In the wake of the preventable death of another baby, allegedly turned away from two hospitals and his symptoms dismissed as ‘teething’ – there is a growing campaign to make national a Queensland-only protocol that forces medical staff to pay attention to a mother’s intuition.
For any parent who has been faced with the horror of knowing something is wrong and no one listening it’s a campaign that makes sense.
Malakai Matui Paraone and Kyran Day both died in hospital after concerns from their parents were ignored. Image via Facebook.
Last week a mother and father lost their little boy. A big brother lost his mate. The family from Perth made the decision none of us want to be faced with, to turn off the life support of their son.
Their baby boy, Malakai Matui Paraone, just seven-months, died in Princess Margaret Hospital after allegedly being sent home from two hospitals and a GP, told to go home - dismissed - labelled as "teething".
But he wasn't teething, he was desperately ill and no one except his parents believed it.
His death, according to his parents Nicole Thompson and her partner, Keps Paraone was from misdiagnosed meningococcal.
“Three days I tried to get him help — three days, two hospitals, one doctor’s surgery, an ambulance trip,” Ms Thompson told Nine News.
“If they had done their job properly my son would still be here.”
Nicole Thompson and her partner, Keps Paraone with Malakai and their other son. Via Facebook.
While the clinical diagnosis for her son’s death will be determined by a coroners court the family say they blame the hospitals and doctors involved claiming they were "laughed at" and "dismissed" for asking questions.
Whether it was the fault of any hospital or doctors has not yet be determined, but still, sadly, we hear stories like this all too often.
We hear of babies dying from medical negligence, children suffering from delays in hospital, overcrowding, faulty equipment and inadequate treatment.
We hear of medical staff brushing aside parents who beg and plead that something just doesn’t add up.
Mother’s instinct, mother’s intuition, a gut feeling that something just isn’t right. And of course, while we call it “mother’s intuition” it’s not just mums, no its fathers, grandparents, carers, anyone who knows a child well enough to just have that feeling the sheer terror of knowing.
Something isn’t right, but no one will listen to you.
But if you are a parent in Queensland you have an option the rest of us don't get.
We hear of babies dying from medical negligence. Via IStock.
In Queensland 'Ryan’s Rule' allows people who don't think their health concerns are being taken seriously enough to call upon extra help.
After a 2011 coronial inquest into the death of three-year-old Ryan Sauders, from toxic shock, misdiagnosed as mumps 'Ryan’s Rule 'was initiated. It allows family to request a 'Ryan’s Rule' clinical review if they have concerns about a patient who isn’t improving.
It’s a rule that if it had been nationwide might have saved the life of six-month old Kyran Day.
Naomi Day, with her partner and Kyran. Via Kyran's Rule Facebook.
His case is heartbreakingly similar to that of Malakai Paraone except for the cause of death.