Comments on: My story: Early Onset Parkinson’s Disease

By: Anonymous

Anonymous — Tue, 21 Aug 2012 18:57:10 +0000

I’m 30 year women just diagnosed, heartbroken and struggling to see any light so I’m truely thankful you took the time to post this.

By: Tonycs

Tonycs — Wed, 01 Aug 2012 09:03:28 +0000

! Great video quality ! Loooooved the way they were soloooo CRYSTAL CLEAR ! It felt like i was watching a DVD online! What video format was that?@ Someone !VERY GREAT COMMENT! I feel exactly the same way too ! That fight between Byakuya and Reigai was too damn short !I was really expecting more from the fight between Capt. Unohana and her Reigai than a brilliant display of Kido. I was hoping for some SERIOUS display of swordplay. However, i still believe the original made a smart move.@ 4:37 of the 1st half of the video if your threads start unravelling, i’m not fixing you!’ Funny!@ 5:19, when Kon was trying to explainwhy they are all trying to protect Nozomi, was tooooo funny!@ 11:33-’Using any means, including the power of another That is how someone with no pride thinks. I won’t loose to someone who discarded his pride’. When Byakuya let go of this pride’ thing of his?I really felt sad when Reigai Whitey-chan was defeated/destroyed.I was just starting to like him.Was it just me or was he sounding very much like Hollow Ichigo? I wonder what he was trying to protect. Hope we’ll find out soon.I like the way Kon is playing a VERY PROMINENT ROLE in the arc. It’s about time he got some cred. !As for Gramps, i don’t like the way he was portrayed. I felt it was very insulting that the Reigai were just keeping him busy to wear him down until reigai Capt. Unohana showed up to recharge them so that they could be fully powered up to kill him ! It’s like they are saying Gramps, we were just TOYING with you till we got a boost. And, now, we are fully charged, we are going to KILL YOU AND YOU DON’T HAVE A SNOWBALL’S CHANCE IN HELL!’. They really undrestimated him ! They haven’t had a taste of his bankai yet ! And, i don’t think he has fully used his Shunpo yet, either !I hope we’ll see more action in that fight next week. And, the next fight between Ichigo and Kageroza? Can’t wait to see that as well. In fact, next week COULDN’T come fast enough for me !Till then, STAY SAFE EVERYONE!

By: Sarah

Sarah — Sat, 21 Jul 2012 01:42:59 +0000

Thanks so much for posting this! I’m just getting to the point where I’m willing to go to a doctor to talk about weird things happening with my body lately. I kept telling myself, “Sure, I’ll get into a doctor’s office, and the symptoms will be gone,” and the doc will look at me like some pathetic idiot whose imagination has convinced her that something’s wrong when it’s all in her head. My imagination hasn’t ever caused me to feel shaky and weak for days on end (especially in my left arm, which feels awkward and clumsy), nor has it made my face feel like as though the muscles just don’t want to relax or made my eyeballs shake in their sockets. I thought it was just stress, but it would be nice to know that it’s not all in my head. The tremors are just plain weird. Sometimes I notice them more when I’m at rest, but I also feel shaky when I’m walking, when I’m driving, when I’m reaching for something or doing simple tasks for which my hands now feel unreliable. My left hand feels very weird on the steering wheel. Does Parkinson’s make you oversensitive to vibrations?
I know you have a life, so you don’t have to answer this, but thank you again for sharing your story. God bless you and your family.

By: Luella

Luella — Sun, 20 May 2012 09:22:58 +0000

Thanks so much for telling your story. My brother has been diagnosed recently and it’s a great comfort to hear that there are other young people out there living life to the full and coping. Science is coming along in leaps and bounds, and I do have faith that there will be a cure. x

By: PJ

PJ — Mon, 14 May 2012 20:00:49 +0000

You are a brave lady. Thanks for this story and for the others in the comments below. I came here because, at 44, I recently felt symptoms that seemed parky-like. The condition runs in my family – but normally later on.
Either way I know that there are people out there like you who, despite the hardships of such a condition, can live and enjoy life.

Essentially, who cares if I have it or not.

Thank you for the inspiration.

By: Carmel

Carmel — Sun, 06 May 2012 23:08:36 +0000

Kate, my hubby started with signs & symptoms at around the same age as yourself. This year he will turn 67. His life is not over – it’s just different; it’s not what he planned – it’s given him a direction he had never thought of.
Hang in there – as my hubby says – “the ride gets a but bumpy at times, but it’s better than the alternative”

By: Sarah King

Sarah King — Wed, 02 May 2012 18:28:14 +0000

Kate, you are an inspiration. Thank you for sharing your story. I lost my mom to Parkinson’s and now advocate for PD patients and caregivers–I’m so grateful to people like you who bravely share their stories of being diagnosed with and living with PD.

By: Julie Blackburn

Julie Blackburn — Wed, 18 Apr 2012 13:28:32 +0000

Thanks for sharing your story and providing greater awareness of living with this disease Kate. You are inspiring and I wish you well

By: Simone

Simone — Thu, 12 Apr 2012 00:27:25 +0000

Very exciting! Good luck with the treatment.

By: Faybian

Faybian — Wed, 11 Apr 2012 21:17:10 +0000

He certainly did take care of your face! Hope the disease don’t progress much for you.