It was almost two weeks ago that I received the call telling me my son had been approved for National Disability Insurance Scheme (NDIS) funding and a week after that I was walking into my first meeting to discuss Giovanni’s needs. The first thing I noticed as I was led into the room by our case worker was the box of tissues on the table.
Yep, I’d be needing those.
I didn’t need the tissues because I felt sad or overwhelmed. Those feelings were snuffed out long ago by acceptance and appreciation for who Giovanni, eight, is and how lucky I am to have him, autism and all. The reason I’d need the tissues is because finally, I felt like I wasn’t alone. I was now part of a system of government-led professionals whose job it was to help me figure out exactly the services Giovanni needed to access to reach his full potential.
My days of struggling alone are in the past.
Giovanni, 8, has Autism Spectrum Disorder (ASD) and after a confusing year-and-a-half we finally feel on track to help him reach all his goals so he can reach his full potential. Now we have to work on the rest of the world.
While most of Giovanni’s interventions and therapies aim to make his participation in conventional society easier for him and more acceptable for others, it’s also time the world met him halfway.
Top Comments
Wonderful article. I'd love to see more articles about/from the perspective of parents with special needs/disabilities as well.
My daughter is in preschool with a beautiful little boy who is diagnosed with autism. He tends to lash out violently to his teachers (not the kids) wipes faeces on the wall in the toilets and can't follow instructions. I encourage her to include him when they're playing but I would love some advice as to how to advise her to how interact with him. He's truly a lovely little boy but she has told me she's a little scared of him.