Two years ago, Andrea Carlaw noticed something strange.
If she stood up for more than a minute or two, she would feel extremely light-headed. Almost as though she was going to fall over.
Then only 24 years old, Andrea began experiencing stabbing pains in her chest and it hurt to breathe. Next, it was tingling in her hands, her face, and her calves. Eventually, she couldn’t see properly.
Speaking to Mamamia, Andrea says her pain appeared “out of the blue”. From that day onward, her pain has always been at least a two out of 10, but will spontaneously progress to an eight or nine.
Over the last two years, Andrea has visited seven GPs and multiple specialists.
At first, her family GP assumed it was bad posture. But as the pain worsened, it became evident that the cause was far more complex.
On three occasions, the pain has become so unbearable she has had to call an ambulance. Andrea says that after the third time she decided it was “the last time that I will ever, if I can avoid it, call emergency.”
Andrea Carlaw was just 24 when she began to experience chronic pain. Image supplied.
The paramedic who arrived seemed impatient and rather unconvinced that Andrea was physically unwell. He ran a series of tests at her home, informing her that everything was normal and "it doesn't look like there's anything wrong with you." He felt that her symptoms aligned with anxiety and did not require medical assistance.
She says the feeling of not being believed was "...so awful. I cried for the entire afternoon. And then I really, really struggled to go to a new GP or talk to anyone. At the same point you think, am I making it up? I don't want to be wasting people's time. You doubt yourself."
Top Comments
Dear Andrea, get your doctor to send you off to have a bone density test for hands feet then xrays for your hands feet legs back to rule out rheumatoid arthritis or curvature of the spune then a full blood test specifically for Fibromyalgia done fast 10hrs going after 12hrs won't have a proper diagnosis. See your gynecologist have a full check up including lapro plus other internals done as well as bowel, a menopause blood test done, they'll all rule out cancers etc. Then get your gp to give you a referral to a Rheumatologist Specialist take all your tests with you then he/she will do their own tests to confirm what exactly you have. I know cause I've Fibromyalgia these are what I had to put up with especially a decent gp I have to go further to see my drs saw yrs ago & hated some of the negativity from their staff, one of my gr8 drs moved to NSW. I can't really say much as you haven't really described your systems the type of pain, where it is, no matter how small sharp piercing stabbing burning acute pinching etc. Of course you should be doing exercises even if it's yoga tai chi they help with muscle function even if you wake up in pain like I do .. I use to be advanced but since a fall 2005 gotten heaps worse also have a curvature of my spine my right side I'm due for an xray to see it is curved more due to uncomfortability lying on my side. I was also curious if you might've been bitten by a spider or a bug which also have those same symptoms and if you were ever tested at all for an allergic reaction. Also when you see a Rheumatologist Specialist he'll run his own tests to see whether or not you have Lyme disease, Fibromyalgia or any other type of Rheumatoid symptoms afflicting you. I'm surprised you're not taking any form of medication, doing no exercise as you'd stated. Why wait do it as I said yoga taichi are the best to one's own limitations. When you make an appointment ask if anyone treats for fibromyalgia or ask someone who knows a gp or clinic that has knowledge and helps diagnosis a person for what you're suffering from and be highly specific. I'd suggest write down daily your symptoms where time how long what you can cannot do. What you yourself have tried to help yourself etc. I've personally done this heaps of times myself to both my gp and specialist. So they're aware of everything that's happened and most of all my pain the areas whether or not I've been active or not what type my pain level is where how if I was doing anything at the time ..like a journal. You get the gist. Goodluck in your endeavors and finally find out what you have. I was born with Fibro all the systoms always in pain but was diagnosed wrongly especially not testied for fibromyalgia as I mentioned beforehand in 2005. Goodluck Andrea and let us all know the outcome.
I understand al you have written. Have you been checked for P.O.T.S or CRPS or FM or RA or Lupus? Just putting them out there... I am in NO WAY saying you have these. It took over 10 years for me to get a diagnosis and no one should have to take that many scans, gp appoint, neuro, et ect and the most famous comment from nearly EVERY doctor including specialist "IT'S ALL IN YOUR HEAD" I hated those 5 words cos I heard it many times... Keeping going, keep searching you will get there!