On Friday night sunSCHine’s annual fundraising event was held at the Hyatt Regency in Sydney.
So far the event has raised an amazing $750,000 to support the Pain and Palliative Care team at the Sydney Children’s Hospital, Randwick, whose staff look after Australia’s sickest and most vulnerable children.
The staff who, every single day, try to make tiny children’s lives just a little bit more comfortable; a little bit happier.
Speaking at the event were Maria Heaton and Gina Sideris, two mums who have had first hand experience with the Pain and Palliative Care team, and who are grieving the babies they lost.
Heaton has, crushingly, seen two children die in the ward. Her daughter Tiarna died in 2003 when she was just three years old, while her son Tristan passed away in 2014 when he was 17. Both children were diagnosed with Isolated Lissencephaly Sequence, a condition where the surface of the brain is either smooth or has abnormal folds.
"Having a diagnosis of Lissencephaly meant that Tristan and Tiarna were both like quadriplegics, they needed 24/7 care and were medically very fragile so needed constant and close monitoring," Heaton said in her speech.