health

"I was bone-crushingly exhausted." The everyday signs of type 1 diabetes.

I was diagnosed with type 1 diabetes when I was 24 years old and my diagnosis story is unremarkable. I started noticing that I had an unquenchable thirst and was drinking glass after glass of water. I was going to the loo a lot. At first I just put that down to being really thirsty. I lost over six kilograms in a week. And I had bone-crushing exhaustion like I’d never felt before.

I tried to ignore it all with excuses such as ‘I’m really busy and just need to take a holiday’ and ‘I probably have a low level virus. I just need rest’ and ‘I’m planning a wedding, running a business and have a super busy life. Of course I’m run down.’

"I tried to ignore it all with excuses" says Renza, pictured above (Image supplied)

Except, after a couple of days, I was getting worse and couldn’t go for more than half an hour with running to the loo. I made an appointment to see my GP who sent me off for a blood test. A couple of days later, when the lab results came back, I was diagnosed with type 1 diabetes.

I saw an endocrinologist (diabetes specialist) that day and was started on insulin immediately, being taught how to inject the life-saving drug into my stomach. The situation was overwhelming – how could a diagnosis of a life-long medical condition be anything else? – but it was undramatic.

I’m glad it was unremarkable. I’m glad that I was not admitted to hospital in a critical condition or comatose. I’m glad my introduction to type 1 diabetes did not involve a dash to A and E or any time in ICU. I’m glad that I was able to stay out of hospital, only requiring day trips to my new diabetes team for a few days to learn about how to manage life with type 1 diabetes.

But that is not the case for a lot of children and adults. A lot of people are diagnosed under far more traumatic and serious circumstances. They may have had symptoms for some time – the same symptoms I experienced - and visited their doctor only to be told they had a virus or a urinary tract infection, and perhaps given antibiotics. Some children are diagnosed with ‘growing pains’ and told to rest up a little.

"Some children are diagnosed with ‘growing pains’ and told to rest up a little". Imagine via Getty.

In over 600 cases each year, children and adults need to be hospitalised because the early signs of type 1 diabetes were missed. Their diagnosis takes place amongst tubes and bright lights and beeping machines, with healthcare professionals rushing around them. They may be in a coma, some told they were literally hours from death when they arrived at the hospital.

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It’s National Diabetes Week in Australia and one element of Diabetes Australia’s national campaign aims to raise awareness of the early signs of type 1 diabetes. We want more people to know the symptoms and to think about type 1 diabetes if they notice they, or their child, are exhibiting ‘the 4Ts of type 1 diabetes’.

What are the 4Ts of type 1 diabetes?

Thirst – Being really thirsty.
Toilet – Going to the toilet a lot.
Tired – Feeling very tired.
Thinner – Losing weight.

What you don't know about your body. Post continues...

If you or your child is experiencing any of these symptoms, see your doctor and ask about type 1 diabetes. It’s about time we all knew the early signs.

Type 1 diabetes is an autoimmune condition where the immune system decided to attack the insulin producing cells in the pancreas. It cannot be prevented and people with type 1 diabetes require insulin daily (delivered via injection or insulin pump).

Type 2 diabetes occurs when the body becomes resistant to insulin. It has strong genetic risk factors by may be able to be prevented in about 58% of cases. For more information visit Diabetes Australia.

To hear about a lovely little girl called Isabelle's diabetes diagnosis, as told by her mother Fleur, you can watch here.

Renza Scibilia is a Melbourne woman who writes a blog about real life with diabetes. She is a diabetes consumer advocate, activist and spokesperson and has lived with type 1 diabetes for eighteen and a half years. She lives with her musician husband, almost-12-year-old daughter and a menagerie of pets in a house with too many books, guitars and boots. Right now, she is probably drinking coffee, tweeting, wearing stripes and planning her next trip to New York.