parents

A father's beautiful letter to the baby girl he lost this week.

 

“All I want you to know is that mum and dad love you so much and that it’s your time to rest your beautiful little soul.”

Maddison Fulko Lim was diagnosed with a rare and terminal brain condition only two weeks after she was born.

The disease —  Ponto Cerebellar Hypoplasia — meant Maddy would never be able to sit, hold her head up, crawl, use her hands or smile. She would never develop as other babies would.

Baby Maddy. Image: Our Maddy Paddy Facebook.

Knowing she only had a short time to live, her parents made a bucket list of experiences they could share with their baby girl.

Take her on a plane – check.

Climb to the top of Mount Kosciuszko – check.

Get a photo with Kyle and Jackie O – check.

Go to the zoo – check.

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Sadly, 232 days since they first held their baby girl, Maddy’s parents have said goodbye.

As her family explained: “Maddison grew her angel wings on Friday 26th June 2015 to now share her cuddles with our Nan Patricia.”

In a Facebook page dedicated to his daughter, Maddy’s father Kim Fulko Lim published a touching letter to his baby girl.

“My Maddy baby, (it has) only been 5 days since you left us and 5 days we have felt this emptiness. Our home, our bed, our hearts are not the same without your physical presence here with us, mumma and I miss you so so much! We hope you only feel and know we had tried to do the best and the most we could for you and love you abundantly plus more. You’ve touched our lives like no other and not only ours but everyone that surrounded you in the short time you were here with us.

You are a testament to our lives and we will live on your legacy through your adventures here with us. You have inspired me in so many ways and I know others too.

While it’s not fair you had to suffer and endure the same thing everyday for the last 8 months you held on so strong, you fought so hard in which i believe you did so to make daddy’s 30th, so memorable sharing laughs and jokes with our beautiful friends and family that day. The fact that you took the burden on yourself and left this place in your own time makes you a remarkable person – in which I hope to be that person you are one day.

All I want you to know is that mum and dad love you so much and that it’s your time to rest your beautiful little soul, let nanna Patricia look after you and spoil you, make sure Pacho takes care of you like a big brother like he was for me, play around with Archie and make sure you have the best time as best friends, find Pop Dicko and tell him to take you fishing like we did that time camping! Love you to your Maddystar.”

Related content:

Ryan ‘Fitzy’ Fitzgerald opens up about losing a child.

How to talk to someone who has lost a child from someone who has been there.

What it feels like to lose a baby.