My dear friend Justice Campbell looks like any other 20 (nearly 21) year old out there. She’s blonde, pretty, smart and so funny that some think she should have her own comedy show. Around two years ago, Justice started to experience pins and needles, tingling, numbness, migraines and fatigue that were all treated as being unrelated to one another. Then just over 12 months ago, something happened to tip the scales.
“In February, 2011, I travelled to Bali with a group of friends and about half way into the trip I noticed my vision in my left eye was blurry. It gradually decreased over the next week and by the time I returned to Australia I had no sight left in my left eye. After a trip to the optometrist I was sent straight to the emergency ward where I spent a week in a ward waiting for an answer,” Justice explained.
Her diagnosis was Relapsing/Remitting Multiple Sclerosis.
There are many misconceptions surrounding MS, with many thinking that it only affects older people and that you will be in a wheelchair quickly, when in actual fact, you can’t tell by looking at Justice (and many other sufferers) that she has MS.
Justice wishes that people understood that having MS doesn’t mean you’ll be in a wheelchair, “Most people are diagnosed in their early 20s to mid 30s. Most of those people will be young, fit and healthy and won’t be in wheelchairs. We’re normal people living our lives, just with a few obstacles to overcome.”
According to the Multiple Sclerosis Australia Ltd website, the majority of people with MS do not become severely disabled with longitudinal studies showing that 50% of people with the disease are independently mobile 15 years after diagnosis.
Top Comments
I'm an (almost) 30 year old male with RR MS, and it is a struggle getting people to accept that I have MS, MS does not have me.
Yes, it can be a debilitating nightmare of a disease, but not in every case. Sufferers need people to understand the difference so we aren't all placed in one bucket.
It was a well-written piece but I think it very much underplayed how debilitating MS can be.
This article makes it sound like it's a slight impairment and I don't think this helps raise awareness about how important finding a cure for this disease is.
The young lady in this story calls her MS a blessing rather than a burden. I can appreciate what she is trying to say here but hopefully her MS never gets to the point that you are wheelchair bound, unable to move your own body without the help of someone else, unable to go to the toilet alone, unable to feed yourself and the list goes on.
Don't downplay the effects of MS - we need more people supporting the cause, not fewer because they think its not really that bad afterall.
I by no means meant to downplay how bad MS really is. While Justice is doing incredibly well, she has experienced great hardships since being diagnosed, including the loss of 40% of the function in one of her legs.
This article was meant to show that there may be people out there dealing with MS that you overlook because they appear to be physically fine.
I pray everyday that her MS never gets to that point as it does for many. I wanted to downplay the stereotypes, not the seriousness of the condition and I am truly sorry that you feel I have done so.
A wonderfully written piece that highlights the affects of MS, while showing that a positive attitude can do wonders for someone in a negative situation.
Aware, I don't think you quite caught the gist of what this young lady was saying- she only refers to her MS as a 'blessing' in terms of it showing her who her real friends are. She later goes on to say that she is sad and scared of what her future will bring, so I think she is well aware of how debilitating her condition could possibly be for her.
I felt both her and the writer conveyed living with this disease beautifully. Having suffered myself for fifteen years, I wish I had been able to adapt young Justice's attitude from when I was diagnosed.
The point she was trying to make was that people (and you are demonstrating her point Aware) is that while it can have awful awful outcomes for certain cases, some people live with it every day and are overlooked because they aren't in a wheelchair. Just because they aren't in a wheelchair and are still self sufficient doesn't mean they aren't suffering just as much.
Hats off to people like her- taking something negative and making it positive. She certainly touched my heart.