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86796587 Doctor Google: When every possible symptom is cancer.

This post is sponsored by Dr Marie.

 

 

 

 

By BERN MORLEY

I knew it was there, I was just choosing to ignore it.

The lump I mean.

See two things happened that made me stop avoiding it. Firstly, my hipbone started to regularly burn and secondly, over coffee, my girlfriend told me that a friend of a friend had had EXACTLY the same symptoms and it had turned out to be aggressive breast cancer. I’d already done a fine job of believing EXACTLY that’s what it was without her blunt appraisal of my situation, yet circumstances at the time were making me the world’s finest avoider.

Being great in a crisis, I had just been dealing with my mother’s rapid decline and eventual death from cancer. It was fast, horrific and scary and even though I felt the lump about 1 month into her diagnosis, I wasn’t ready or able to deal with more bad news. Not then and certainly not now. I was still too sad. It could wait. So I put it off. And off. And off.  Until eventually I had the coffee with my friend.

And that day, the day of the coffee and the burning hip, I went on home and sat down in front of my laptop and tentatively opened it up.  Now here’s a tip, unless you want to scare the absolute bejesus out of yourself, do not, I repeat, do not Google the words “Lump in breast” and “burning hip bone” at the same time because the following will happen:

You will convince yourself that at best, you are thundering towards early menopause and at worst, have breast cancer and are probably going to die of secondary bone cancer.

So immediately I made an appointment with my doctor right? Right? WRONG. Oh no, I couldn’t handle the truth right then because let’s face it, that would make it real. And I couldn’t handle real. Not that day. If only I thought to myself, I could find an alternative, non-threatening diagnosis for my many and obvious symptoms, I could just go about my business and forget about this whole sorry situation. Maybe I just needed some multivitamins?

So I decided to investigate a little more and with that, each night I’d go a little further into the Dr Google rabbit hole clicking from one damning link to the next. And in turn, each night I’d go to bed a little more frightened than the one before.

Until that is, I woke up one day I and realised it was inevitable. I was almost resigned to my fate by this stage. I had started to cry quietly in the shower about the momentous occasions I was going to miss in my children’s lives. Yet I now needed to know for sure, I could no longer live with the inner turmoil. I was, after weeks of speculation, ready to see the doctor and officially be handed my fate.

I walked into the Doctor’s office with a heavy heart and promptly burst into tears when *I* told *her* that Google had told *me* that I had breast cancer. She got up, shut the door properly behind me, handed me a tissue and told me to lie down on the bed. She then had a feel around and immediately told me to “stop stressing” it’s more than likely a fibroadenoma, benign, common and just to be sure, I should have an ultrasound.

The ultrasound turned into a biopsy. Which hurt, my wordy did it hurt, but to be told 3 days later it was all good and that “I just needed to keep an eye on it” was worth all the needles to the boob IN THE WORLD. And I know this sounds silly, but it felt like I had been handed a second chance at life. If I had just gone and gotten professional advice immediately, I could have saved myself a lot of stress and anguish. Dr Google, while useful in some circumstances, can never take the place of a qualified medical advice and reassurance.

Dr Marie logo7 Doctor Google: When every possible symptom is cancer.

Dr Marie is part of Marie Stopes International, a global not-for-profit organisation that is helping save millions of lives in developing countries each year. Dr Marie provides immediate access to caring and non-judgmental support and services on unplanned pregnancy, contraception and STIs. We also provide decision-based counselling and 24 hour aftercare.

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71 Comments so far

  1. ash

    I had a similar but different scenario. My wife was told she had an inoperable tumour. Did a quick search on the net and found cancer treatments in hospitals world wide but not here in Oz. She went to USA, had 1 day of treatment in a lovely hospital and went back to work. i have now spent the last 6 yrs fighting to get this treatment to Aussie hospitals. I did it. perth will offer it next yr (2013) So the internet may not have diagnosed the problem, which really was incorrect anyway, it was only inoperable in Australia. I wrote a book – Dying to get to Oklahoma which has been raising awareness and money of this awesome cancer treatment

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  2. kp

    Reminds me of that scene from Sex & The City:

    Miranda: I’ve been trying to diagnosis myself on the Internet….
    Charlotte: You can do that?
    Miranda: Sure, Just type in your symptoms, hit enter, and wait for the word cancer to appear on the screen.

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  3. portia

    I’ve had a biopsy scare too. Awful. Please don’t rely on the internet. You’ll either scare yourself silly or reassure yourself when perhaps you need to investigate further.

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  4. Chicken Soup

    Do not ever do a google image search for Herpes. I cannot emphasise that enough. I once did it because I was worried about a red spot in my vagina and I still haven’t recovered (the spot went away though).

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    • Anon

      EEEUUUWWWWWWWW

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    • Anonymous

      I have done that too, but just out of curiousity… regretted it ever since…

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  5. UmbrellaGirl

    I had chlamydia last year and I didn’t know it for ages. I actually didn’t worry about getting tested because of something I read on the internet that said you couldn’t get it if you hadn’t had sex with more than one person and my partner was a virgin when we met too. Soooooooo stupid of me. I should have just talked to someone who knew what they were doing.

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  6. Kristy

    My sister is a GP and she says people are starting to come in with google search results on their phones and making her read them.
    Come on everyone – listen to the professionals!

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    • Taylor

      My husband is a Dr and he complains about the same thing!!!!!!!!!

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    • Zoo

      I have actually done this before… SORRY GP!!

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  7. Coney Island

    If I have to listen to one more silly parent tell me they ‘did their research’ online and that’s why they didn’t vaccinate their children I will scream.
    Dr Google is not the answer. Medical professionals are.

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    • Jingo

      Yes I have heard this too. Don’t go to Byron Bay or you will never stop screaming.

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  8. Chubby Cheeks

    My issue is who you’re supposed to go to for quick advice. Often you assume something isn’t serious enough to go to the Doctor but that doesn’t mean you wouldn’t like some reassurance.

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    • Pollyanna

      Isn’t that what those 24 hour medical phone lines are for?

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    • Anonymous

      I go to my mum, she is some kind of genius in all things medical related!

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  9. Bunny19

    “If I had just gone and gotten professional advice immediately, I could have saved myself a lot of stress and anguish” So true Bern! This quote sums it all up really well in my eyes.

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  10. Anony-mouse

    I think Google is just like Dolly Doctor used to be. Except at least Dolly Doctor was written by an actual doctor. There are so many fruit loops writing things on the internet and too many people can’t tell the difference between actual medical information and bogus opinion.

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    • Belindah

      Dolly Doctor reassured me of A LOT OF STUFF when I was a teenager and before we had the internet at home.

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  11. Chubby Cheeks

    My issue is who you’re supposed to go to for quick advice. Often you assume something isn’t serious enough to go to the Doctor but that doesn’t mean you wouldn’t like some reassurance.

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    • Diana The Huntress

      Nurse-on-call. :) I’ve had a few calls to them in the wee/late hours. They can even send a (sometimes bulk-billing) locum if you need to be seen but it isn’t an ER-worthy problem. I had a really nice gp out at my house at midnight one night when I hurt myself. He didn’t charge me a cent.

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  12. Gina (not that one)

    I once took a photo of a sore on my boyfriend’s penis and did a google image search to see what it was.
    It totally freaked us both out and ruined our relationship. Next time, straight to a doctor.

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  13. Anikea

    Medical advice, like any major advice on anything in your life should come from someone you trust. And you can’t trust a search engine.

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    • Guests

      It’s true. But if you are looking online, a government website is better than a non-gov one. At least it’s accountable.

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  14. CoffeeCup

    Doctor Google is not a real Doctor y’all.

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    • Jodi

      Makes me think of the “Call me Dr Worm. I am not a real Dr but I am a real Worm” song…. sorry – child of the 90s.

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  15. Kaylia

    This is irrelevant to the discussion but I went to Marie Stopes a few years ago and I has a really positive experience. They were very kind to me.

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  16. Dr Kay

    YES YES YES! This. People. THIS. PLEASE pay attention. As a medical practitioner, there is nothing worse than patients coming in with their own self diagnosis. There is a REASON that we study for almost 10 years to be doctors. We know what we’re doing, you need to trust us to do our job.

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  17. Becka

    I convinced myself I need my appendix out. Told the Dr that and everything and then she said to point to where it hurt and I did…. she replies “Ah, your appendix is on the other side dear.” Whoops.

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  18. Bella

    I diagnosed my own pregnancy without a pregnancy test but with the aid of Google Doctor. Yeah… stupid.

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  19. Tess

    This is so true. The Marie Stopes thing is true as well… When I got pregnant and was trying to figure out what to do I googled it first (as we all do it so seems!) And I completely spazzed out with worry. It was all confusing and I didn’t know if abrotions were legal or not where I live. It was scary. Then a friend said to call Marie Stopes and they gave such good advice and even though I decided not to go through with it (I adopted my little man out and it was the best decision) – they were helpful. There is so much crap on the interent. You don’t know what is true or not.

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  20. Karen

    Hmmm… last week I diagnosed myself cancer after I found a lump under my arm. Turns out – after three sleepless nights planning my funeral – it’s just a swollen gland, probably caused be stress. Go figure.

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  21. Manny

    Oh I needed this post. The thing is, you’re going to end up going to the doctor anyway, why put it off and stress yourself out?

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  22. gypsy

    I’m addicted to the various ivf sites on google and whilst there are some wonderful happy stories, it can absolutely send me bonkers. I casually mentioned to my fertility specialist that I’d “read something on the internet” and I felt like a naughty school girl for the berating (albeit kind berating) I got. He told me in no uncertain terms to step away from the keyboard.

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    • neola

      Cyberchondria! It’s an epidemic…

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  23. Christy

    The main problem with Dr Google is no one ever reports on good news stories. What would be your reason to click on “I found a lump, all is fine it was just a cyst” there is no story in that. Hence people only write about “I found a lump, did such and such, it was cancer…. etc”
    Same goes for customer service. If you get good service, you don’t tell anyone, if you get bad service, everyone knows!

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  24. Grace

    Definitely. I’m studying medicine and we get TAUGHT how to read medical journal articles. No joke, they are so confusing that you need lessons to understand it. And that’s the way it should be, there’s a reason why you need a degree and years of experience to diagnose anyone with anything and that’s so that you get it right! Being able to use a computer does not equip you to wade through the horrifically scary stuff on the internet that’s 99% not applicable to your situation and therefore needlessly terrifying!!

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  25. Anna76

    Wow – nice to realize that I’m not the only one who gets into a vicious cycle of running to ‘Dr Google’! I swear, I think of done this about 6 times. I have some symptoms and then I can’t resist the urge to google them, only to end up completely scared and stressed out! My rational side knows that it’s a big mistake to seek medical answers this way, but I always seem to succumb to my urge to google my symptoms. I’ve diagnosed myself with all sorts of serious medical conditions, that as it turns out, I don’t have.
    I have decided to try really hard to stop doing it, because it causes so much anxiety.

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  26. Daisy

    Just to reassure women about breast biopsies. Not everybody feels pain. Some are completely painless.

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    • Penguin

      Thanks Daisy! That made me feel better.

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  27. Shaezy

    Dr Google’s assistant, Nurse Images is wayyyyyy worse that Dr Google sometimes. Just for shits and giggles, type in ‘psoriasis’ or ‘hand foot and mouth’ disease. That’s what I did (once we already had diagnoses). I nearly vomited and fainted and exploded my eyeballs all at once!! Never again…

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    • Nade

      What is nurse images? I typed it in and ended up with clip art.

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  28. Anon for this

    To play the devil’s advocate here, when you DO find a lump, go through all the tests, the removal operation and the subsequent diagnosis of a genetic syndrome none of your doctors have ever heard of before, google can be your saviour.

    I have actually sat in doctor’s surgeries and WATCHED them google the name of my syndrome to find out what it is. One of them tried the 25cm thick textbook on his shelf first, and found three sentences. That was IT. In the entire book.

    Another thing – google put me in contact with a email support group of people and family members of people with this syndrome. There are even a few doctors on the list. The main researchers of the syndrome just don’t have access to enough patients WITHOUT the internet.

    I do agree googling before you have even seen a doctor, and scaring the crap out of yourself is dangerous. Hell, I did it. But the net is also a MASSIVE wealth of information for people like me with “one in 300,000 to 400,000″ syndromes.

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    • J

      That has happened to me too. I had PUPPS during the end of my pregnancy (def not as cute as it might sound). The insane itching drove me crazy, and the doctors dismissed it. So I had no choice but to consult Dr Google, who found the problem. Back at the real doctors, I sat in the chair next to them while they Googled my findings, and confirmed they were correct. I definitely wouldn’t normally suggest doing this, but in this instant it was a relief to put a name to it.

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    • Made

      Can I ask what your syndrome is?
      As a nurse I take note of new/rare dx and read up on then, that way if I come across a patient with it I will have some knowledge base.

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    • Nade

      Can I ask what your syndrome is?
      As a nurse I take note of any new or rare syndrome that I hear about and read up on it,that way if a patient has it I have a knowledge base.

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      • Anon for this

        Cowden’s Syndrome.

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  29. Anonymous

    So what about the burning hips?

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  30. Siobhan

    I am a terrible hypochondriac, but if I google symptoms or worry, I send myself in to a spin. So now, if I have anything that is stressing me out I don’t procrastinate, I make an appointment and get it checked. I am thinking the worst anyway, so I may as well get it checked and not stress for weeks about it!!

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  31. Faybian

    I’m all for taking responsibility of your own health: living healthily, going to the doctor regularly (and for problems) and questioning opinions you’re not happy with, but Dr Google can be scary. Having been diagnosed with a serious illness myself, I don’t research on the internet. Even if you find scholarly articles, they can still scare the crap out of you.
    My advice; find someone/s you trust and stick with them. Read material designed for patients/the general public and follow up if you’re still worried. Don’t do nothing about your concerns.

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  32. zepgirl

    I had to encourage my mother to stop using this when she had a minor operation last year. She kept looking up the side effects of medications that would be given if something went wrong, and then the side effects of medications given for said side effects. Hideous merry-go-round. Having said that, this was better than when she took a stab at deciding what to take for heartburn and settled on a Berocca. It didn’t work.

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    • Faybian

      Berocca hey? My mother rings me, buts she’s hard to help she’s a crap historian.

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  33. Mary

    I’m ashamed to say that I have been through this exact process for various reasons about 4-5 times. I also lost a parent to cancer and my remaining is a cancer surviver. It’s very difficult to reign in the fear :(

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    • BatGirl

      Oh Mary I am walking in your shoes. I have lost both my parents to cancer and it takes me weeks, if not months to head to the Dr to check some various pain/lump I developed. Always waiting… Horrible to live in fear isnt it?

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    • Dan

      Know how you feel Mary! My mum died from melanoma and my daughter had leukaemia at 9 months old. Every ache or pain makes me think of cancer. I had the flu last month and was ready to write my will, I was so expecting the worst news. Some days I feel like I’m waiting for cancer to catch up to me, not a nice feeling

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  34. Natalia

    Just last week I diagnosed myself with a brain tumour after googling something about regular headaches in the right hand side frontal lobe. Note to self: Stay AWAY from Dr Google!!

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    • Faybian

      Don’t bother. A good portion of adult brain tumours are benign anyway. They’re still sucky, but you’ll be alive to moan about having had one. My GP told me that if she wrote out a CT/MRI form for every one concerned about headaches that’s all she’d be doing. A neurology registrar (doctor) also mentioned that a significant number of people die with a tumour in there that has never affected them or caused their death, but just happens to be found on autopsy.

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  35. amyaims

    When i found a lump in my breast i must say dr.google was my saviour!

    Lump in breast = cancer cancer cancer

    After googling i found out lumps can be caused by lots of things and put my mind a little at ease rather than thinking i was going to die.
    After ultrasounds and biopsies it was confirmed it was just a fibroadenoma (a bunch of hard lumpy muscle and tissue).
    Dr Google put my mind at ease thinking it just “might” be something other than cancer!

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    • Diana The Huntress

      80-85% of lumps are benign. And fibroadenomas and cysts are incredibly common. I wish more women were aware of this, just to spare them the stress of those few days waiting on test results. I think the alarmist ad campaigns complete with sad music have a lot to answer for.

      You know, this might seem insensitive (I apologise if this opinion is hurtful to anyone, it’s not my intent) but I hate those awareness ads. Someone referred to it as pinkwashing, which I think is apt. We know it exists! I do not want to drink water from a pink ribbon bottle, thank you. I always change the channel when those Jo Hall ads come on. No disrespect to Jo, I’m sure she’s nice, but I do find myself swearing at her rather forcefully. We know about it, ok! Don’t need constant reminders.

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    • Natalia

      I have one of those on my back and avoided Dr Googling – hence I was convinced that I was going to need my entire shoulder cut off. *rolls eyes at self*

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      • Diana The Huntress

        The other thing to remember is bodies just to weird stuff sometimes. Lumps, asymmetry, inexplicably palpable lymph nodes… Google these things and the answers will all be the big nasty but, you know, this stuff sometimes just happens and isn’t the result of anything sinister. :)

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  36. Anna Sparkle

    With my hubby’s gentle encouragement, I had to ban myself from dr google – completely and with no exception, no matter how tempted i am. it is a dangerous game to play and i have spent many sleepless nights sick with worry after a dr google diagnosis.

    I suffer from health anxiety and have since i was a child, possibly made worse by my father’s rapid decline and death from an agressive brain tumour when i was 8 – and a few years ago, not long before my wedding, i was totally and completely convinced i had ALS cos my hands would shake a little bit when i held them out (i didnt even know ALS existed till i dr googled shaky hands). i was sick with fear.

    After the birth of my son while i was on maternity leave, during the long hours at home and the long sleepless nights , i had myself convinced at different stages that i was dying of bowel cancer/breast cancer/ heart disease. the fear of not living to see my son’s first birthday eventually forced me to the dr, where i had every test imaginable for all my symptoms.
    the outcome – i was physically fine and my symptoms were my body’s physical response to anxiety.

    Henceforth – dr google is banned!

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    • M

      Oh my goodness, you sound exactly like me, down to the parent dying very quickly of a brain tumor. Recently I had a very straight forward injury and I was convinced they were going to find something horrible when I had the ultrasound and xray. Turns out the injury was nasty, but all injuries were consistent with what I was doing at the time and I didn’t even require surgery. I made myself sick over something that I shouldn’t have and it still took several weeks for me to calm down. Health anxiety is a terrible thing to live with and I agree that having children complicates it so much more. Good on you for having all those tests, so worth it.

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  37. Diana The Huntress

    Thanks to the winning combination of clinical OCD and Dr Google I have over time diagnosed myself with countless life-threatening illnesses. It sounds comical but it isn’t, those fears are very real, to the point where I actually almost quit making plans or doing anything because I was convinced I was dying. (Yes, I am seeing a psychologist.)

    I actually have now taken the approach that, well, I could have something, I could not. Either way I’m not sold on the efficacy and trade-off of many of the mainstream treatment protocols (no-one lecture me on this, please- I’m not pushing my view onto anyone else and have researched thoroughly to come to this conclusion for my own body) so I’d just be doing what I’m doing now- learning relaxation methods, exercising and eating healthily and letting the chips fall where they may.

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  38. nicmclachlan

    The only thing more dangerous than Dr Google? Dr Ebay.

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    • MelP

      Or Dr. Etsy.

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    • bernadettemorley

      Or Dr Twitter. :)

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    • zepgirl

      Dr YouTube. In one of the more recent posts about vaccination on this site, someone told me that in order to get the REAL FACTS about vaccinations that I should go to YouTube. Give me a break.

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  39. Lindsey

    I just got back from 8 months working in Cambodia and after many tests were conducted it was confirmed I had a nasty parasite. When I got my test results, my doctor used Dr. Google and searched for my parasite and then prescribed me the suggested drug on Wikipedia… needless to say I think I need a new doctor…

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  40. anonymous

    Oh Bern, I understand. Last year I had an abnormal pap smear result, a breast lump and then unbeknownst to me, my GP had run a CA-125 blood test as part of her routine blood work and that also came back a couple of points higher than is normal. I then also had a bad polyp removed during a routine colonoscopy. All of this within months of each other and I too had recently watched my Dad die of cancer.

    To say that I was a mental wreck by the end of all this is an understatement. Like you in the shower, I spent a whole night laying awake crying thinking about my kids, weeks planning my death while waiting for tests, decided what cancer treatment I would or wouldn’t have and what I wanted to tell my husband about how I wanted him to raise our children after I was gone. Horrendous!

    For anyone currently living with this diagnosis, I wish you every strength and the courage to deal with all those fears you must be facing on a daily basis. As a parent, I couldn’t think of a more difficult position for you to face and I always think about you now.

    From my episode, I have to say that google both terrified and calmed me, it depended on what frame of mind I was in when looking which obviously determined what words I typed into it and therefore, the answers I got. But you’re right Bern, nothing beats those words from a doctor, who in my case, one by one gave me the all-clear. I was sure my luck was going to run out with each test and am still so rattled that I am waiting for the next problem to appear.

    Just acts as a reminder to us all about how fragile life is and how and what is most important to us. If you have a health concern, get it checked today. The stress isn’t worth it.

    I am thankful to medical science for what we now know but I also feel it has put a terrible burden of self-diagnosis on us, making us so paranoid about every lump and bump it makes us crazy, especially once we have children.
    I think more than just the fear of getting a terrible illness, we fear getting an illness that could have been cured had we found it earlier.

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    • bernadettemorley

      True and thanks for the comment. We have more access to knowledge than ever before but nothing beats talking to someone. :)

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    • Sneet

      Did you pick out what music you wanted played at your funeral?

      That is what my doctor asked me after I became convinced I *had* breast cancer (as I sobbed in her surgery, waiting for mamogram results, which were clear).

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