspies are ever the same, and of course, there’s the ADHD which I can see emerging more and more as he gets older. My boy is sensitive to smells, sounds, light and various fabrics – it’s a massive sensory overload for him. Changes in routine, panic attacks, sudden and inexplicable meltdowns – these are the manifestation of something wrong, something that makes him worried, unsure or afraid. It’s good that your girl can articulate her feelings, which is the first step in being able to work through a problem.
The main thing you need to do is get educated: no-one tells you where to go for info. I read heaps of books, websites and blogs jsut to wrap my head around my boy’s particular issues. And many teachers just think “well, he’s an intelligent child, he should know not to do that.” God, I could rant for hours about people who don’t understand or even *want* to understand my gorgeous boy’s little quirks. And it breaks my heart when he says, “What’s wrong with me?” or “I don’t understand my brain, Mummy. I need you to help me.”
Read, read, read some more. I totally recommend Tony Attwood’s books on Aspergers, http://www.tonyattwood.com.au as well as Sue Larkey http://www.suelarkey.com who are both leaders and educators in special needs kids.
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Anna, Thank you for this piece. I haven’t read all the comments but I have also suffered mental illness and I do worry about passing it on to my future children.
I don’t have biological children but I have a stepdaughter. She’s a perfectionist and she cries every time she gets even slightly told off. I can’t be anywhere near as firm with her as I am with my nieces (I’m not mean, with my nieces I just say “That behaviour is unacceptable” but this would cause huge drama with my stepdaughter).
She gets upset if she spills a drink, and anything she tries that she’s not immediately perfect at is abandoned with a firm “I just can’t do it!”
This drives me absolutely up the wall and I’m forever having to calm myself as well as her.
Why? Well, because it’s exactly like me. And I know how hard it is.
So I’ve told her and I tell her over and over again. That I know. And it’s hard. But I’m here. It’s all we can do, really.
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I don’t want to be one of those preachy type people, but I couldn’t not post a little comment. My son at age 4 had some issues that I wanted to get onto before we hit school. To cut a long story short we were recommended to look at his foods, which were always relatively healthy, but just not right for him. Turns out my son has severe behavioural reactions to preservatives, additives, and colours, and sadly natural preservatives found in a lot of fruit and veg. We did a 6 week strict diet to get rid of everything in his body (I did it with him) then started on the challenges of introducing foods to test reactions. It was mind blowing. And to see the reaction alone from infant Panadol was scary (completely forgot that it would have ‘stuff’ in it so it was an accidental challenge for us). It could be an easier first port of call to try – though in saying that, he coped much better on ‘the diet’ than what I did eliminating foods!! If u want more info http://www.fedup.com.au All the best with many hugs xox
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I suffer from obsessive thinking (the ‘O’ in OCD) and as a result, or maybe as the trigger, have had anxiety and depression for about three years. Sometimes I think I’m going ok, and other times everything feels wrong and that’s really, really terrifying. It’s all I can do to keep getting through the day one step at a time. I think I do a pretty good job of hiding this from people who aren’t my close friends and my partner.
So it’s nice to hear (even though I know it already) that there are other people other there who also struggle with depression; with thoughts that should be your own since they’re in your own head but they’re obviously not; with feeling a bit crazy.
The important thing about mental health issues is to never be silent. You can feel so, so alone so we all need to make sure we reach out even occasionally to say ‘hey, I’m going through something too. I know how you feel.’
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I have been dealing with something similar with my 12 year old daughter. I have been highly anxious my whole life but it increased severely after my first child where I became agoraphobic. My GP suggested I see a counsellor rather than prescribing medication. I started to get better and went on to have my daughter although I still found some things challenging. My daughter is both different and similar to me. Incredibly shy as a child which I wasn’t but had a lot of fears which I did. She had been fine at school until last year when she started to become more anxious and defiant. I could see that when her mind was whirring it caused her to behave badly. The school suggested she get some help which we organized and which she still continues with in this first year of high school. She still has moments of anxiety and defiance which we have to work through with school. She is incredibly bright but underplays her ability.
I have never really spoken to my kids about what I’ve experienced this last 15 years and decided that I wanted to be completely honest about everything now that they were old enough to understand. I hope that they can see that they are capable of anything with love and support. I have come a long way in 15 years from having anxiety attacks just stepping outside my front door to what I am able to do and achieve now. As many of you have pointed out as a parent who has struggled with anxiety and PND I know that I am the best person to help my daughter to deal with what lies ahead. I also know that if it’s possible for me to accomplish the things I have in my life she will be able to do the same. It makes me stronger in my resolve to not let fear overtake me so she can see that although she may have had a faulty gene she can also start to make new pathways in her brain.
As someone pointed out to me she is a beautiful, bright and unique girl who will find her path in life just as I have. So for now we just take a day at a time:)
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Hi Anna,
There are lots of people offering well meaning advice about possible diagnoses for your daughter, but I just wanted to say, as you probably already well know, that many psychological disorders and dysfunctions have overlapping symptoms and features. I think sometimes it is not so much the label that matters as much as having the right kind of support around and fostering strength and confidence as much as humanly possible.
I think you seem to be doing a stellar job in this regard.
In saying this, despite the problematic nature of labelling people, I think in some ways it can help grow an understanding of what might be causing underlying problems and ensure that children can get the right support (or funding at school if necessary) to give them the best start possible. You are obviously very worried about Georgia and personally think that if you haven’t already, it would be worth having her assessed in case her anxiety actually is a symptom of something else. Anxiety, fixations on certain things (carving a picture in the dining room table), social problems and concentration issues are all indicators of disorders of the autism spectrum including high functioning (Aspergers), in which children can also be incredibly gifted. I’m not at all saying that this is what it is… like I say, many disorders can have similar features… just that it might be worth investigating All the best. X X X.
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I suffer from Bipolar II and OCD. I worry all the time about whether I should have kids. I would never want them to go what I have gone through. It frightens me to think about not being on medication for 9 months. Maybe a Steiner or Monterssori school would be a better fit for your little one. I certainly wished my parents had thought of that alternative for me. I felt trapped in a system where creativity was frowned upon and that you need to fit into the bell curve.
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Anna, such a beautiful piece, and as someone who does know you, I found this so comforting that I am not alone in my own demons and fears that my depression is destroying my child (who is only 9 months) and he will have all my dark days and feelings. The more mental illness is talked about and the stigma is slowly removed the better. I have told people about my PND inparticular – and I feel like I am in the 1950′s and it’s just swept under the carpet, and you are ignored, for the most part. (Thank god the anxiety and PTSD weren’t mentioned!)
May we all experience light, be grateful, and learn from our little people, each other and ourselves, to forge a strength and understanding the world is desperate for.
x
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That is such a lovely sentiment Lou, thank you.
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Have you tried Nlp or cranial osteopathy? Both amazing for calming and healing. Xo
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Anna, this is something my husband and I are struggling tremendously with at the moment…do we have children knowing that not only would the pregnancy be extremely hard (to stay medicated or to not and the potential harm to the baby with either option), but what happens if I pass these horrible genes on the same way my Grandma did to my Dad and my Dad did to me? People say ‘if you want it bad enough, just go for it, at least you’ll be well equipped to look after them and give them advice if the dep/anxiety is passed on’…but many of these people don’t know what it is like to be clinically and chronically depressed/anxious. I would not wish this on my worst enemy, led alone my child. I loved your article, it spoke to me in so many ways. I feel a little less lonely having read it. Thank-you!
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Thanks Anna and thanks everyone for all your inspirational stories. Sometimes it is so heartwarming to read all the wonderful comments people post and this is a perfect example. I join all of you in having had a mother with mental illness and I have been depressed and have had anxiety and panic attacks. I hope my kids are going to inherit my strength so if they do develop these other traits then their strength will get them through.
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Your story resonates in so many ways. Whilst in no way trying to diminish what you are navigating, I’d like to reassure some readers who are contemplating the journey of pregnancy and parenthood. When I told my psychiatrist that I was pregnant he said that it could be a blessing in disguise……I have an anxiety disorder so wondered where my journey would lead me. I responded truthfully to every doctor’s prenatal question, and as a result joined a wonderful ante-natal stress management clinic on offer at the Royal Hospital for Women. I was always open to the fact that I was potentially predisposed to so many things. I’m now the mother of two children and am very much living in the moment. My children have grounded me in a way that I can’t describe. I still have my bad days, but am better equipped to deal with them. I also know that if my children have the tricky parts of me in them, then they will not be alone in their journey…..I will be the first to empathise with them and support them.
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Good for you!
Yes, I’d like to add that. I’d had depression, brought on by hormone probs, prior to pregnancy a few times, and I was really worried I would get PND. But it was all good, I did not, just having genes or hormone problems does not mean everything. And as with you, I knew I coudl get through it if I needed to.
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I was married for 12 years before we discovered that my very odd MIL had actually hidden for 40+ years the fact that she has schizophrenia and bipolar type 1.
We always knew she was strange, but I put it down to a very controlling nature, and being an only child. My husband has Bipolar II, as do my 2 SILs.
Whilst I would never wish to have any other children than the ones that I have now, I sometimes wish I had never married into this family. It has been a long road full of struggles. I have a lot more emphathy for my MIL now that we have discovered her secret, but I live with fear everyday that my children will inherit these tainted genes as I have seen the drama and anguish.
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Sorry, should point out that being an only children doesn’t mean you have a mental illness. As an only child she was raised in a very odd way – never allowed to go to school as her Mother (same issues) wanted her to stay home and play. As a result, she grew up completely surrounded by adults, no friends as local people would shun her. It was a vicious cycle.
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I think that perhaps you could try a different and gentler approach with schooling, possibly Montessori if it’s in your area or maybe Steiner? I think she sounds like a beautiful little human and will probably go on to do wonderful, unique things. x
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Anna, I am 35 years old and my mum suffers from anxiety and depression as I do. I have spent all day with her today, holding her hand, telling her there is nothing to be afraid of, telling her the anxiety will pass, watching her cry whilst i feel helpless. I am scared of having children, one because i may pass this gene on and two because i am petrified that my anxiety will get worse during and after pregnancy, so i keep putting it off, yet aching for my own child. It’s days like today when i am tired and drained from constantly being their my mother, that i am reminded how much i love her, and that no matter what we have to go through together, i never regret for one moment that she is my mum. I don’t care that she passed this awful, horrible thing called anxiety on to me because despite these low times, there are lots of good times, lots of laughter, lots of love and support and lots of understanding & kindness.
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In my experience, the pregnancy hormones calm you down significantly if this helps.
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I can totally relate. I am a mum of 3 boys, all with various initials after their names identifying the various disorders they have. I have also battled depression. My boys are all gifted, two have sensory integration disorder, two have dyspraxia, one has auditory processing disorder and one has borderline Aspergers. Yes, a lot of labels, and labels that I rebelled and fought against. However, the BEST thing is that these labels have given me freedom from my demons. After years of feeling guilty for not being normal and trying to fit my square self into a round hole, I now have a much better understanding of the exceptional nature of the human brain. I love the Americanism “twice exceptional” which describes kids that are academically gifted but have a learning or social difficulty going on at the same time. The vast amount of information and support currently available wasn’t around when I was growing up, hence the feelings of failure and depression. My kids will also always feel different, but I am determined that they will feel “special different with unique talents” rather than “dorky different that needs to conform to be normal”. It has been a long road for us and by no means easy. I guess my main message is that the more I learn about my kids the more I learn about myself, and for this I will be forever grateful.
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This, among other reasons, is why I’ve chosen not to have children. I studied psychology, I know the yays and the nays of depression being genetic, the predisposition that some say isn’t there and others say is fundamental. And I know the reality of the genes I have, the ones that have been twisted and twirled and tormented from my great grandmother, to my grandmother, to my mother, to me. And I don’t blame her, my mother. Not anymore at least. The thirteen year old me with the cuts all over my arms and legs that still won’t go away no matter how hard I scrub at the scars, she might have blamed her. Screamed “you should never have had me” and slammed a door or two, but in retrospect I don’t blame her for having me, I just know that this is what I’m supposed to do. I’m not strong enough now, nor will I ever be, to watch any child of mine self destruct the way I did. Some are brave enough to take on that challenge, but I know I’m not. This lineage of disease and devastation stops with me.
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That is the way my thinking is headed. It is such a difficult decision to make, but i feel it is the selfless, right thing to do. and that is just for me in my circumstances, i don’t judge others who do make the decision to have children.
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I do not have any children, but I am the child of a single parent living with mental illness. I have been blessed with so many of my mother’s wonderful traits, and also her demons, so I see myself in your story.
All you can do is just be there for her, and show her she’s not alone.
Both my sister and I have struggled with anxiety and depression and we cannot talk to our mum about it. We know she feels guilty and thinks it’s her fault, and her response to that is to shut off and pretend it’s not happening. It took about a year of talking around the issue to even accept my diagnosis, but she must have seen it coming, being a counsellor herself.
If I could talk to her about what we both go through, I’d tell her no part of me would ever blame her. And I wouldn’t have felt so alone and crazy through those first panic attacks. We can talk about what medication works best, what doctor recommended what, but we never talk about the anxiety or depression itself. Just like she never did, she was always just ‘a bit sick today’.
So, even if you feel like it’s not fair, and you don’t want to see her go through the same thing, it’s better for your daughter that you DO see her go through it and hold her hand along the way. It seems like you’ve really accepted that, which is wonderful to see.
Thanks for sharing your story.
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Oh my God…that is sooooo my story too! Thanks for articulating my family dynamic re: elephant in the room mental health family history so well. We are not alone.
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Anna, After reading a few suggestions I think it wouldn’t hurt to check out the SPD – and she does sound gifted and talented too, the one thing I feel is that she is not yet depressed based on what you have said, anxious maybe, but not depressed, however finding a way to help her achieve at school and in friendships will certainly help her to not become depressed! Foster her interests and celebrate what makes her different, because she sounds absolutely amazing, and if you were like this too then so are you!!!
Anna, an OT can give you some tips to help Georgia sit for a bit longer in class (a sensory pillow to sit on, elastic band on the chair feet to hook her feet into and provide feedback as she moves her feet, and a piece of fabric of her preference cut so she can sit on it at mat time and touch the material) OT’s have great ideas like these that can help no end!!
I thank you for sharing your story and situation, and hope some of the responses here help and give you support.
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And gifted and talented kids are often highly sensitive too, both can be closely entwined.
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Need some advice – My son has been diagnosed with SPD (at the age of 10) and we duly went off to the Occupational Therapist for about 8 sessions. Once the sessions were over she virtually said that was it. I tried reading a SPD book but everything seemed to be focusing on young kids. He is now 11 – any recommendations?
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Hi Amber,
Sorry only just saw this… Can you go back to your GP/Paediatrician and ask them for more help? I know you are only entitled to a small amount of OT on medicare, but that may be yearly…
I know there is a cheaper OT practice available through the Uni here in Bris (as you can get students either watching, or doing prac) not sure about elsewhere. I don’t think 8 sessions sound enough, so don’t give up, keep asking for help.
Make sure school knows about the diagnosis, as they should have some processes they can put in place to help too.
Maybe look on-line for a SPD support group, they too will have many ideas and experiences that might help.
Good luck, and don’t forget to look after yourself too
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thoroughly recommend OT and sensory experts to help your child concentrate. I would also suggest a book called “The Out-of-Sync Child” by Carol Kranowitz which is excellent reading.
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Wow thank you so much for this post and then responses. I have been struggling for so long with my sons behavior….
By the 4th term at 3yo kinder he started to change & respond in a very emotional & dramatic way…
All the little signs along the way, not looking you in the eye, not listening, unable to stay still for too long, very clumsy, floppy, easily tired, unable to hold my hand etc… I thought that these things were just because he was more laid back (lazy) than his brother & sister and it wasn’t until his dramatic change in behavior that I started to seek answers…
2 and half years later including every specialist test that I could think of and the pediatrician recomended a diagnosis of “naughty child” & General Anxiety I read this post & discovered SPD….
Our lives have been transformed since visiting the only specialist not yet tried the OT…
My son is such an amazing little boy at 5 and a half & I am so thankful to you all to have read your posts & subsequent replies…
Thank you for changing our lives…
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Anna, your article had ringing bells and red flags all over it for me.
I have suffered from depression on and off all my life. It came to a head with PND each time after the birth of my 3 children.
The thing is this – you know what it’s like to suffer from depression, so you can help Georgia. You will be able to recognize the bad times and what triggers them. You will be able to help her through the teenage years when it becomes(as you know) even more difficult with hormones making you crazy as well. People who have never suffered from depression can have that ‘snap out of it’ mentality. As we know, that isn’t possible and we wish it were, especially for our children.
My eldest is 19 and sadly he has ‘that’ gene. he also has Aspergers.But rather than beat ourselves up about what we have little say in, I think we are far better equipped to deal with the challenges ahead. My other two kids are much younger and I see signs in my youngest as well.
Look at what you have achieved in your life so far. I’m sure Georgia will also make her way in the world. especially as she has a Mum who gets how she feels. That’s the best gift in the world.
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Please, PLEASE do some reading on Sensory Processing Disorder (SPD), or Sensory Integration Dysfunction. Your daughter presents a lot like my daughter (and funnily enough, me like you). Bright, but with concentration difficulties, incredibly distractable, but then can sit and focus when she wants to, when her body lets her. And so, so sensitive. SPD has been music to my ears, it accounts for all of those ADHD behaviours, and all the other behaviours that ADHD cannot explain. It is a positive and empowering, rather than negative, diagnosis, made by an Occupational Therapist with many practical things you can do for your child to help her cope (and you cope) and build those missing neuronal links. It has been written about since the 70′s but for some reason, generally isn’t on the medico / psychologist / teacher radar. Read up, see an OT, it may be the answer you, your daughter and perhaps your mother have been searching for all these years.
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Anna, you brought me to floods of tears and have exactly put into words my fears for my two children. My family has a very strong history of depression going back at least three generations. At times I feel almost paralysed at the thought of either my son or daughter struggling even a fraction of the amount I struggle each day. My heart breaks to think my beautiful Miss 2.5 and Master 8 months may have inherited my inbuilt shortcomings.
Depression, anxiety and borderline personality disorder are some family traits I desperately wish to end with me. I try desperately to make sure my children are exposed to as little of the dark part of my headspace as possible in the hope it may help me to give them the strongest possible foundation in life.
Thank you for reminding me that I am not alone in my struggles xoxo
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Firstly, I’m not a doctor and have no medical background, but have you heard of a disease called pyroluria or pyrroles syndrome? Google it and see if any of the symptoms are familiar. My daughter had huge anxiety issues (but no ADHD) and, at the age of 10, I could see we were headed down a messy path which well could have ended in teen suicide. Thankfully, she was diagnosed with this very treatable condition and improved within a week. She hasn’t looked back.
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I have also recently been diagnosed with pyroluria thanks to my nutritionist and had almost immediate improvements with my anxiety and panic attacks…very interesting stuff after 40 years of not being able to explain myself.
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I should also mention that pyroluria is hereditary…
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Few, if any, medical experts regard pyroluria as genuine, and few or no articles on pyroluria are found in modern medical literature; the approach is described as “snake oil” by pediatrician and author Julian Haber.
http://web.archive.org/web/20040422065311/http://www.suntimes.com/special_sections/ritalin/cst-nws-ritalt21.html
http://web.archive.org/web/20070211000315/http://www.clinicalanswers.nhs.uk/index.cfm?question=1208
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I used to think it was my son I should worry about, but after reading this I now realise it is my daughter…. my little girl who when a tot was fearless, curious, laidback and happy, now gets upset over the smallest of things, HATES change, is very clingy to us. These things don’t happen all the time for example her ballet class is the only place I know I can leave her for any length of time without her getting anxious about my leaving. She is finally settling in to prep, but she never settled in to kindy or daycare, even after 3 years. Every day she would ask, mum where am I going today, even though it was the same routine week in week out. Even though it isn’t all the time, I will still worry about the road she is on…
Damn gene pool! Depression is so deep rooted in my family though only being recognised and treated in my generation. My father and his sister married a sister (my mother) and brother from another family and therefore my cousins and my brother and I and extremely similar. When my male cousin talks I hear my brother exactly and they both have bi-polar. My female cousin and I are the same but both with depression. Other cousins on both sides of the family have mental illnesses so we have assumed that it comes from both sides. I have written out my medical history, as it doesn’t stop at mental illness unfortunately, so that my children will know what medication I am/was on should they ever need to know for their own benefit. It saddens me too to think that I have potentially passed on such a minefield of medical issues, but knowledge is power, so without a doubt I will be there with them every step of the way through whatever is thrown at them.
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There’s not a lot you can do except just be her mum, love her and be there for her.
I suffered through exactly the same in primary school and high school, before finally being diagnosed with bipolar disorder, ADHD and having significant anxiety. It has taken me 4 years post-high school to manage this to the point where I can go to uni and actually excel… and the best thing my Mum could do for me was to keep hopeful, even when I wasn’t.
As you would probably know, it’s hard when you are depressed to ever imagine that you could feel better. Medication and therapy seems such a waste of time, and you feel like you’re broken, forever and nothing will fix you. It really helped to have my Mum as my “eternal cheerleader” – telling me that everything would be okay, that there would be a day when I would feel better, when things were easier, when I could handle it. I’m still not there, but having my Mum believe that I can get there.. it really helps.
And I know exactly what you mean about the idea of “dysfunctional genes” – my partner and I have bipolar, depression and ADHD running through our families, and given our individual histories, we’ve been told that it’s most likely our child would have the same. But you are right – who better to parent a child with such difficulties as someone who has been there, done that and come out the other side?
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maybe she is highly sensitive? there is a book i read recently about highly sensitive people – basically the are much more affected by things than others. there are lots of coping strategies in the book to assist
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What’s the book called , Miss Mac?
Sounds interesting!
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The highly sensitive child and/or the highly sensitive person written by Elaine Aron – they are fantastic resources to help explain our special personalities.
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What’s Australia’s longest running TV show?
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I don’t get it? Am I missing somsing?
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Anna, you have been in training to be Georgia’s mum for your entire life. Every memory, hurt, joy and fear you have dealt with will help you help Georgia in her journey. You cannot live her life, but you are uniquely qualified to understand and empathize. She is very very lucky and you will no doubt help each other along the way. Good luck.
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Yes, totally agree. And as an acquaintance said to me a few years ago, which I thought was quite profound, was that “She is not you. What she feels is not the same as what you feel on her behalf”. It may look similar, but remember we had 30 something years of associations to attach to a particular emotion, she doesn’t have that. We empathize so much with our kids, but remember, their experiences are NOT the same as ours, as they did NOT have the same parents that we had. They have very loving, tuned in, insightful, self aware, albeit imperfect parents….and I believe that will make all the difference!
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Well I am bawling right now. I have four kids, two are girls 2 & 4 who are exactly like you described. It breaks my heart one of them may go through what I have for nearly 30 years. Especially when they have to contend with online scrutiny as well. Hopefully like you, I can help navigate through the challenges required if necessary.
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Anna, I so feel for you. I have suffered since teenage years with anxiety and subsequent depression. Although I know of no one else in the family with issues, one of my adult children has bipolar and while very bright has had difficulties in early adulthood. Reading comments further down, the hypnosis thing sound interesting and CBT is brilliant.
I am managing my issues well now and hope to stay that way, not so easy to help your children and it hurts so much wanting to help and protect them and knowing that you are, in a way, responsible. I think it is a lot harder in the modern world and we have such high expectations of what it is to be successful in life. If myself and my children can be productive members of society, feel secure and content, then we will be happy.
As parents we can only do our best with the resources we have and feeling guilty benefits no one.
I identify with your thoughts. Can I just say that you show great insight into the situation and are obviously so intelligent and caring that your daughter’s outcomes will be the best possible. It is hard work though and especially difficult when you have your own problems. Good luck.
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As someone also awesome at depression (well bipolar in my case) I just have to say it’s nice to know I’m not the only one out there. So many people just struggle through without being able to experience the awesomeness of life.
I hope your daughter can find a way to deal (I went through similar stuff when I was in primary school).
Much love to you both.
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I am so thankful for inheriting my anxious genes because I’ve been truly blessed with the gift of empathy… Without that, I could not be a counsellor that knows how to walk beside the clients I see and help them through each step. Compassion and understanding for other’s struggles is a gift your daughter will be blessed with too… Along with a caring and kind-hearted mother who can comfort her fears with unconditional love and support.
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Anna and all here, can I ask a question?
Has anyone here tried hypnosis and what have your experiences been. I have a sister with depression – and my Nan’s family had it as well.
I guess if the cure was hypnosis we’d all know so by now but I’d be grateful for any feedback.
Cheers
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Hey Caro
Thanks so much for your feedback further down the page, I had a little teary over it!
Hypnosis has actually helped me more than any other therapy I’ve tried, and when done in combination with CBT I think there is an awful lot to be gained from it. It was especially good for my anxiety. Definitely worth a try.
Anna
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Thank you Lovely, I’ll pass that on …. it was just a hunch that I had and I’m so happy to hear that it’s worth a shot.
You’ve written a beautiful piece that’s given people somewhere to share their worries and there is no worry on earth greater than a mother’s fear for her children.
I wish you all the very best and I’ll be following your breakfast blog! xoxo
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Hypnotherapy can be very useful in the treatment of anxiety however it is contraindicated in cases of moderate to severe depression. Your sister would need to ensure her depression was in a fairly stable phase and seek a psychologist who does hypnosis. But don’t let that put you off, hypnosis is awesome.
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I hear you. My maternal family has a long history of menral illness, which is only really being recognised and treated in my generation. So that’s my Grandad, my mum, 3 of my aunts, 2 of my uncles, my brother and at least 7 of my cousins – they are only the ones I know about. I struggle with anxiety/depression that kicked in when I hit puberty, and I hid it from my family for many years in a misguided attempt not to hurt them. I can see hints of it in my 5yo daughter, and I have to try and prepare myself to help her if she has the same problems I did.
But overall, I think I am a better and stronger person for my own struggles, and although I would never wish them on her I know that she will be as well.
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There are some pretty dodgy genes lurking in my family tree too. I see slivers of them in my children and the thing that I have done to try to remedy them, is to keep a stable home. My chaotic (moved all around the state and was always the new girl at school, had screaming fighting parents, violent step parent and psychotic mother) and dysfunctional childhood only served to exacerbate my personal genetic characteristics so I’m hoping a calm, stable, happy home will make a difference for my children. I have also let go of my ideal to see my children complete their HSC’s by allowing one of my children to leave school before year 12 to save all the stress and upset and he is now doing something that he is passionate about at TAFE instead. School just wasn’t the right place for him and I am astounded at how happy he is and therefore how unhappy he was. Don’t get me wrong, our house is normal in that it has more than it’s share of stress and character building incidents/situations but I have made every effort possible to keep our home life consistently stable and so far it’s paying off. I have also decided not to pin the baggage of my genes onto them by ensuring them that their stable life has made all the difference because it’s amazing what the power of belief can do.
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They don’t all have to go to uni. Anyway, even if they leave school before the end, they can go back to schooling and sometimes that works out better. My oldest is 25 this year and in 3rd year uni. She did far better waiting til she (and her brain) grew up properly.
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Anon, for a lot of sensitive/special needs kids, school is hell. Sensory overload, unsympathetic kids and teachers, the overemphasis on social interaction… truly heartbreaking. I recently moved my 11yo from a huge local public school (who professed to be open to his issues but in reality, couldn’t be bothered implementing changes) to a small private one and the transformation is amazing.
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This is a beautiful article and I relate to it very (too) much.
I just wanted to share the the name of a wonderful book which is fast becoming my bible:
“The Optimistic Child” by Martin Seligman. Based on sound science, but also practical and accessible. I cannot recommend it highly enough.
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My mother and I are exactly alike – we’ve struggled with mental illness since we were young. I’m in my 20s, and suffered anorexia and bulimia throughout my teens, as well as severe depression in my last year of school. It’s much better now, just trying to work through my anxiety. Mum had post natal depression with all of her kids, and has been on anti-depressants since she had me (I’m the oldest). I’ve spent a lot of my life looking after my siblings while she yelled and screamed about the speck of dust on the floor. My siblings are well adjusted and easy going – I’m the biggest perfectionist, stress over EVERYTHING and worry constantly. Mum’s Dad was the same as her, and Dad’s grandad was bipolar. we’re a pretty f***ed up family…
No-one means to pass it on, don’t feel bad! I’m petrified of having kids though, I have this horrible feeling PND is going to sneak up on me.
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Don’t be worried about having children, if anything it will make you more aware of what to look out for. Just make your midwife and OB aware of your history and look after yourself.
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Ah, the contribution of genes! Of our 3 children, 2 have coeliac disease (me!) and 2 have bipolar disorder (husband). Yes, one lucky winner copped both! (She still speaks to us
) And before someone complains about the children being weighed down with labels, they’re all adults and hopefully won’t see this post and recognise themselves.
Anna, it is hard, but you have insight and support, so that makes you lucky. You’ll feel guilty and you’ll worry, but I’ve always felt that’s making it about yourself, which doesn’t help the kids.
It’s a difficult journey, but then most worthwhile things require some hard work, don’t you think?
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This could have been written by me… my girl will either rule the world or be destroyed by it. It is so hard to just stand back and watch, hoping that she turns to me for advice as she comes to the various crossroads in her life.
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Before jumping to conclusions that your own baggage leads you towards, can I suggest an alternative explanation you might want to peruse? Your daughter might just be really smart and really bored being taught the way many kids are (‘here, fill in another worksheet’). Clever kids often have poor working memory. Hence easily distracted to more exciting things like carving up tables. Is that true abt setting up the stall? How old is Georgia? If she is about 9 this all sounds familiar. Wheels often fall off in Year 3.
maybe I am right off track but labelling a little girl with all this baggage … Dunno. You may just be creating your own reality.
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Thanks for your insight
I’m possibly more conscious (and wary) of doing this than anything else. Fortunately the years of depression have given me some ability to be objective and to recognise the actual signs, rather than just my own paranoia. Or at least, I hope they have!
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Anna,
Do me one favour, will only take 5 minutes. Google ‘gifted children’. Find a checklist of behavioural symptoms. See how many you can tick off for Georgia. If you can rule it out completely, so be it. But it maybe worth the 5 minutes if it is at all possible that this is Georgia. Maybe it is this as well as the predispositions you think she may have inherited. Maybe the behavioural issues are a symptom of a frustrated brain.
I can’t find the website I found that was so helpful, I will keep looking but just my first google showed up this:
“They often have seemingly boundless energy, which sometimes leads to a misdiagnosis of hyperactivity. ”
Sometimes gifted kids that have been missed don’t tick all the boxes. Sometimes they act out because they can’t relate to what is going on around them, they are bored and miss building blocks so ironically look like they have learning disabilities when actually it is just the opposite.
Anyway, just some thoughts …
Something is telling me this could be worth your time. I don’t know what or why … Maybe its just a rainy Saturday and I am off on a flight of fancy …
A child that thinks it is a good idea to try and sell pencils in class is pretty amazing.
EDITED: This website is good: http://www.stephanietolan.com/is_it_a_cheetah.htm
Another story I remember, a particularly smart kid waking up his parents in the night to ask how we know we are alive when we are asleep. Similar to your eyeballs story! Smart kids think about things like this …
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I was just thinking “what an amazing child to set up their own store and sell pencils”!! I wonder if she would do better in a Montessori environment, whatever you find, just keep enjoying her, she sounds amazing!!!
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You have just written about all my fears for my unborn child – I’m due in 3 months and pray that my baby inherits its dad’s laidback relaxed attitude and clever inquisitiveness, and probably not very much from me- aside from a love of travel and trying new things…
I’m sure your daughter is a star and she’s super lucky to have a mum as aware of he difficulties she may face as you have faced them yourselves – I don’t think my parents had any idea of what to do with me!
Good luck xxx
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Anna, such a moving post. Just yesterday I was asking my psychologist whether I will damage my daughter because of my anxiety. He said in the words of Leonard Cohen ‘there’s a crack in everything (and) that’s how the light gets in’ he also said the same thing about self awareness making one a good parent. Would you rather know someone like you, insightful, funny, sensitive and thoughtful or a bright, shiny, two dimensional person – you’d pick the one like you – wouldn’t you?
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Love your comment .. It is gold
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sounds like my son exactly. he has mild asperger’s.
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Hi Anna,
I have zero advice to offer but I just wanted to say what a truly wonderful piece you have written. You have captured your journey/struggle beautifully and I just know I’ll be thinking about it all day.
xx
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So much of your story reminded me of my brother and I. My brother is the most popular guy in his year level. He is easy-going, relaxed, kind of just goes with the flow. If something doesn’t go to plan, it doesn’t bother him at all. He just adjusts effortlessly into what is going on. He doesn’t stress over small things or things he can’t control. I, on the other hand, don’t only freak out about small things, I full on panic about microscopic things. I hate change, am rigid, a perfectionist and stress over everything. I’m sure my teachers were concerned about me. For example: in kinder, everyone was finger painting but I refused because I ‘didn’t want to get my hands dirty’. I suspect that raised alarm bells.
Your daughter is lucky to have a parent who understands what she is going to go through. You will be able to help her feel less alone, and will have the explanations as to why she seems different to everyone else, and why some things that come naturally to others are so much harder for her.
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My husband and son = you and your daughter
– I have had to learn VERY quickly about how to parent within this foreign (for me) realm.
Although I’ve at times wished my boy didn’t have to battle such grown up demons, I can’t change it. So here’s how I choose to view it (this is repeated from a gratitude post here on Mamamia):
Dear 12 year old son who *does* sweat the small stuff,
Thank you for teaching me patience and educating me as we face your clinical anxiety and panic disorder together. It has forced me to slow down and see the world through your eyes, and what a wonderfully sensitive, colourful and thoughtful one it is.
I am grateful for the precious hours we spend together, with your therapist and in the still of the night, building the tools you need to live a life that is enriched. Gifting you my calm and my ears and my arms during your times of need has been the most important thing I’ve done in 2011.
Love Mum xx
I truly believe that there is amazing beauty to be found in the challenge that is depression and anxiety. Best wishes to you and yours along the way!
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That is so beautiful!
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Kirsten that is really beautiful and left me quite tearful. Your little boy is fortunate to have a mother with such an optimistic approach (even though I’m sure there are plenty of down times). Your openness and insights will be a wonderful guide for him.
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I got goosebumps reading that. What an amazing Mum, and lucky son>
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Anna, I hear you so very load and clear, I have two boys C2 -6 years, Happy Confident, deep thinker, gorgeous looking, charms the world around him, good at every thing and anything C1 – 8 years old, both boys, and could not be more different. Stressed, anxious, ADD (well so we have been told) cannot sleep, currently being tested for Aspergers, Av – High IQ, shocking communication skills, His school report card is Identical to mine….. Child name – would do better if he/she concentrated, Child name – is very talented however does not apply him/her self…………. I spend every day trying to equip him for depression if it ever sets in I explain about healthy body/ healthy mind. I ensure he does sport as sport is always good for a healthy mind, I relay stories of it will be ok, I tell him of fun things i would do in play ground if no one would talk to me at school that day, I try my hardest to build that resiliant child, as I fear in my heart of what he lives thru every day with his Anxiety which is a 1,000 x worse than mine was -
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