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Screen shot 2012 01 06 at 5.00.18 PM 380x281 Pillars of Strength: A dads story about losing his son.

It is just on a year since my son Isaac’s passing and losing your baby (whether it be stillbirth or like me passing away in the NICU) your world is changed forever. Your state of normality is not the normal from a year ago, which unfortunately only the people from our select club would seem to understand.

Here is my story of the loss of my son Isaac and how I have tried in a small way to help myself by helping others who may be or may go through this difficult situation…………………

On the 8th December 2010, my wife and I were blessed with the birth of our son Isaac at 26 ½ weeks (13 weeks early). He spent two days in the NICU at Royal North Shore Sydney before sadly passing away on the 10th December 2010.

A father is expected to be the pillar of support (strength) for his wife/partner, extended family and friends. He is the communication channel to the outside world and on many occasions, if he has other children, he becomes the chief caretaker of those children whilst his wife/partner recovers from surgery and the birth.

In Isaac’s short time with us, I spent many hours in the NICU and worrying about my wife and child. I was expected to have broad shoulders with minimal opportunity to get away from things and in many cases continue with work to ensure that there was money still coming in to pay for the mortgage, bills, doctors fees etc.

Being in this situation you will find that friends and family always offer support or to do something for you but there really isn’t anything they can do to help you with your grief and the guilt of not being able to do anything to fix things. Fortunately, I was lucky enough to have a couple of mates who took me out for a round of golf (with the blessing of my wife) which allowed me a sanity check, some personal time and gave me the opportunity to reflect and more importantly time out to reenergise and refocus. It was the best thing for me and prompted me to create a support program for fathers in this tumultuous time. (NB. A year on I still need these periods of time out and will continue to do so as losing your son does not ever go away).

Screen shot 2012 01 06 at 4.59.35 PM Pillars of Strength: A dads story about losing his son.

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From my own personal experience when Isaac was in the NICU and subsequently passing away, I found that there was little assistance available to a father who has a child going through a traumatic experience (or something similar). It also showed me that there was little “me time” to take care of myself as I had to be there to be the Pillar of Strength for my family to ensure that everything continued in some sense of “normality”.

I have found that the above is a common theme with fathers who are faced with prolonged periods of their child being in the NICU, sick in hospital or passing away. There is little time for them to do something for themselves or get support as they need to provide it to everyone else (particularly their wives/partners).

This has provided me with a desire to make a change in father’s lives through facilitating something that can make a difference. This is “Pillars Of Strength“.

Pillars of Strength is an Australian first initiative which aims to provide fathers with some support and time out they need while their baby is sick, or to provide some informal support after the loss of their baby. (NB it is not a counselling service but more an informal peer support network).

Since August, through the Royal North Shore hospital, the NRL, Sydney Olympic Park Golf Centre, and 2UE among others we have been operating a pilot program, assisting dads and families during this difficult time through the “Time Out” and “In hospital support” programs.

As sport has been part of the male make up for generations the Time Out Program provides Dads with the opportunity to participate in, or attend, sporting and fitness activities with mates, family members or another Dad who has experienced a similar situation. (eg going to an AFL or NRL game, having a hit of golf, going to the gym etc). This is to allow some “me” time during this difficult period. and provide dads the opportunity to reflect and more importantly time out to re energise and refocus.

POS PFD LR button Pillars of Strength: A dads story about losing his son.

In hospital support is provided in the way of accessing general financial advice provided by an accredited financial advisor, and financial assistance/support to fathers and their families in the form of parking vouchers. Other in hospital support programs are also in development to be rolled out in 2012.

We have already received some great feedback from the staff of Royal North Shore and the uptake has been pleasing in the short time the pilot has operated.

Pillars of Strength may not be the answer for everyone but it is here to help fill a massive void and through establishing the organisation, helping others  and taking time out has certainly helped me deal with the loss of my son.

For further information about our programs, whether to get involved, access or to help support us so that we can expand our programs outside of Royal North Shore please go to our website.

In conjunction with Royal North Shore Hospital NICU, Pillars of Strength has also created a survey to get a snapshot on men’s health and support when going through family trauma. The survey can be found here Pillars of Strength – Men’s support surveysurveymonkey.com

Gary is a bereaved dad who found there was little support for men in this situation so has created a new organisation to help men facing significant family trauma.

On the 17th February Pillars of Strength is launching its Time Out program online to bereaved dads (dads who have lost a baby via stillbirth, birth complications or neonatal death in the last 2 years) and who can access activities in Sydney.

Pillars of Strength is an Australian charity which provides dads with support and time out they need while their baby is sick, and provides support and time out to dads after the loss of a baby.

To access this service or to support Pillars of Strength go to the website , find us on facebook here or follow us on Twitter.

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39 Comments so far

  1. GD Star Rating
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    Di

    What a great initiative Gary! My son spent 3 months in Royal North Shore NICU after being delivered at 28 wks while we were on holidays in Syd from Melb! Although I had family and friends in Syd, my partner didn’t have his own support network. It would’ve been fantastic to have this program available when we were there. Well done Gary – I truly hope it takes off!

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    Pillars of Strength

    Please help Pillars of Strength and vote for our dream to help regional dads.
    You can check it out and help make it come true by voting for it here: http://bit.ly/wbMbS3 – The dream with the most votes at the end of the month will be awarded a $5,000 grant.

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    Groover

    Gary you are truly an inspiration. What you have done takes a lot of courage & strength. Despite the pain & loss you & your wife have been through, you have turned it into something positive to reach out & help & support other men going through what you have been through. This is a service that is desperately needed in every hospital. Hopefully what you have done will catch on in every hospital. You & your wife are amazing brave people & I wish you both all the best.

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    Jess

    I am about to start training as a midwife at Royal North Shore Hospital and will make sure I refer anyone in need of these fabulous services you are providing. I have always felt deeply sympathetic for the fathers involved in these unfortunate situations as they are often seen as the ones who hold everyone up, but we forget to hold them up to.
    You are going to make an incredible difference to the lives you touch!!

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    kathl29

    Sorry for your loss. You are an amazing person in being able to turn something so devastating into something so positive to help other people.

    I hope you can turn this into a national initiative as when it comes to pregnancy and childbirth the fathers role is never really acknowledged and their grief and needs are just as real as the mothers.

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    DizzyBee

    What a fantastic initiative. I hope you continue to get the support and funding and media to promote such a great cause. How great would it be if money from things like MoVember could be channelled into support mechanisms like this as part of mens health.

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    LauraS

    This is a brilliant idea, and much needed. I really hope it’s spreads and becomes a national initiative soon.

    I’m off to donate now…

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    Pillars of Strength

    Thankyou all for your messages of support for Pillars of Strength and our programs.
    On Friday 3rd February (see image below) we had 6 dads, their brothers and their mates playing backyard cricket on the SCG as part of our Time Out program and our plans are to expand this Program regionally in NSW later in 2012 and then nationally over the next three years.
    Thanks again for your supportive words.
    Visit our website http://www.pillarsofstrength.com.au to support our organisation or to access support for you, your partner, brother etc.
    Gary and the Pillars of Strength team

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      Sheila

      My beautiful grandson Jamie died suddenly in Nov 2010 aged 18 months. Devastated doesn’t even begin to describe how we all felt. Pillars of Strength have helped my son in law and his recently bereaved brother in law who were both “stoked” to have been invited to play cricket at the SCG last week. Thank you so much :-)

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    Matthew Stevenson

    I have never lost a child – but my wife and I, our first child was a 25 weeker. My emotion in the three and a half months while jack was in hospital was simply numbness. I felt ignored and spoken over as I was just the dad. And there was little support to deal with what I was going through. Still to this day I feel a numbness when I think of our time back then. There seemed to be no thought that the dad would be suffering or feel depressed, or emotionless. I lost something back then, that I only just now understanding. This is a beautiful thing to be doing Gary.

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    Michelle

    My (soon to be ex) husband had no support after the death of our daughter (SIDS, 8 weeks old). He delt with that they way he was shown by his parents – to numb the pain with sleeping tablets – they didnt work for long so pain killers started and so began a downward spiral.
    I wish that there there had been something like this in SA when this was happening for us.
    I got support, from family and friends – no real peer-support, or counselling, but I was supported. He was left to flounder.
    Its a great idea, I hope it takes off and spreads across Aust.

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      Mia

      Michelle I am so sorry for the loss of your daughter…. Xx

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    MissT

    Wonderful initiative. You will help so many.

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    melissasavage

    I was just reading yesterday about how a huge number of parents who’ve been through a NICU experience suffer PTSD afterwards. This is a great way to help them through.

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    NewMum

    I’m so sorry for your loss. You would be making your son so proud with this amazing initiative.

    My brother and sister in law lost their Precious son almost 2 years ago. It still breaks my heart remembering my heartbroken brother having to make so many phone calls to give everyone updates on what was happening as everyone was concerned.

    I will never forget feeling helpless and wishing there was something I could do to help. If only he could have had access to your group it could have helped.

    Like your Isaac, these babies may have passed but they are much loved and thought of every day.

    I wish your charity well in helping the sometimes semi forgotten parent x

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    MP

    Beautiful. All the very best to you and your wife.

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    Rayn

    You are a brave and brilliant man Gary….it takes such a very special soul to turn their own adversity into something that can bring hope and strength to others.Dad’s are all too often neglected in times of loss and grief and i applaud you for standing up for all the daddy’s out there hurting too.You are truely extraordinary….

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    sophie

    Well done and so very needed. When our little girls was very sick in intensive care (for 8 weeks) my husband spent so little time with her because he needed to work and help with our other daughters at home. It was so hard on us being separated from each other (I moved into hospital) and no one getting the support they needed. He still finds it very hard to talk about 5 years later (she is well but with ongoing medical issues) because he feels guilt for not being with her how he wanted to, it would have been so helpful for him to have other men to talk to!

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    Anonymous

    Sorry for your loss, it breaks my heart. What a great initive, you should be proud to be able to do this for others when the support wasn’t there for you. With the birth of our only child my husband took it really hard, thankfully both myself & baby came through ok and the Doctors & Midwives were very attentive to me & monitoring for PND (which was never an issue) afterwards I was left thinking about my poor husband & what he went through & that no-one bothered to check that he was ok, which he wasn’t. Everyone needs time to cope in their own way.

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    vegas

    Fantastic initiative Gary – my bub spent 2 weeks in NICU and I count my blessings every day that she survived. My husband spent that time running between our dog and older child at home, me seriously ill in the maternity ward, and our baby critically ill in NICU. I was offered so much support, but no one seemed to know how to support him. This is so needed and overdue, bless you for doing this for the Dads.

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    Alistair

    Great initiative Gary and thanks for sharing. My wife and I lost 7 babies through recurrent miscarriage. It was devastating for both of us, and we mourned and needed support in our own way.

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    sue

    as a trainer of hospital staff in communicating with people dealing with grief and loss, I applaude you Gary.

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    OssieLeo

    Tears roll down my face as I read your story. All my babies spent time NICU but my middle one was most effected and a few times we were told he was not going to make it through the night. I think my X never recovered from having to authorize ‘do not resuscitate’ as I was too ill to do so. He would have beneffited greatly from this program and maybe even still have a relationship with the boys. I hope the program will be available everywhere. Thank you

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    Hello from hospital.

    This is a beautiful post for a great idea. I spent months in ICU and the men in my family (Dad and my brother) were, as you said, expected to have broad shoulders and be the pillars of strength for the wonderful women at my bedside.

    I wish you all the best with this and hope to hear more about it coming time.

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    Faybian

    Great idea, it would be lovely tosee it spread….

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    Relish

    I am sorry for your loss Gary. Thank you for being so brave as to share the trauma of losing Isaac. And for taking such a positive and practical step for dads. We have experienced serious illnesses with long hospital stays with two of our three babies. My husband, as you say, has been my rock and has had to take care of the older children while I have been in the hospital with the sick babe. He has faced the pressure of becoming primary caregiver, breadwinner and support person while having very little support himself. I wish you well with this program and congratulate you on this positive initiative. Thank you.

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    kea

    I think my husband would have really benefitted from this while our son was in NICU, I hope Pillars of Strength is here to stay :)

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    Sarah in Adelaide

    Fantastic idea! Bravo to you for taking your grief and doing something to support others.

    I am so very sorry for your loss.

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    La Bella Figura

    Dear Gary, I’m so sorry for your loss. A great idea and initiative which will help many men. although a bit of a different situation, I lost my husband and baby son in a car crash and I personally found people just didn’t know how to support me and still don’t. I was very young and was shocked how the medical professionals I dealt with just didn’t know what to do or say most of the time. I also had to work and didn’t have much family support. I think your help is just so lovely and realistic as there is a definite gap. All the best to you and your wife you are doing an amazing justice to the community.

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      OssieLeo

      My heart goes out to you. Many hugs and prayers for you. Xo

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    Pia Kinchin

    Out such heart ache and sadness comes a wonderful idea and support group for those who need it. My son sent 3 months in NNICU in 2004 and whilst he is a healthy 8 year old now My husband could of benefitted from some support at the time as the only support seemed to be to the Mums. We sadly saw so many babies pass during our time in hospital and I always wonder to this day how the parents cope, it reasuring to know there are more support groups forming to help…..wishing you all the best for your group.

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    Trish

    Sorry for the loss of your boy, Isaac , Gary – Such a fantastic initiative , I wish there had been Pillars of strength for my husband when our daughter was stillborn 7 yrs ago. Also the many friends’ husbands who I met through a pregnancy loss support group. They all struggled.

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    Susan As Well

    A support program for dads with unwell and terminally ill children has been missing for so long. Well done and wishing you every success for the program. I hope you get lots of fellas to support each other!

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    Ebony

    My husband and I are part of the “select club” you talk about. He, like you was lucky enough to have wonderful mates that took him out for a quiet beer when he needed it.. Which in turn helped him to remain my Pillar of Strength not to mention getting the blokey down time he didn’t know he needed til he got it.
    Good on you for setting up this wonderful thing as not everyone has such friends as you and him. I hope you and your wife are healing. x

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    Lauren

    Bravo to you Gary and I’m so sorry for your loss, any guy who is taking positive steps for change towards mental health issues for men is amazing in my books.

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    vanessayoung

    Pillars of Strength is a brilliant idea!