Tonight’s episode of Sunday Night discussed the experience of Australian suffers of Lyme disease – a disease that Australian governments, both State and Federal, say does not exist in this country (The NSW Government Lyme disease factsheet can be found here.)
In April this year, Amara Campbell wrote a about her experience with Lyme disease and her battle to have it recognised.
This is Amara’s story…
By AMARA CAMPBELL
I have been sick my whole adult life. First taunted by a ridiculously inadequately named condition known as Chronic Fatigue Syndrome (CFS) and later by Lyme Disease and Co-infections.
Infections that, ironically, ‘do not’ exist here in Australia. Yet they do clearly, and positive tests confirmed what are primarily clinically diagnosed illnesses.
Out of nowhere I had my controversial (although widely accepted worldwide) treatment pulled from me, thanks to a governing body who purports to protect patient care and yet without warning they cut my life line. I was left adrift and dangerously ill. Without treatment within days, less than a week I had regressed so dramatically I was and am worse than I have ever been. My symptoms have flared dramatically and I live daily in a world of torture.
Daily I struggle with everything from tics, Tourette’s, seizures, convulsions, chemical allergies, excruciating bone and muscle pain, dislocated joints, loss of vision, vomiting migraines, inability to walk, loss of motor function, dementia symptoms, neurally mediated hypotension, thermodysregulation, dystonia, cataplexy, bronchial spasms, asthma and so many more symptoms to list them would take up your day. The ultimate result being that were I living with HIV or cancer and in this condition, anyone who denied me medical treatment would be abhorred for their horrific and inappropriate behaviour. It would be all over the news, the media, you would read it everywhere. Instead no one listening. Can you even imagine that this is your Australia?