When I became pregnant with my son, I had this strong feeling that something was wrong.
I would constantly feel like we were on the brink of something really big, and I didn’t know what it was. It started early with a very difficult pregnancy. My uterus wasn’t cooperating, my liver was completely out of whack, and then add the bulging discs in my back and I was hot mess.
My child ended up coming in to the world early, and he was born without a peep. Not a single cry brought him in to the world, and he barely cried for the first 3 months of his life. Doctors worked tirelessly to sort through what was going on with him, and we hoped and prayed that everything would work out.
Fast forward three years later and we sit here with this amazing little boy that has taught us more about the human fight and drive to live than anyone else. He’s been diagnosed with Panhypopituitarism, Chiari Malformation, Macrocephaly, Enlarged Ventricles in his brain, and most recently Mitral Valve Stenosis. All of these are big diagnosis, and any one of them could put him in the hospital in a life threatening situation.
However, we still manage to get through most days unscathed, and we still have just as many giggles and hugs. I’ve learned so much about life and mothering by being with him, and I wanted to shed some light.