Justice
My dear friend Justice Campbell looks like any other 20 (nearly 21) year old out there. She’s blonde, pretty, smart and so funny that some think she should have her own comedy show. Around two years ago, Justice started to experience pins and needles, tingling, numbness, migraines and fatigue that were all treated as being unrelated to one another. Then just over 12 months ago, something happened to tip the scales.
“In February, 2011, I travelled to Bali with a group of friends and about half way into the trip I noticed my vision in my left eye was blurry. It gradually decreased over the next week and by the time I returned to Australia I had no sight left in my left eye. After a trip to the optometrist I was sent straight to the emergency ward where I spent a week in a ward waiting for an answer,” Justice explained.
Her diagnosis was Relapsing/Remitting Multiple Sclerosis.
There are many misconceptions surrounding MS, with many thinking that it only affects older people and that you will be in a wheelchair quickly, when in actual fact, you can’t tell by looking at Justice (and many other sufferers) that she has MS.
Justice wishes that people understood that having MS doesn’t mean you’ll be in a wheelchair, “Most people are diagnosed in their early 20s to mid 30s. Most of those people will be young, fit and healthy and won’t be in wheelchairs. We’re normal people living our lives, just with a few obstacles to overcome.”
According to the Multiple Sclerosis Australia Ltd website, the majority of people with MS do not become severely disabled with longitudinal studies showing that 50% of people with the disease are independently mobile 15 years after diagnosis.
The truth is that most people living with MS lead relatively normal lives; they just have to be aware of their limits as it’s a very unpredictable disease. Justice advises listening to your body and to figure out what it needs; “I can’t predict how I’m going to feel tomorrow; just because today is a good day doesn’t mean tomorrow will be. I just have to pace myself and listen to my body and do what it needs.”
While MS may not negatively impact on your day to day life, it’s still a shock and a diagnosis often leads to grieving. Justice summed it up nicely when she said this “It’s definitely a grieving process and it takes time to mourn the loss of your life as you knew it. I was sad for a long time, and I still have days where the sadness creeps in, because it is scary to have something like this that is so unpredictable and especially so young. I’m still frightened and I’m still sad, but I choose to believe that my life is only as normal as believe it to be, and if it’s normal it can’t be extraordinary and I’ve never been one to settle for ordinary.”
The key to surviving any illness or bumpy situation in life is having the support of family and friends and while Justice has had some great supporters, she’s also lost close friendships as well. “Most of the people in my life were supportive and understanding, but there were a select few who couldn’t cope with it and treated me differently. That’s where I view my MS as a blessing rather than a burden, because while they were painful lessons to learn; it has taught me who my true friends are and who I can rely on.”
MS symptoms vary from person to person with Justice suffering from the symptoms mentioned earlier as well as weakness, a severe intolerance to heat (making summer unbearable) and problems with her vision as a result of the Optic Neuritis she experienced while in Bali. Many people are unaware of the limits that are placed on someone suffering from MS when they appear to be fine.
This is a great deal of misunderstanding surrounding MS, something that most sufferers would know all too well. Justice, along with friends Allana Bryan, Melanie Buscombe and Hannah Bourke started a committee that organised The MS Australia Dinner Ball, a benefit event in which all the proceeds will go to Multiple Sclerosis Australia Ltd towards research, community support, facilities, nurses and treatment.
Where: Wests New Lambton, Newcastle
When: Saturday 19th May at 6:30pm
Cost: $120 which includes a three course meal, all you can drink beer, wine and spirits and entertainment by local band ‘Sunday’s Record’
Where to buy: Tickets will be on sale from 12th March available for purchase at Wests New Lambton, Newcastle. You can buy individual tickets or a table (of 10).
For further information, search for the Facebook group “The Newcastle MS Ball”.
While I’m promoting the event for any MM readers in the Newcastle area, I understand this is a much larger community, and my main aim and the main aim of the Ball is to promote awareness and understanding of Multiple Sclerosis. For more information about MS, you can visit Multiple Sclerosis Australia’s website here and you can make a donation here if you wish.
Monique Fischle is a 21 year old Journalism Graduate. You can follow her blog here and her tweets here.
Comments
14 Comments so far
I’m an (almost) 30 year old male with RR MS, and it is a struggle getting people to accept that I have MS, MS does not have me.
Yes, it can be a debilitating nightmare of a disease, but not in every case. Sufferers need people to understand the difference so we aren’t all placed in one bucket.
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It was a well-written piece but I think it very much underplayed how debilitating MS can be.
This article makes it sound like it’s a slight impairment and I don’t think this helps raise awareness about how important finding a cure for this disease is.
The young lady in this story calls her MS a blessing rather than a burden. I can appreciate what she is trying to say here but hopefully her MS never gets to the point that you are wheelchair bound, unable to move your own body without the help of someone else, unable to go to the toilet alone, unable to feed yourself and the list goes on.
Don’t downplay the effects of MS – we need more people supporting the cause, not fewer because they think its not really that bad afterall.
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I by no means meant to downplay how bad MS really is. While Justice is doing incredibly well, she has experienced great hardships since being diagnosed, including the loss of 40% of the function in one of her legs.
This article was meant to show that there may be people out there dealing with MS that you overlook because they appear to be physically fine.
I pray everyday that her MS never gets to that point as it does for many. I wanted to downplay the stereotypes, not the seriousness of the condition and I am truly sorry that you feel I have done so.
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A wonderfully written piece that highlights the affects of MS, while showing that a positive attitude can do wonders for someone in a negative situation.
Aware, I don’t think you quite caught the gist of what this young lady was saying- she only refers to her MS as a ‘blessing’ in terms of it showing her who her real friends are. She later goes on to say that she is sad and scared of what her future will bring, so I think she is well aware of how debilitating her condition could possibly be for her.
I felt both her and the writer conveyed living with this disease beautifully. Having suffered myself for fifteen years, I wish I had been able to adapt young Justice’s attitude from when I was diagnosed.
The point she was trying to make was that people (and you are demonstrating her point Aware) is that while it can have awful awful outcomes for certain cases, some people live with it every day and are overlooked because they aren’t in a wheelchair. Just because they aren’t in a wheelchair and are still self sufficient doesn’t mean they aren’t suffering just as much.
Hats off to people like her- taking something negative and making it positive. She certainly touched my heart.
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Beautiful article. My mum was diagnosed when I was in pre-school & I’m now 22. She is the bravest, strongest women I have ever met. She had to endure muscle injections every second day for over a decade which would often result in debilitating side effect. She is on a new one just once a week now but the day after is still a struggle. She comes for a walk with me & my dogs every afternoon, we just have to walk a bit slower. She is an inspiration. Thankyou for raising awareness
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Well written Monique. Guess your degree hasn’t been wasted!
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Thwnks for that post. To my shame (as a nurse) I don’t know much beyond the basics about MS and haven’t really looked after many people with it. Those that I have looked after have, of course, been pretty incapacitated.
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Most people don’t know beyond the basics. I still don’t know heaps, I only really discovered more about it when Justice was diagnosed through asking her and my own research. I’m one of those people who likes to know everything about an illness so I can understand it better.
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Yes, I’m a bit the same. It’s just a trifle embarressing to admit to as a health care worker.
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I wouldn’t be embarrassed, you can’t be expected to know everything!
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I know a GP in her fifties who has MS, owns and runs a very busy practice and looks incredibly healthy. She occasionally has time off when her symptoms are present but it doesn’t happen very often.
Good article on what MS is like for many people who have it. Thanks Monique.
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When they seem fine for the majority of the time it’s hard to remember that sometimes they do it really tough.
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really interesting post monique, thank-you
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If anyone has experience dealing with MS, feel free to talk about it here and share your stories.
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