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sue sylvester glee 380x570 STOP saying this word.

Jane Lynch and Lauren Potter from Glee

Do you say ‘disabled person’ or ‘person with a disability’? Do you say ‘uses a wheelchair’ or ‘in a wheelchair’.

Disability etiquette. It’s one of those things that nobody wants to get wrong and yet on the most part we’re too anxious about causing offence that we don’t ever ask for help.

Even writing this post has been a delicate process. You write each sentence with a finger poised and ready, hovering over the ‘delete’ button.

Sadly, sometimes we let our anxiety over saying the wrong thing stand in the way of talking about disability at all. And in the end – although the wrong term can cause momentary pain or hurt – the real risk is that disability can become increasingly hidden, a forgotten issue.

It’s because of this that the Victorian Government has released a new set of guidelines, which detailing to correct way to refer to people with disabilities.

It’s disability etiquette 101, if you will.

The overarching rule is: use language to focus on the person and not the person and not the disability. So rather than ‘blind person’ go with ‘person who is blind.’ And instead of ‘vegetable,’ say ‘person who is in a coma’. Don’t say ‘disabled toilet,’ say ‘accessible toilet.’

But moving on from the finer points of language there are the bigger issues. Words that have historically been used to describe people with a disability but that have somehow managed to become school yard slang…

We’ve all been there: standing at the park, pushing the kids on the swings and you hear a seven year old boy call his mate a ‘retard’ when he misses a kick. A little girl is on her way home from ballet class and awkwardly practicing third position when her sister tells her to stop because she looks ‘spastic’.

That’s the big stuff the stuff that really matters. Using ugly words that send a message that disability makes someone a lesser person.

This campaign out of the US is absolutely bloody brilliant. It takes the word ‘retard’ and turns it on its head.

Take a look:

 

So next time you stub your toe or pour too much milk into your cereal bowl, don’t, don’t, don’t call yourself a retard. Can we suggest you try ning nong instead?

This is audio of Em and Dave from Mamamia’s radio show Mamamia Today chatting to disability advocate, Stella Young. They asked her what is OK to say – and what’s not OK to say to a person with a disability.

Comments

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159 Comments so far

  1. fee-bee

    This is brilliant! I’m a person with a disability and only up until recently I too used to refer to myself as “in a wheelchair” – such as when making restaurant reservations or whatever…. I now say that I use a wheelchair and funnily enough it makes me feel better about myself. A couple of years ago I was watching a promo for the 6pm news where one of the advertised stories was about promising research into a cure for the… wait for it…. THE HANDICAPPED. This is such an outdated and awful word and it surprised me that it was even used. I actually rang the station and was put through to the newsroom where I politely told them that they should replace this with something more pc. Sure enough – they did! What the Vic Govt has done is certainly a step in the right direction – and thank you Mamamia for also bringing awareness :)

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    • Bec

      This is awesome fee-bee, please continue to speak out as many of us are unintentional “ning nongs” who simply don’t know any better. Honestly I didn’t realise handicapped was outdated and awful, but now I do I will try not to use it again.

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    • Kris2040

      Why is “handicapped” so bad? I know it’s not the popular term du jour, but I don’t get why you find it so offensive?

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      • Kate

        I think handicapped is offensive as it’s a label which focuses on a person’s disability and how they’re limited, rather than focussing on the person and their abilities.

        For example, we’re not handicapped people. We’re people.

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        • Kris2040

          Or you’re people with a handicap. Is it just that it’s a cover-all term maybe?

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          • fee-bee

            Kris2040, to me personally the word handicapped – whether you put “person” or “people” in front of it, doesn’t make it sound any better. Handicapped makes me feel “less than” – simple as that. I don’t like feeling less than when I’m married, have 2 small children, drive a car, love a wine and a laugh, travel, have sex, love fashion and work hard at my job – I sound like most people out in society don’t I? That’s because I am.

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            • Lulu

              fee-Bee, that’s interesting. I always thought it was a pity when ‘handicap’ got thrown out in favour of ‘disability’. To me, ‘handicap’ just meant that something was made more difficult (the way the word is used in horse-racing) whereas ‘disability’ more suggested a lack of ability.

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            • Kris2040

              Yeah I have the same take on the words as Lulu – at swimming club we all went off different time handicaps.

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  2. deafgirl

    OMG, I am so sick of this political correct nonsense. I by no means condonde the use of the word ‘retard’, but otherwise dont see how using different words to describe the same thing will make any difference. Im sure most disabled people couldnt care less, they sure have a lot worse things to deal with.

    I happen to be deaf and I cringe when people call me ‘hearing impaired’, I mean c’mon. I know Im dead, you know Im deaf, whats so wrong with being called deaf?

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    • Shaezy

      Oh deafgirl, you have answered my question which should be appearing above soon!!! Thank you!

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    • M

      The problem with “retard” / “spastic” isn’t that they’re being used in a medically-appropriate context. I’m happy enough to people refer to me as “crip”, “gimp”, “para”, “in a wheelchair”, “wheelchair-user”, whatever. But those words are not thrown around as insults among non-disabled people. The difference is that people are using “retard” & “spastic” as insults, equating people who live with cognitive retardation (i.e., intellectual disabilities) &/or muscle spasticity (e.g., in cerebral palsy) as useless, shitty, unworthy, and less than everyone else. It’s much less of an insult to the person being called “retarded” than it is for the person who is having their disability – a part of their identity & life experience – equated with shit.

      I don’t mean to sound narky – I just wanted to point out that we can’t equate “deaf” or “wheelchair-user” to “retard” or “spastic”, because they’re used in entirely different manners, socially.

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  3. MissKate

    Qld has had its Way With Words info for a long time now, which covers all of this. A very useful tool, especially for people new to working with PWD (people with a disability).

    http://www.communities.qld.gov.au/resources/disability/community-involvement/communication/documents/way-with-words.pdf

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  4. Sarah in Sydney

    I hate the R word and will call people on it when they use it!

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  5. J

    I’m now so used to thinking/saying “person with a disability” that I cringe whenever I hear someone use “disability first” language. It’s something that takes practice, but everyone can get used to it. It’s really just simple courtesy and tells the person that you are thinking of them first, not their disability.

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  6. KTT

    Interesting read. I agree that there are offensive ways in describing all people. Yet, I disagree with some of the “rules”. This could also be used to describe “a person who happens to be pregnant”, “a person who happens to be an African American”, “a person who happens to be a person who loves people of the same sex”, “a person who happens to be a person who is not a man”.

    I think the overarching rule, as you put it, would be to treat people with respect, kindness and a little bit of empathy – otherwise you will definitely become a “person who happens to be a dickhead”.

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    • Kate

      I see what you’re trying to say KTT, however this post is about people with disabilities.

      Prior to last year I was oblivious to the kinds of labels out there which are applied to people with a disability but now I have those labels being used on me and it’s not nice. It’s hard to articulate sometimes, but it’s horrible having your disability made the focus and most prominent part of yourself. I want people to be able to see me for me, and not just my disability.

      And you’re right KTT, perhaps this person-centered approach should be adopted in other situations as well…

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      • KTT

        Hi Kate. You had me with your last line. A person centered approach in all situations would, while perhaps a little unrealistic, be a huge step in preventing these types of labels and behaviour.

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    • Ellen

      Couldn’t agree more with your last point. I just thought I’d explain how I think that the change in the rules on how to refer to someone with a disability differs from the examples you’ve given. A large part of why this specific phrasing is being used for people with a disability is because of the need to focus on them as people and individuals, and not as their disabilities. People with disabilities are often very defined by what they ‘have’ and people perceive limitations on them according to this. The phrasing, from my understanding as someone working with people with disabilities, is that it is simply a step of many toward empowering people with disabilities to be seen as more than just this one small part of who they are. Where previous terminology and phrasing was all about telling “what” a person was or had, the new phrasing is meant to say something more along the lines of “this is a person who happens to experience a disability”. This phenomenon of being so limited by how you are defined is most significant for people with disabilities and therefore the aim of the new phrasing is specifically for them.

      Saying that, I have no doubt that people will lose sight of the reason that this way of phrasing things has been brought in and it will be extended to over PC everything.

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  7. Kate

    This post is so timely for me, as I was just recently diagnosed with epilepsy.

    To my boss: I’m not epileptic. I’m a person who happens to have epilepsy.

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  8. Emily

    Just for the record – Lauren Potter is an amazing actress :) but I do find it quite sad that even though she’s on one of the hottest TV shows in the world right now, that she herself is not immune to bullying. About a year ago Lauren was shopping (I believe she was with a friend) when some teenage girls decided to follow her around the shopping centre calling her a ‘retard’ and telling her to go die and various other harsh comments. Apparently they knew exactly who she was too :(

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