In less than a year, Anne Gabrielides has lost her ability to speak and breathe comfortably and can no longer control her hands.
Soon, the mother-of-three from the Blue Mountains will be confined to a wheelchair, and within another year likely won’t be here at all.
Anne is dying. The 53-year-old has terminal, creeping motor neurone disease and she’s terrified.
“I’m becoming trapped inside my own body, with the same intellect, but unable to speak, eat, clean myself or move,” she says.
“This is a bastard of a disease, I’m asking for NSW politicians to open their hearts and spare those battling crippling terminal illnesses like mine from an undignified, painful and drawn out death."
With the support of her husband Paul and children, the speech pathologist has launched a Change.org petition calling on NSW MPs to vote in favour of legislation that would let people over the age of 25 in the same difficult position as her, choose to end their lives.
More than 55,000 people have already signed the petition.
“Many of these people are nurses, doctors, terminal patients and loved ones who just want to put an end to prolonged suffering - we are asking our politicians to listen and act," Anne says.