I became a new mother to a baby girl on 30th October, 2018. Sadly, Scarlett passed away nine days later.
You hear so many heartbreaking stories from mothers and also fathers but I never thought this would happen to me until it did.
The hurt of losing our baby Scarlett is still raw. My partner and I had a very emotional pregnancy journey where it was discovered our baby would have a rare heart defect called truncus arteriosus, with ventricular septal defect. Later, we were told she would have an atrium septal defect as well.
At 32 weeks, we discovered she would have a digestive blockage in the duodenum called duodenal artresia. She would require two separate surgeries to repair her heart and her digestive blockage when she was born.
I had also suffered polyhydramnios as a result of her digestive condition, and required an amnio reduction to prevent premature labour at 34 weeks. The morning after my second amnio reduction at 36 weeks, my waters broke.
My partner and I rushed to the hospital at 4am and after hours of waiting for labour to come and trying to be induced, Scarlett’s heart rate dropped on two occasions. I had an emergency c-section and she was born breathing.
She was sent to the Neonatal Intensive Care Unit three hours after delivery. Once I was discharged, I stayed in the post natal ward. I spent the first week of her life stressed and crying daily.
My partner worked to keep the income flowing whilst I was in hospital with Scarlett. She had been moved to Pediatric Intensive Care Unit on the first day I had arrived where she was on a CPAP machine to help with breathing. Two days later she was sent to another ward, and they wanted to see if she could breathe on her own. After an emergency call for her room at 3am, her breathing became more rapid and she was sent back to PICU to be put back on the CPAP to help her breathing which stabilized her.
Another two days past and the doctors wanted to send her for her heart surgery at seven days old. We waited six hours until we received a call from the surgeon that the surgery went well, however, upon her return we received another call to say that something was wrong. During the routine check on Scarlett, the doctor was concerned that her pupil on her right eye wasn’t dilating and was smaller than the left side. She was sent for an emergency CT scan five hours after her surgery.