Rachael Casella lost her daughter to spinal muscular atrophy when her baby was only seven months old.
The unimaginable loss led Rachael to advocate for change and education about genetic testing, because you may never have heard of it, but SMA is the number one genetic cause of death in babies.
In this episode, we discuss losing a child, the fight to have another after that happens and what more education around genetic screening and testing can do.
CREDITS
Hosts: Leigh Campbell & Tegan Natoli
Guest: Rachael Casella
Rachael Casella is a police officer with the Australian Federal Police and she is also the author of the book “Mackenzie’s Mission”.
Mackenzie’s Mission is also a research study providing reproductive genetic carrier screening to 10,000 couples across Australia. https://www.mackenziesmission.org.au/
Producer: Pariya Taherzadeh, Jacob Round and Elissa Ratliff
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This episode is brought to you by LEGO DUPLO.