This week I sat down and wrote two letters I’ve been trying to avoid. One was to an old friend who has cancer, the other, a former colleague whose husband is ill. I’ve known about both situations for a while as the news has slowly seeped from their inner circles to their very outer ones, where I reside.
What to do when you hear someone you know is battling a serious illness? ‘Nothing’ is the answer most of us settle on. I did. These are not women I’d call. I don’t even have their email addresses. So I told myself they probably had lots of support and tried to put it out of my mind.
Until I couldn’t. It just didn’t sit right, especially when I imagined running into one of them in the street. What would I say then?
As a society, we’re lousy at bereavement and possibly worse with sickness. Perhaps it’s the uncertainty. Perhaps it’s an irrational fear of something like cancer being contagious, if not physically then energetically. Or perhaps we’re just more comfortable with our heads in the sand. But should our own comfort really be the priority?
Bruce Feiler author of “The Council of Dads: A Story of Family, Friendship and Learning How to Live”, recently shared an excerpt of his book in The New York Times. Bruce had bone cancer; he also had 3-year-old twins, a working wife, nine months of chemotherapy and 15 hours of reconstructive surgery to deal with. When someone asked his advice on how to handle a mutual friend’s brain tumour, he came up with a list of things not to say to someone battling a dire health situation:
1. “What can I do to help?” (Don’t ask, be proactive).
2. “My thoughts and prayers are with you” (A tired cliché)
3. “Did you try that mango colonic I recommended?” (Leave treatment advice to the doctors)
4. “Everything will be OK.” (You don’t know that)
5. “How are we today?” (Sick people aren’t mentally diminished infants)
6. “You look great.” (Don’t focus on externals).
On this last point, one of my friends had stomach cancer when she was younger and lost a lot of weight during treatment. She works in fashion and I vividly recall how colleagues would say, “You look fantastic”. Even when they knew why she was so thin. Maybe they thought it would cheer her up. It simply made her upset.
Meanwhile, Bruce Feiler’s list of things you should say includes:
1. “No need to write back” (Keeping up with correspondence can be overwhelming)
2. “I should be going now” (Short visits are best)
3. “Would you like some gossip?” (Distraction is helpful)
4. “I love you” or “I’m sorry you have to go through this” (Honest expression of emotions are a powerful gift).
I sent his article to several girlfriends at various stages of their health battles – some in the middle, others out the other side – and they agreed with every point. “Everyone wants to help but you feel powerless enough already, you don’t want to have to ask,” explains one friend who had cancer a few years ago. “I so appreciated the people who just quietly dropped food on my doorstep unprompted. With treatment, it can be hard enough to eat, let alone shop and cook. And I had a family to feed! Meals were a godsend.”
A single friend added that she appreciates being invited out or to someone’s house for a meal. “My illness can be so isolating. Everyone assumes you can’t go out and sometimes that’s true but I still want my friends to include me in social arrangements. At least then I have a choice.”
Distraction was another common theme. Bring it on. “People often feel guilty talking about themselves but I love it! I’m so tired of discussing my health,” said one friend. “Whether you talk to me about the jeans you found on sale or some outrageous bit of Hollywood gossip or your own problems, it’s a relief to shift the focus off me, even briefly.”
When it comes to addressing the illness itself, my friend Janet who recently beat breast cancer has this advice on dealing with the elephant in the room: “When I see a friend who’s going through a tough time, I always open with, ‘We can talk about it for as long as you want, or we can not talk about it at all. Your call!’ And it makes people instantly relax to know they’re not expected to go thru the whole spiel. Because when you’re going through cancer or a divorce or miscarriage, it can be exhausting to feel like you have to tell the same story again and again.”
She re-iterated Bruce Feiler’s point that honesty is never awkward and saying something is better than saying nothing. “The underlying message is that there is no “right” conversation…everyone feels awkward and helpless. Even just saying that is helpful. Tell me it’s crap and I’ll agree and we’ll move on. Also, the sick person understands that it’s all coming from a good place. You just have to emotionally show up!”
Emotionally show up. What a great phrase. I hope that’s what my letters conveyed…
What’s been your experience of serious illness? What do you say when faced with it? And if you’ve been through it yourself or are close to someone who has, what is the best way for people to express their concern?







Comments
151 Comments so far
I’m frequently disappointed when old articles are promoted on twitter. Maybe preface with “from the archives”?
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It’s horses for courses though – I liked hearing that love and thoughts were with me- and if prayers, health germs, get well fairies or blessings of the goddess were added then so much the better. Also liked being told I looked good bald (even if I didn’t). Less keen on ooooh no ovarian cancer – 15% survival eh!? (actually didn’t get that – but stats in general weren’t helpful.),
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I have breast cancer and I honestly don’t mind saying “My thoughts and prayers are with you”.
I am encouraged by it.
Our situation makes it hard for people to be proactive but this is still a good general guide for people to consider.
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I received some gems when i was recovering from a near fatal car crash. When I was unsure if I would walk again a “friend” told me to ring them when “I was better”. Another “friend” told me she was envious that I only weighed 38 kilos!!!
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I was in hospital for 5 weeks due to Leukaemia and am still being treated. My advice, be proactive. Think about what the person needs. Ask if you can grab anything from the supermarket while you’re there. Gossip and talking about your problems and your day are helpful and distracting. Behaving like you normally do showing no pity is great. Asking how your day was is not helpful, or what did you get up to today, regarding people who are in hospital, as it really was not much different from the day before. I felt with some visitors I had that I had to entertain them as they had nothing to talk about and didn’t offer anything to do. Although I did very much appreciate the visit I did feel under more pressure to entertain them and worried about their boredom of being at a hospital, yet I was stuck there for weeks. I was lucky enough to have a laptop with me so at times watched a movie with some visitors was awesome.
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My friends 5 mth old baby died. After some time she returned back to work and she couldn’t believe how many people ignored her and worse still, didn’t acknowledge her loss. She wanted people to remember her baby and talk about her. Even just saying I’m sorry, or I’m sure this is a difficult time for you, or I’m sorry you have to go through such pain. A simple, sentence, msg or card will help to show you care. Yes it can be akward but saying and doing nothing is actually worse for the person/people.
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my 8yr old daughter was in intensive care, with a severe brain injury, after being hit by a car. A good friend, I am sure in an effort to let me know how strong she thought I was, said, “if this had to happen to someone, then you are best equipped to deal with it.”
HINT: Don’t say something like this to anyone.
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Another to one to add to the PLEASE DONT SAY LIST would be “Oh, you are so lucky to be having chemo in the winter rather than the summer”… My Mum has been dealing with breast cancer this year and the amount of people that have said that she is “lucky” to have this or that is insane. Good work on putting info out there that IS helpful to do and say!
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Wonderful post. My (55 year old) Mum recently passed away after an extremely long battle with cancer and strokes. Most people didn’t know how to respond. I’d have people say “I hope she gets well soon” which made me mad, as I was very open with filling people in about the dire situation and that she was on a downwards slope. And even my most supportive friends always said “let me know if there’s anything I can do”, which of course, I never felt like I could ask them for a meal for my family. The people who knew just to quietly be proactive were the godsends. I also asked a lot of people to spend time with my Mum, who in her final 12 months couldn’t do anything unassisted and couldn’t concentrate on shows, films or audio books. Many people didn’t want to intrude and didn’t come and visit, which I know was because they felt awkward, and not because they didn’t care. It would have made my Mum feel so much more involved in life, which she felt she was missing out on. She had many wonderful friends who spent time with her, but so many others didn’t, despite me asking. I hope articles like this go a little way to making people realise the power of being “there” for others, no matter how inadequate you may feel. xx
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Thanks for this opportunity to discuss it, Mia. I have responded, as a brain tumour patient, here. >>
http://deniswright.blogspot.com/2012/01/visiting-seriously-ill-people-dos-and.html
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Im just going to put it out there and say I never know what to say! I know I need to say something, I’m scared I am going to cry if start talking, then I get nervous, I worry I am just going to start babbling to cover the awkward silence and something terribly inappropriate is going to come out.
So thank you Mia, I feel much better equipped. And will just do stuff rather than offer to ‘help’.
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When I was told that i had caught a virus while i was pregnant and that my beautiful baby girl’s brain had been so badly damaged by it that doctors expected she would never be able to smile, roll over, crawl or walk, I was extremely afraid that people wouldn’t talk to me any more because they wouldn’t know what to say. Any one of us is only ever one virus we have never heard of away from circumstances more difficult than we have previously imagined. Just walk the road with friends in pain. They will appreciate the fact that you are still there beside them, and if you don’t know what to say, being there and saying something is better than not being there, or not saying anything at all.
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Im so glad you’ve written this Mia! So many people prefer to take the ostrich route and pretend its not happening! Which for someone with any serious illness can be almost as devastating as the illness itself.
I have a long term chronic illness, Chronic Fatigue Syndrome. I’m not dying, but having a name that seriously trivialises the condition makes it even harder for people to understand how life destroying it is. I’m thankful every day that this disease won’t kill me, but it has robbed me of 98% of “normal” life experiences. (schooling, uni, work, travel, boyfriends, buying a home, just being avle to go out at a moments notice) I deal with that in my own way. But it’s very difficult when people you think understand start with comments like “but we all have days when we don’t want to go to work, where we’d just like to stay in bed”. No. Wrong. That nothing like my day at all! I don’t WANT to stay in bed. I don’t love not going to work, being able to sit at home all day. I don’t love the almost complete isolation that any chronic illness can thrust upon a person. Unless you’ve had a serious illness, it’s almost impossible to understand how destroying it can be emotionally. And when it’s an illness that doesn’t necessarily make you look like you’re at deaths door, it’s even harder to explain. In my case, I’m not just tired! There’s muscle and joint pain, headaches, sore throat, blood pressure fluctuations, heart palpitations, general flu like symptoms, brain fog that makes baby brain look like a walk in the park, not to mention the exhaustion that is beyond anything I can possibly put into words, I could go on and on!
Speaking for myself, I don’t ask that people really understand, because they really can’t, not unless they’ve been through a serious illness, just think before they speak/type/txt etc. it’s hard enough dealing with “life” on a day to day basis without someone saying something like oh my friends sister/bosses cousin/mums friend had that and was back at work in six months. That’s not helpful. In fact it’s hurtful.
The more people who understand that all illnesses are different in people, just as we as people are all different, the better it will be for everyone.
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My husband is in the final stages of his life thanks to colon cancer – he is 34. He is in hospice right now with a couple of weeks left. Number one thing – leave treatment and prognosis to the experts. We dont care if you have found a website that shows juicing/walking/vitamin C has cured Cancer – when you suggest another treatment you are implying the patient has not done enough.
I would say – NEVER bring food! My husband can only have carefully prepared clear fluids and will probably never eat real food again so filling a hospice room or the house with casserole smells is devastating. Don’t bring big bunches of flowers or plants – they are a lot to deal with. Photos are great so are favourite books, movies, CDs. Don’t camp out in the room – quick visits are best. Most of all though – be respectful of other patients and clean up after yourself!!! You would not believe how many visitors we have had who come, let their kids roam loud and free, talk loudly themselves and then leave coffee cups, rubbish etc for me or a hospice volunteer to clean up.
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I am a divorced mother of 4 ,2 school age.I was diognosed with breast cancer almost 3 yrs ago.I had a mastectomy then chemo.Everyones situation is different.I think mine was too much for most.I was very isolated.And because my children needed me to be okay ,that’s what I tried to be.I was not.For support amongst other things,I went to the local church.There was a women there named Robyn who insisted that she drive me to all my treatments and sit with me as they injected me with that horrid substance.She never expected anything from me,she was just there……with me.An absolute angel.
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My father has just been diagnosed with stage 4 agressive lung cancer. In only three weeks he has gone from a small spot on one lung which the doctors weren’t very worried about, to full on cancer in both lungs. It’s a very rare type of cancer, they say. I read that the best thing is to just be there, to talk about the good old times together. I did that and it was really nice for both of us.
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Thank you Mia and everyone who’s commented so far. My 46 year old husband recently got diagnosed with Grade IV metastatic melanoma and reading all of these has made me feel less alone.
The best bits – friends who sleep with the phone under their pillows, the quietly dropped off no fuss no need for thankyou meals, the messages of support that don’t expect a reply, and the genuine care and loveshown to us.
The worst bits – but he looks so WELL, yes but he still has terminal cancer. My aunt/father/relative had that. he died, thanks so much for that. Call me if I can help – I am already so powerless I can’t reach out and ask for more. The very worst – those “friends” who need comforting for their own grief, or because they want to go on about how they haven’t dropped off anything or feel so useless and THEY feel bad! It devastates me, at a time when I need my energy to support my beautiful husband and three children.
Worst of all, my husband is a doctor – has anyone else noticed that most particularly doctors ( those treating him and his friends ) are acutely uncomfortable with illness??!!
Thanks everyone, this has really helped.
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I think that doctors are uncomfortable with such illnesses as they hope they can heal everyone (and find it really difficult to confront this).
People are good at telling you their negative experiences with Cancer at a time when you don’t need to hear it (unfortunately been there) – I wanted to bitch slap people when they did this.
Libby, you are a wonderful person and you are doing a great job supporting your husband and three children. Focus on the five of you and try and not let those “friends” affect you.
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‘He looks so well’ – oh my yes i hear you! I get that with my husband!!! Along with ‘you look so tired I hope you are looking after yourself’. I just think, yeah I will just leave him here and go for a spa weekend will I? I’m with you Libby. I’ve found some good books for explaining it all to my daughter if you need – but someone like Cancer Council will have them too.
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Oh Libby, I so hear you. My late husband was a doctor . It meant that everyone in the oncology ward assumed that we know everything…we didn’t…he was a cardiologist and me an ICU nurse. In the final stages of his illness, his colleagues almost found it impossible to set foot through the ward doors and even his treating physicians couldnt cope with it…it ain’t easy…hugs and my thoughts are with you x
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Another for the list of what NOT to say:
When my mother passed away unexpectedly last year in hospital from complications after a fairly common procedure, the first thing one of her “close” friends said to my dad was “Will you sue the doctors?”. I wanted to rip her throat out. Silly cow. She didn’t actually know the circumstances of mum’s death, and even if she had, how dare she!
And BTW, Mum’s doctors and all the hospital staff were fantastic and it was not their fault!
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Thank you thank you thank you thank you Mia! This post will undoubtedly touch and make a difference to everyone who reads it. It should be read by everyone because EVERYONE will be touched by illness of some description in their lifetime – be it their own, or indirectly via loved ones and those they meet along life’s journey. EVERYONE could do with this type of awakening and awareness – let’s call it “further training of our emotional intelligence”.
Personally, I’ve had many good and bad experiences with illness – both my own and those I’ve loved and lost along the way. I’ve had both good and bad experiences of how people cope (or don’t). So here are my top 3 tips for – whatever they’re worth. Apologies in advance for the length of this reply. Get out now if you like:
1. DON’T tell others to “think positive”. Instead, just give them permission – permission to feel whatever they are feeling on any given day; be it positive or not. Let them hit rock-bottom when/if the need to. Let them wallow, but also be there to help them kick their way off the bottom of that pool whenever they are feeling able. Honestly…tell me how reasonable it is to expect someone to feel positive when faced with their own mortality – or that of someone they love? Especially in the early stages or in the middle of treatment that’s making them feel like death anyway? To expect them to be positive really is more about helping YOU feel better because it’s less awkward for you if they put on a smiley face and “act positive”. It’s all superficial though. Let’s not talk about the elephant in the room! And that doesn’t give the person any real relief from their pain at all. Remember, they are the ones fighting for life and dealing with the fear, pain and suffering they usually manage to hide from you – in order to make YOU feel better.
2. When a friend is experiencing major stress – going through any sort of grieving process – be it the loss of a loved one, their own health, a marriage, life as they once knew it, anything…Remind them (often) that you are always there with a shoulder, hug, drink, or whatever they need – at anytime. But that you also respect their need for privacy or solitude if that’s what they need at times too and it’s hard to know if you are intruding. Tell them that all they have to do to let you know they are feeling up to contact is to either make a quick call, leave a message, email or even just text you with a sad or smiley face (yes, an emoticon!). That “codeword” is all you’ll need to know that they are ready, need or want to make contact. It takes the guesswork out of knowing how often is too often to call; and also removes your own fear of intruding. It takes the pressure off them to feel they have to keep in touch with you to update you on their progress or lack thereof. Either way – just connecting, often – or as Mia’s post says “being emotionally available” via whatever communication is the person’s favoured method – enables you to know if they need a hand; or to be available when they just want a distraction, a drink or a giggle…
3. Never say to someone who’s about to have a test/operation/procedure or awaiting results “Let me know how you go”! AS IF!! Do you really expect them to spend the days after, phoning around to report to everyone the results of their latest tests/biopsy/surgery?! Come ON! If you care, care enough to contact them (or their loved ones) and to check how you can best be of some help. Don’t wait for them to check in or to ask for help. They honestly aren’t going to. AND If you do call and they don’t pick up, DO leave a message. Don’t say after a week or more “I’ve been trying to reach you but you never pick up”. They surely won’t be able to recall every number on the missed-calls register and may even (God forbid) be thinking you’ve forgotten them already! Understand their fatigue and emotional status, and how powerful simply hearing a lovely sincere message from you might be just what the doctor ordered too!
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Totally totally agree! I hate it when people tell you to ‘look on the bright side’ or ‘think positively’. It’s like they are saying to you that it’s not ok to feel sad, down, sick, grieve, or whatever it is you are feeling. I know their intentions are well-meaning but it can be so counter productive. It just makes me want to isolate myself even more so that I don’t have to feel bad about feeling bad.
And never say “I know how you feel..” Chances are you don’t. It makes the pain seem empty and unjustified. It is never empty and unjustified.
Whenever someone close to me goes through some kind of hard-ship I just let them know that it’s ok to feel whatever it is they are feeling. And I tell them to never let anyone tell them it’s not ok.
Words very quickly lose their power when grief or hardship strikes.
Great post!!
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What timely words! Not only does this apply to physical illness, but I have been experiencing the same during my recent bout of depression. Mostly I had very little contact from those who thought would be understanding. Sure, when feeling depressed, it is not unusual to isolate and not want to talk with anyone. Having said that, how nice it is to know that people care enough to make some simple contact, whether either by email or text message. Most helpful I have found has been “let me know when you are up to getting together” followed by some regular messages. That way, the door is open for me to walk through when I am ready.
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I spent 2009 battling breast cancer at the age of 42 and yes some people do say the weirdest things to you and strangers give you the pity look!!
When I was diagnosed I was devastated and just wanted to be left alone to get on and do what I had to do to get rid of this disease in my body. I told a few friends in my ‘inner circle’ about my illness prior to my first round of surgery.
Once the news got around that I was ill I was surprised, grateful and humbled by how many people either phoned or wrote – one of my oldest friends that I rarely saw or spoke with couldn’t get to the hospital quick enough – all of this was very unexpected and made me feel very special and loved.
I will never forget the friends that I have known for more than 20 years and unfortunately did not see on a regular basis taking me to chemo sessions and lunch after or my best friends regularly dropping in with fresh beetroot (cancer fighting food), flowers and home cooked meals.
Saying or doing something is always best – the smallest gestures can mean the most and just knowing that someone is thinking of you and cares really can help.
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I had breast cancer at 39 and some people said some very strange and awkward things to me like….
1. Oh thats so trendy right now! (y’know…Kylie etc)
2. How cool that you can experiment with all those crazy wigs! (yes…because this is the time of your life you want all eyes on you, making judgements about your appearance!)
3. Oh everyone gets breast cancer now….it’s like getting the flu.
4. My mum/aunt/cousin / neighbour etc. had breast cancer. She died.
The list goes on and on.
But worse, were the people who said nothing, and didn’t acknowledge it at all. I would sometimes be out grocery shopping or whatever- bloated and red faced from steroids, obviously bald under my cap, moving slowly because of surgery pain etc…and people I’d known for years would either pretend they didn’t see me, or totally ignore what they saw, even when I could see the shock registering on their face. I had at least two very close friends completely disappear during my treatment because they couldn’t face me. And I’m sorry to say but that hurt my feelings and our friendships will never be the same, if they exist at all.
So….saying something is better than nothing. Thinking it through is thoughtful (instead of blurting out something awkward). A simple message that you’re thinking of them works wonders. I lost friends over my experience but I have also reconnected with many people who took the time to get in touch with me. Many of them starting their emails or notes with “I know it’s been a long time since we spoke but I recently heard about your illness and wanted to say…”
It helps.
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Can you say nothing if you’re still there?
I’ve had a few friends who’ve lost family members or had cancer and all I’ve been able to say is “I don’t know what to say”.
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Saying “I don’t know what to say” is honest and better than saying nothing.
I was diagnosed with cancer at the same time my sister was very sick, also cancer (different and unrelated to mine…she’s still very ill) so the whole thing was quite surreal and I understood that for most people, wrapping their heads around it all was very difficult. So I heard “I don’t know what to say” a lot, but I was always happy to have the situation acknowledged and sometimes that statement would open up an opportunity to talk about things in a more meaningful way.
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Almost two years ago I had a serious car accident. My family and I received wonderful support at the time. As time has gone by my pet peeves in the comment dept are – I suppose you’ve recovered by now? (No, and this is as good as it’s going to get) – Will you ever be normal again? and Well, let’s face it, you could be dead.
I have a wonderful array of friends who keep my social life ticking over.
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Great post Mia. It is so true that people don’t know what to say or do when a friend is seriously ill. Quite often people are so concerned about it they do nothing….and keep doing nothing…. and the person can be left feeling very lonely and isolated.
I had to retire from work due to ongoing medical issues a couple of years ago. For about 7 months I barely left the house and had trouble doing the most basic things for myself and family. I think many people around me felt paralysed as to what to do to help, so did nothing. It still hurts me now, but I have tried not to to let it affect my relationships with them. The other thing is that because I come from a large extended family, everyone assumed someone else was doing something to help. And they weren’t. My husband is wonderful, so I know that people would have known he was doing everything, along with my adult kids. But they needed support too.
I have a lot more good days than bad now, and I think many of my friends and family think I have fully recovered, which of course I haven’t. I have learned to manage my disease.I also don’t discuss it, because the prognosis isn’t great, and I need to deal with that. I also found it took a lot of energy to try and make others feel comfortable about me being sick, and looking awful.
Reading back on what I have just written it would appear as though I am a tad negative about my friends & fam!! I am actually a very positive and loving person, very grateful for the things in life I do have
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You’ve hit the nail on the head for me…
In 2009 my husband was involved in a serious motor accident.
He was left with serious injuries and a life long disability.
I dealt with the 3 month hospital stay, the ICU, the surgery after surgery at the time, but i also had to deal with non action of friends as well, which I wasn’t expecting. What seemed to happen was people just didn’t know what to do, how to act, what to say – so they did nothing. And this was from people I thought of as GOOD friends!
Dealing with silent and apparently uncaring friends on top of the trauma is unexpected and heartbreaking. You realise your friends are not really friends at all. Even now, with surgery & rehab continuing over 2 years later, only 1-2 people pick up the phone to see how things are going. Mostly I get the lame ‘busy’ excuse for no contact whatsoever. That or no excuse at all.
Sadly, it’s true that having something terrible happen in your life can really show you who your friends are.
What I know now is that friends that do/did nothing only make themselves feel better, they actually make the person or people going through the trauma feel worse, much worse.
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I really enjoyed reading this article Mia – as I could so relate to it as that person on the other side. When I went through breast cancer there were certain things that really got to me:
(1) Get well cards
(2) Birthday/New Year cards where people wrote ‘wishing you a happy and healthy year ahead’ and underlined the word healthy
(3) People asking me how I was in a very soft voice with their heads cocked to one side and
(4) no contact at all from people I knew
What worked for me were the little touches – such as a bottle of wine/flowers dropped off when I was having chemo the next day, a note from a friend crammed with gossip and a home made apple pie for my family.
It’s a hard one I know – but when you look back at it all you always remember those people that just got it right.
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I’ve been suffering from a serious an ongoing illness since February. Every person who came into contact with me said “get well soon” or “speedy recovery” or similar words which silently made me more depressed than what I was actually going through at the time. I knew people were trying to be kind but I wanted to scream at them “I’m not going to get better!”. As a result I don’t talk about my illness to anyone ever except my husband and closest friend. I have to say, it sucks big time, but for my own self-preservation it’s the only way I can manage.
It’s frustrating. I know people are trying to help but it’s kinda like telling someone with chronic depression to “cheer up”.
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you got it! Well said…
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Loading a Ubuntu Linux Live-CD takes some resources on your comupter I believe you should have at least 256-512 Mb of memory available and a decent CPU.I was unsure to try Ubuntu on my old 350 MHz/192 MB legacy desktop comupter, so I tried Xubuntu Linux Live-CD instead. It’s much more lighter on your comupter, but it still took some time for me, and felt sluggish. Using a Linux (any Linux) from a Live-CD is always so much more slower than actually installing it on the hard disk and using it from there.So check if your comupter has enough memory and a powerful enough CPU (required specifications should be on Ubuntu/Kubuntu/Xubuntu websites).Or, maybe your cd (or the Ubuntu .iso image file you burned on it) is corrupted somehow. Burning Ubuntu on a new cd (after you have checked the integrity of the .iso file by comparing MD5 checksums) might help.
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I actually did a blog post the other week about what you can do if someone you know loses someone. It’s from my point of view really, and I suppose some of it would apply to those who are sick.
I think it’s important for the person who is ill to really call the shots. If they want to talk, they will talk, if they don’t, don’t push it.
Just be there
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My mum passed away last month after a long illness with cancer. She lived in a country community and I saw first-hand the practical help and support shown by her neighbours and friends. My advice: do whatever comes naturally and be mindful of your true relationship with the patient. If you’re a close friend, be a close friend.
But if you’re a neighbour or acquaintance:
- bake a quiche
- offer to mind the pets for a few hours
- drop over flowers from your garden
- pop a magazine or a CD in the mailbox
- knit some socks
- send a text message or a card saying “thinking of you”. No questions.
Don’t linger and don’t expect a long conversation in return, especially not about illness or treatment. Don’t say “ring me if you need anything”, simply DO something kind and helpful and don’t expect anything in return.
If you’re a close friend of the family of the patient – again, be true to your relationship. When my mother was sick and after she died, I really needed my friends for different roles. With one friend I cried and cried, with another I just wanted her to make me laugh, with another I wanted to cry but in a different way and another I wanted to talk about the ins and outs of the medical appointments.
With distant or new friends, it’s tricky. I get that people don’t know what to say, but I can think of a few incidents that really upset me. A new friend asked about my mum and said, “well my cousin’s friend’s uncle went vegan and threw out all his cleaning products and his cancer disappeared”. I’d like to think she was naive and uninformed rather than insensitive but her flippancy was very upsetting to me. On another occasion, I bumped into an old friend at the airport as I was rushing home to see my mum. He then said, “my mother’s friend died in less than a year after a similar diagnosis”. I don’t know how I didn’t punch him. Another very common comment was when people equated my 60-year-old mother’s illness with their 90-year-old grandma/grandpa’s death. It’s not the same. By any stretch.
But overall, I have been truly blown away by the generosity and compassion shown by friends, neighbours, acquaintances and strangers. On the day before my mother died, a nurse came into her hospital room with a bunch of flowers. She said, “a lady just dropped these off at reception. She picked them from her garden and wanted to give them to someone who needed them more.” True kindness.
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I lost my Dad last November and everything you have said is so true..
I just want to say I’m so sorry for your loss
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The death of an elderly person after a long life is sad. The death of a young person, or someone whom one would expect should have many more years, is tragic, I agree. However, I recently lost my elderly Mum and I have to say that grief is still grief, no matter the circumstances. Perhaps a long life is makes one’s loved one’s mortality easier to take, but their lossi is elt just as keenly.
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Just a quickie:
It’s only a small thing but when my son was terribly ill in hospital one of my dear (extremely well-meaning) friends sent me almost daily texts. I hugely appreciated her concern but she always included at least one question and often two or more, typically “how’s J feeling?”, “how are the other kids holding up?” etc. I soon found it quite a burden because whilst I loved that she was being so thoughtful and concerned I felt pressured to respond. At first I responded to individual texts (not just hers – everyone’s) but eventually just sent group updates and “I’ll call when I can” etc, hoping/expecting that would be enough. It was for pretty much everyone but she’d still respond with “and how are you feeling?” or whatever. Again, I know she was just being lovely but it added to my load when I didn’t have any spare mental or emotional energy. A “thinking of you – call if you need” would have been far more appreciated at that time.
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I guess I just find it interesting how your are so self absorbed with your own reactions at such a time!
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I guess I just find it interesting how you can say something so mean spirited. Where’s your empathy? Illness/tragedy/sadness/grief also greatly effect all those around you. It takes a village…
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So, you think that Mia taking the time to consider how best to lend her support to two friends, who aren’t even particularly close friends of hers, is self-absorbed? I find THAT interesting… and by interesting, I mean ridiculous.
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Get over and on with it! Seriously stop analysing everything. Perhaps if you stop viewing it from the perspective of “how does this impact on me and on my life” you would feel more sincere empathy.
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Particularly when she was worried about bumping into them…I tend to agree on this one, just do what’s in your heart and don’t overthink it. The worse thing would be to receive empathy or sympathy that wasn’t genuine.
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I will say, as an RN in the Emergency Department of a busy hospital, please pick your times to visit carefully. As a rule, unless you are family, don’t visit in the first 24 hrs as the person is most likely most unwell and we will be doing investigations/treatment etc all the time – and as much as we appreciate while you’re there YOU DO GET IN THE WAY. As a rule – always call first. And flowers are beautiful, but maybe leave them until they go home. There are so many other useful things you can bring like; FOOD, or a nice blanket, gossip mags! Newspapers, socks (feet get cold in hospital), books etc. They actually make the person feel better, and don’t take up valuable space. Plus although flowers smell beautiful, being surrounded by so many the smell is enough to make your eyes water!
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Agree agree especially re the visiting thing. I generally just stay away completely, except if it’s my immediate family and even then I keep visits extremely short (unless they ask me to stay). It can be exhausting trying to make or keep up with conversation when you’re feeling wretched. If I was sick at home I wouldn’t want people to sit/stand around my bed chatting away (often to each other). Hospitals can be so busy and noisy and I don’t think this aspect aids healing. At least check if the patient is up for a visit – I’m sure some welcome them but many dread them. And definitely at least stick strictly to the hospital’s visiting hours – sometimes that three-hour window in the day is a much-needed respite from a constant stream of (no doubt extremely well-meaning) people.
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As my father lost his battle with cancer at 60 in hospital, it was the nurses who have my utmost respect. You really are the backbone of the hospital.
Your not thanked enough THANK YOU
you can make an unbearable situation that little more bearable by just doing your job with kindness..
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Having gone through 2 surgeries & radiation treatment it was bothering me when people were constantly asking “How are you feeling?” and other cliche questions. But when I sat back and really thought about it, I too have been in that situation of just not knowing what to say and came to realise that they only ask because they care. So I answer their questions and along with the answer I try to explain my view on it eg, one friend always asks “Are you feeling better?” how is that person meant to know that I actually never felt sick…I was diagnosed with cancer and am managing it as best I can, so I explain that. It’s best to be open & put it out there. Unless someone has been through the same situation they don’t know what it feels like. Loved ones just want to show they care, let them!
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This time 2 years ago I was going through chemo for Breast Cancer at 34 years old. It really was just a blur, but I got through it. I have read through all the posts and now thinking of it I agree that saying nothing is something that got to me more than the annoying phrases and cliches. (“You’ve just got to stay positive” is my support groups pet hate!) The people who found out either through me or through other friends that I was sick and had to have surgery, chemo and radiation and then totally NEVER contacted me means that we are no longer friends. I was hurt by friends that couldn’t deal with MY illness but have now got past that. I know everyone has their own lives but I did expect more from people. On the positive I had people who were helping us (my husband and then 14 month old) with meals and that was so helpful! Never forget the power of food. Having to not think, cook and pay for meals was a blessing. Wow I could go on for ages about this topic. But I won’t, instead I will get off the computer and be glad for my life as it has definately changed my thinking towards it now!
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Having a child who has just finished going through 2 years of chemo has been more than difficult. Use to get annoyed at people saying he looks so well. I wanted to say great but he still has cancer.Very disappointed in a lotof people around us I didn’t ask for much help and got even less than I asked for.
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I have definitely been the most grateful for meals, but also just company, I suppose probably as mentioned because it makes you change focus for a while.
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This post has come at a perfect time for me. My son was in a horrible accident a week ago tomorrow, but thankfully he survived. I agree that even a cliche is better than saying nothing at all. Having been overwhelmed by messages of support from so many people, many of whom I am not close to or do not even know, all I can say is that every little message helped, and made us feel loved and like people really cared.
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I really think it’s the smallest gestures that can be the most comforting. A strong hug, a cooked meal, taking a load of washing.
When my grandfather died, Mum had to go to Ireland (where she is from and where he lived) while I was at home with my own illness. I know it was one of the hardest times in Mum’s life because she lost her father and couldnt be with her sick child, but she really appreciated knowing that people were cooking meals for us and helping out with school runs and stuff. Dad did his best, but with a full time job it was very hard. I know it was hard for him too not being able to physically be with Mum at Grandad’s funeral.
When my aunty’s father was seriously ill earlier this year before he died, I knew that in such a stressful, confusing time the best contribution I could make was to take her 3 young kids out for a while, or stay at home with them so she could go to the hospital or run some errands or just get out for dinner or have a nap with no interruptions.
I must admit I am terrible at knowing what to say in situations that involve illness and/or death, so I usually opt for a hug and a meal and/or babysitting if appropriate. I find I get so emotional that I am afraid I’ll burst into tears and make everything worse!
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I’ve had a chronic illness which has kept me mostly at home, in pain, for the last 18 months (no socialising, no work), and as I expected, most people drifted off, wrapped up in their own lives, and didn’t understand (pain isn’t always visible- often I wish I had a broken leg in a cast so people would recognise that there was a problem!). It’s been a long process of specialist appointments, trialling medications, physio, osteo, chiro, acupuncture, vitamins, diets, and still the general response is all the things on that list of what NOT to say, like ‘but you LOOK ok’ or ‘did you try etc.’, or my favourite ‘you’re young-it can’t be too bad’.
The most helpful and genuine friends do little thing, like picking up parcels for me, distracting me with their own news, whilst inevitably (unnecessarily) apologising profusely for having a life, or bringing me a coffee flavoured mini croissant, or saying that even though I can’t have coffee, wheat or sugar, I needed a treat. For anyone who has a friend with an illness, trying to understand, or at least sympathise with, them is probably the most important thing.
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I too know the battles of having an invisible chronic illness! The but you look so well (I DON’T!), you’re young (30), you must be able to work if you really wanted to’s, I’ve heard ‘em all, and they never, ever, get any less hurtful! After a lot of years with this going on though, I’ve finally understood it says more about them as people than it does about us. It doesn’t make it less hurtful.
My BFF’s are the best! And I know I’m lucky to have some that see beyond the illness to the real me!
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I’m currently sitting in my hospital bed hooked up to an IV waiting to find out how exactly my disorder (progressive neuropathy and dysautonomia) has damaged yet another part of my body so this is very timely. My disorder is progressive, there are no cures and it’s only going get worse, and this hospital stay is only the latest in a long line of fun times with the medical system. Yet I keep getting told “you never know”, “you Must have hope”, “they’re always finding cures”, or if I have a ‘good’ day there’s the good old “you must be getting better”. This shits me no end.
I am realistic about my illness and know what my future holds. I don’t dwell on it all day long. I deal with it when it can’t be ignored (like now). I’m not going to waste my time wishing for a cure that is exceedingly unlikely to occur, and that’s okay. It doesn’t mean I’ve given in. It means I can live life rather than letting this stupid disorder control every moment of existent, which is frankly exhausting. I still find joy in life, I do stupid things (ie I am a 38 yr old woman wearing my Wonder Woman t-shirt whilst being poked and prodded), I laugh at the absurdity of it all. Don’t tell me how to feel and what to think, just so you feel better. Support me in finding the joy where I can, and just be there when the times are shit. That is all I ask.
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Thank you! You seem to be much like myself! I totally agree with what you’ve just said. I wear the same kind of t-shirts because they keep me smiling especially on crappy days when nothing works. Xo
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I wrote a recent article on my blog: http://www.inklings-ink.blogspot.com, entitled ‘Things Not to Say’. I’m 35 and have rheumatoid arthritis. I get so sick of hearing certain comments that I decided to blog about it. I do believe, however, it is worse to say or do nothing at all. xo
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I’m right there with you, Shan, my diagnosis is a month old. Interested to check out your blog. If one more person tells me how well I look, I’ll probably punch them with my excruciatingly painful knuckles. People just don’t get pain.
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15 years ago my good friend lost his father at quite a young age. I didn’t know what to say to him so in the end I just gave him a hug. A little while after that he said that was the nicest thing I could have done, that he felt it was honest, compared to all the clichés people come out with. Just this year I lost my mum and he was right. I too appreciated the hugs I received as genuine expressions of love. It’s easy to say the wrong words, not so easy to give the wrong hug.
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While on vacation one time my frneid was taking a really long shower. When she got out I asked what took so long she said she fell alseep standing up in the shower.Also, when I was in college, my dad got NASCAR truck race tickets for my brothers and I. Once the race began, there wasn’t too much excitment and I looked over at my older brother and he was sound asleep. He was only awake for the beginning and ending of the race.
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Did I miss something? What’s that got to do with the price of fish in China?
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Hi – my mum is on her second round of breast cancer diagnosis & treatment and I have found the words & contact & support this time around much less than first time (perhaps everyone thinks our family is getting used to dealing with it now?!). I honestly appreciate ‘our thoughts and prayers are with you’ because it is comforting to know people care & are thinking of you. Top on my list of unhelpful comments is ‘I’m sure she will be fine’, because we obviously hope she will be, but we really don’t know that she will, so I dont need to be told that. A lot of people who have been through it seem to say ‘good luck with your journey’ and I think that is a nice way to offer positive support.
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I had cancer last year at 25 years old, and I found that people closest to me acting like nothing was wrong was more painful and hurtful then talking about it and acknowledging it.
I have to agree with not saying “You’ll be fine”, it comes across very insensitive and uncaring even when it’s not intended to be that way.
Thanks for the article.
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Thanks for this.
My late father was once taken to hospital with heart trouble, early one morning. In the mid-afternoon a neighbour, who we didn’t know very well, dropped by with a quiche she’d baked. I’m guessing she saw the ambulance, figured there was trouble of some kind, and started cooking. That quiche was so welcome and we had it for dinner that night.
I particularly agree with 1. The person you’re asking will be so frazzled they won’t be able to think of anything straight away, so instead of asking suggest something. “I’d like to help, how about I xxxx?” When they realise you’re sincere and not just being nice they’ll probably say either “Oh yes that would be fantastic” or “That’s under control thanks, but I’d really love it if you could xxxxx?”
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Not the same reason, but a great idea nonetheless… A friend of mine when overwhelmed by the arrival of premmy twins wrote a list of chores and stuck it on her fridge. When friends dropped by and asked what they might do to help, she pointed them to the list and they chose whatever suited them (make a cuppa, fold the washing, sweep kitchen floor, etc etc). That way she wasn’t really asking and they chose whatever they wanted with time/physical constraints, whatever.
As a sufferer of chronic illness for the past five years, please just stay in touch. Often when not feeling so well it is hard to stay motivated to keep up your end of the contact contract with friends (she phoned me last week, so now it’s my turn…). It is so lovely to hear from people just for a chat like you used to, no need to even mention the illness or treatment or whatever if you don’t want to. Oh, and visit when in hospital. You don’t need to stay long, but it is the most lonely place on the planet.
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Great article – as someone who has been on the receiving end of well-wishers, I think the main thing to remember is that saying/doing something is better than saying/doing nothing.
Part of me thinks our language just doesn’t have the vocabulary to deal with this. I got so sick of hearing/reading the words ‘positive’ and ‘strong’ that I banned my family from saying them. I didn’t ever tire of hearing ‘thinking of you’ and one of the nicest things someone wrote to me was ‘feel hugged’.
Like YoungVintage’s mum, I also heard stories from near strangers, usually without a happy ending – not exactly what I wanted to hear. Yes, it’s nice to make a connection (which is what we like to do when making chitchat) but on the other hand please think before you speak. I also had a complete stranger ask me if I had cancer (yes), and then ‘How long do you have to live?’ (!)
I also think it’s important not to ask ‘How do you think you go it?’ (mainly I think people ask this through fear because people want to be reassured that they’re not going to ‘get it’), and also not to theorise about how they think cancer is caught/spreads/can be cured. If I want that information, I’ll find it myself, thank you.
Another thing to avoid is ‘Make sure you eat healthy food/maintain a healthy lifestyle’ – which felt like I was being accused of not doing this before and that’s how I got sick.
I love the idea of meals & help with housework. A friend came over and baked me a cake one day – that was lovely. Another helped with moving house and cleaned our old unit for us. Text messages are great – and as another person commented, nice gossip is a great distraction!
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My Mum has about 2 months left to live. This is after an out of the blue diagnosis several months ago. One day she woke up and went to work as normal, and by the end of the day she had a terminal diagnosis. Needless to say it has been a roller coaster for my family and the things that she had to hear from people while she was still coherent still boggles my mind.
My own advice to people would be, please don’t constantly ask the sick person, or the family, for updates. It is hard to constantly repeat such terrible news all the time. Most of the time, there is nothing to report. If you must know, there will be someone who knows something that isn’t so close to the situation who can let you know how things are going. Secondly, don’t be afraid of the sick person. Treat them like you would have treated them before the illness. My Mum is very unwell now and is barely with us, but is delightful to see my kids still treat her like their Nanny, before she was sick, and see them get some response out of her. I think we can learn a lot from kids when it comes to things like this.
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Oh I am so sorry that this is happening to you, your Mum and family. My Mum died in similar circumstances and I wish you all very best.
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I’m sorry to hear this is happening to you and your Mum too. Be present for every moment you can and enjoy each other! And “feel hugged” xox
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Thank you for these tips Bruce. It’s always hard to know what to say, especially to people you don’t know very well.
After my mum died, I experienced some really nice gestures from the most unexpected people (a mum from school with 5 children baked me a pie – I wasn’t that close to her – I was really touched and I will never forget it) but I also experienced some weird things. Someone hugged me and said “I lost my uncle three years ago”. I’m not sure how this was supposed to comfort me. I never knew the uncle and I think that is different to losing your mum in a car accident. My best friend’s mum said at the funeral “You look like you’re doing really well. I’m still not over the death of my mother and that was 25 years ago”. Well thanks for that…so it takes over 25 years to get over the death of your mother then?
My advice would be just this – hug, say I’m so sorry….then allow a pause. Don’t feel like you have to talk. Let the person do the talking and use that as a guide. Similarly, for someone is ill. Don’t talk about your/your families illnesses, at least not straight away. Make a cuppa (even though it’s the other person’s house) and give the person some space.
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When my Mum was sick with breast cancer and going through chemo, something we found really hard were the amount of strangers (people in shops, at the Post Office – places like that) that would strike up conversations with us and tell us stories about family/friends they knew that also had cancer. Sometimes the stories had happy endings – but most of the time they didn’t. My Mum and I would just stand there, not knowing what to do. My Mum’s illness wasn’t something we particularly wanted to talk to strangers about (that sounds pretty rude – but when we were out running errands and actually distracted from how ill she was feeling and looked, the last thing we wanted to do was stand around talking about it), so it was difficult. Everyone meant well, I know, but just because it was obvious she had cancer, people would start talking about it and more often than not, it was like they were talking AT us (as opposed to with us)…
So something I learnt and will always be conscious of is that just because someone is sick, it doesn’t automatically mean they want the situation brought up – particularly by strangers… No matter how well meaning you are…
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I’ve seen a few women lately with scarves wrapped around their heads. I always give them a smile, but in no terms would I ever bring up their illness. I would like to think a smile from a stranger would be a little comforting.
I hope your mum is doing ok. x
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I am terrible at knowing what to say to people in situations like these. This definitely gave me some pointers (although for the sake of all those close to me, I hope I don’t have to draw on this knowledge base anytime soon!)
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